Search Results for: health information

Want to advertise or submit an article to Health Matters?

Advertising in Health Matters Magazine

Health Consumers’ Council (WA) Inc (HCC) has produced Health Matters quarterly magazine since its inception in 1994. Since mid-2015 HCC each issue has focused on a theme, with articles sourced from key stakeholders across WA and Australia. A call for features goes out through HCC’s media channels and key people are approached to contribute. Click here for more information on how you can advertise with us or contact the Health Consumers Council on (08) 9221 3422.

Health Matters Reach:

  • Direct marketing to a community of 1000+ individual and organisational members plus interested community members based in WA, including key people and organisations in WA health
  • Promoted through HCC social media channels (Facebook, Twitter, LinkedIn and Instagram) to a combined reach of 25k+ per month
  • Used as promotional material at all Health Consumers’ Council events, partnership events and external events where HCC has a stall
  • All past issues feature on HCC’s website, with many articles re-purposed as blog posts

Health Matters Magazine Article Submissions

If you would like to submit an article for consideration, it should be no more than 600 words, plus high resolution photographs (2 MB or higher) if available attached as a JPG or PNG file.

As a general rule, all submitted articles should meet the following criteria:

  • Directly related to health care and health care consumers in WA
  • Information for people involved in the WA health system
  • Non-commercial interests

Please send your submissions to info@hconc.org.au. Please note that submitting an article is no guarantee the article will be published as is, or even at all. Please don’t hesitate to contact us on 9221 3422 to discuss.

My Health Record Webinar 1 – Privacy and Security – Key Takeaways

Consumers Health Forum has been funded by the Australian Digital Health Agency to run a series of free webinars on My Health Record. You can register for them here.

The webinars are just under and hour, and are available on replay on the link above. As everyone is so busy, I have watched this and include key takeaway messages which I have summarised from comments made.

  1. There are three options for consumers – opt in, opt out or opt in but include protections on data you don’t want to be publicly available. (Karen Carey)
  2. You have to make the assumption that the data you have in My Health Record may at some time be inadvertently made public and identify your own risk level and mitigate that risk by using security controls. It is not helpful to try and assuage consumer concern by talking about how high-grade the security is and that a breach will never occur. The chances are it will, so consumers need to proceed on that basis. (Karen Carey)
  3. Risk mitigation means considering your own personal circumstances and make sure that any relevant information is not included (Karen Carey)
  4. My Health Record is just a summary of the rich data that at GP or specialist may have about you – a summary page, not the whole thing (Charlotte Hespe)
  5. You can work with your GP on the summary – (Charlotte Hespe)
  6. The protections on our data and privacy over the last thirty years have been eroded, drip by drip. Policy and legislation can be altered and so we do need to be mindful of this when given assurances that our data won’t be shared with other agencies. (see point 2) (Bruce Arnold)
  7. These are important conversations about My Health Record but a) they should have taken place some time ago and b) they need to be with a much broader audience (Karen Carey and Bruce Arnold, various comments)

I have had a My Health Record for three years now, and when I applied you needed to have all your key documents with you and it was a cumbersome process. There was not much data on it but it is increasing. I personally feel like Facebook knows more about me that the Australian Government ever will. My Health Record is a necessary step towards simplifying our complex health system and literally saving people’s lives by the access to key information about allergies and medications. However, as it was mentioned several times in the webcast, people’s care will be impacted by certain things – mental health diagnosis, drug and alcohol history and on and on – for myself personally this is not an issue and it is important to consider your own circumstances. If in doubt, opt out.

How easy the privacy controls will be for someone with no or low literacy or minimal computer access is not really considered, as in so much of how our systems work.

Panellists:

Kim Webber – General Manager, Strategy at the Australian Digital Health Agency
Karen Carey – Consumer Advocate, former chair of CHF and Chair of the NHMRC Community and Consumer Advisory Group
Dr Bruce Baer Arnold – Assistant Professor, Law at University of Canberra and Vice-chair of the Australian Privacy Foundation Board
Dr Charlotte Hespe – GP, Glebe Family Medical Centre and RACGP Vice President

 

Pip Brennan, Executive Director, Health Consumers’ Council

My Health Record

Have your say on My Health Record

Health Consumers’ Council partnered with Australian Digital Health Agency to help West Australians get to know My Health Record better. We’ve been sharing content through our social media, website and newsletters, and followed this up with a survey to find out your views on My Health Record. The survey is now closed, and the results will be uploaded soon.

The latest resources on how to get the most out of your My Health Record

By now, you will have either had a My Health Record created for yourself, or opted out of having one created.

If you are using My Health Record, we recommenced you log in to take a look at your information and update your privacy settings. These brochures provide further information on how to use your My Health Record now that it has been set up.

Do you have a My Health Record?

Since the opt out period ended, My Health Records have been created for the 90% of Australians that did not choose to opt out. These FAQs below were created to inform people’s decision whether or not to opt out. You always retain the right to delete your My Health Record, and you always retain the right to apply for one.

It’s important to note that it is not a complete record. It is not truly digital, either. It is essentially an online folder for your health documents. However, it does make that important link between our federally funded health services (GPs, Medicare, and medications data) and our state funded services (our hospitals).

Over 2019, the Australian Digital Health Agency plans to roll out consumer information about how to use My Health Record. The first of this information includes the brochures above, and more will follow.

How can I find out more?

Check out these Frequently Asked Questions

What is My Health Record?

My Health Record is an online storage and management system for each individual’s health information, such as prescriptions, vaccinations, allergies, and results of pathology tests. My Health Record only contains a summary of your health information, not a detailed record like your GP would keep. My Health Record is administered by the Australian Digital Health Agency (ADHA).

My Health Record does not replace records currently held by your health providers, such as your GP or hospital; it is an additional collection of health summaries. You control what appears in your My Health Record, and who can see the information contained in it.

Summary information flows into an individual’s My Health Record from Medicare, GPs, public and private hospitals, specialists, pathology, diagnostic imaging, allied health, and aged care. If you have a My Health Record created, the last 2 years of information from your Medicare record will be added to your My Health Record. No past information from other sources will be added. For example, any hospital visits you have had prior to your My Health Record being created will not appear.

Many people already have a My Health Record already as it’s been available for several years. It was previously known as a Personally Controlled Electronic Health Record (PCEHR) or eHealth record. However, now all Australians will have a My Health Record made for them automatically unless they opt out by 31 January 2019.

You can read more here

Do I already have a My Health Record?

All Australians now have a My Health Record, unless they chose to opt out before 31 January 2019 or have since deleted their My Health Record.

You can find out how to access your My Health Record here.

How can I be sure information about My Health Record I'm reading is reliable?

When assessing any information about health, some of the key questions to ask yourself are:

WHO WROTE THIS?

Reliable sources of information include government publications, peak bodies, and government-endorsed sites. If it is not clear who is running or funding the site you are looking at, visit the About Us or Contact Us pages to find out. If you still don’t find an answer there, consider looking for another site altogether. A reliable source of information will be transparent about their who they are and their sources of funding.

WHAT IS THE EVIDENCE FOR WHAT THEY ARE SAYING?

Information is likely to be trustworthy if is based on reputable research or official documents you can refer to. Testimonials or opinion are not reliable sources of health information.

IS IT AN OBJECTIVE VIEW?

Does the information seem balanced? If the site is published by a private company or special interest group, consider also seeking out another point of view to see if there are other ways to think about the issue.

IS IT UP TO DATE?

Some of the information about My Health Record has changed rapidly. Make sure the information you read to inform your decision has been published recently.

Read this Health Direct information sheet about health information or this one from the Children's Hospital, Westmead

Is there a list of terms and definitions to help me work out what it's all about?

See this glossary of terms from the Australian Digital Health Agency website

What about privacy?

If you have concerns about the security of your information, increasing the security restrictions on your account may be enough to satisfy you. The security settings allow restrictions on which individuals (such as family members) can see your information, and what information your healthcare providers can access, and more. For example, you may not want your pharmacist to view information about a mental health condition. You also have the option to lock individual documents held on the system, so information you feel is sensitive can be restricted. Setting a passcode on these documents means you can control who sees them, and when. See here for more information about how to set privacy and security controls.

See here for the My Health Record Privacy Policy

Can I set controls on my own My Health Record?

Yes you can. You can set a PIN on your whole My Health Record so that your health provider has to have you in the room before they can access it. You can also lock down individual documents.

My Health Record's security settings allow restrictions on which individuals (such as family members) can see your information, and what information your healthcare providers can access, and more. For example, you may not want your pharmacist to view information about a mental health condition. You also have the option to lock individual documents held on the system, so information you feel is sensitive can be restricted. Setting a passcode on these documents means you can control who sees them, and when.

See here for more information or check this Privacy Fact Sheet from the Office of the Australian Information Commissioner.

Can I see who has viewed my record?

Yes you can, although it is usually at the health service level, it won't give you the name of the individual health professional who has viewed your record. Have a look here to find out more.

What about young people?

As a protection for the privacy of young people, parents are currently not able to access the Medicare information of a child over the age of 14. However, a parent is able to access their child’s My Health Record until the child turns 18 unless the child chooses to take control of their own record. Young people can take control of their own record from the age of 14.

Follow the links below for some further information that young people and their carers may wish to read.

The Conversation - Freezing Out the Folks

You Can Take Control of Your My Health Record from 14 Years of Age

What about family and domestic violence?

People vulnerable to domestic and family violence, who wish to keep their location details secure, may need to consider whether having a My Health Record presents a risk to them. You may choose to use My Health Record anonymously, or using a fake name (known as a pseudonym)

See this brochure here from the Australian Digital Health Agency on their webpage

See also this resource form the Women's Legal Service Queensland - Women and My Health Record

What if I'm worried about stigma? I have a sensitive health issue

If you have a health issue or life circumstance that you consider sensitive, you may wish to investigate the potential implications of sharing your health information via My Health Record. The risk of stigma and discrimination by health care workers may be a worry for some people, such as those carrying a blood borne virus, or those who have been affected by the justice system. The potential of a data breach that exposes personal information is also a serious concern for some people.

Sensitive issues or circumstances may include:

  • sexual health
  • mental health
  • degenerative disease
  • health care worker
  • drug use
  • criminal record
  • blood borne virus
  • sex worker
  • lesbian, gay, bisexual, transgender, or intersex
  • pregnancy, or termination of pregnancy

If you are in any doubt, you may want to consider opting out, or setting higher privacy controls such as a PIN for the whole Record

Can I use a fake name to protect myself?

Yes you can. The technical term for a fake name is a pseudonym. You can use a pseudonym for privacy reasons, for example you can use a different name for you or your children when you get healthcare.

To do this, you need to apply for a pseudonym Individual Healthcare Identifier (IHI) through the Department of Human Services (DHS). You can then use this name to register for a My Health Record.

Your pseudonym IHI isn’t linked to your Medicare information, so this information will not be available in your record.

You will not be identifiable or traceable through your pseudonym.

You can choose to have a My Health Record using your real name as well as a fake name (known as a pseudonym), and you have the option to merge these two records at any time.

To apply for a pseudonym IHI, you can call DHS on 1300 361 457.

What if I don't speak English, or am not confident with language?

Languages other than English can be accessed here

The My Health Record website contains a number of plain text and easy to read fact sheets for people who have difficulty reading and understanding written information. Some of these fact sheets are specifically designed for Aboriginal and Torres Strait Islanders. Interpreting assistance in languages other than English is available by calling 131 450.

Many sections of the My Health Record website contain videos which explain the information on the page.

See the Accessible Information page on the Australian Digital Health Agency page

What if I don't have internet access or am not internet savvy?

Each individual is responsible for setting the level of security on their Record, and ensuring that information on your Record is accurate and up to date. This information includes your contact details, and ensuring that you agree with the contents of information uploaded by others. Anyone who is not able to do this may wish to consider whether this is a risk to them. However, if you don’t have internet access, you can call the My Health Record helpline on 1800 723 471 to access your information. Helpline staff can tell you which documents are in your My Health Record but not what each document contains.

Who will benefit most from My Health Record?

My Health Record will give your healthcare provider a clear and complete record of your tests, medicines, and treatments, without you having to record this yourself, or communicate it to your provider. This could be particularly helpful to people who:

  • Are elderly
  • Have communication difficulties
  • Have English as a second language
  • Have cognitive or memory difficulties
  • Have severe allergies or other conditions
  • Take multiple medications
  • Have complex health conditions
  • See multiple healthcare providers
  • Live in a rural or remote area

A central record of your medical history means that you do not need to be responsible for remembering all of your health information, and your history is available to health professionals in a medical emergency.

Should I opt out or opt in??

Take the time to read about the factors that matter to you so that your decision is well informed.

  • Are you clear about the risks and benefits of each option? If not, do you know where to find more information?
  • Are you clear about the aspects of the decision that affect you personally?
  • Do you need advice and support to make this decision? If not, what reliable sources of advice and support are available to you?
  • Do you need help to opt out if you choose to? If so, who can you go to for help?

If you have weighed up the options and are still unsure, the Ottawa Personal Decision Guide may be a useful tool to guide you through the process.

The Case to Opt In

The Case to Opt Out

If I opt out, is my decision final?

If you opt out of My Health Record before the 31 January 2019, you can then decide to opt in at a later date. If you do not opt out, but later decide that you no longer wish to have a My Health Record, you can choose to have your record deleted. Cancelling your record will permanently delete your My Health Record.

How do I opt out?

If you decide you would like to opt out, you can do that on the My Health Record website or by calling the Helpline on 1800 723 471 or you can click this link

You can check the Help Line wait times here

To opt out of My Health Record, you need to verify your identity.

You will need:

  • your Medicare Card, or Department of Veteran’s Affairs (DVA) card, and
  • one of the following forms of Australian identification:
    • your driver licence; or
    • your passport; or
    • your ImmiCard

Please email us if you have any concerns regarding the My Health Record and we will ensure you are given access to the information you need.

My Health Record Opt Out Period

You have from 16th July until 16th October to opt out…


Did you know that by the end of 2018, an online summary of your health information “My Health Record” will be created for every Australian?

If you don’t want to have a My Health Record, you need to take action by 15th October and opt out.

There are a range of ways to support you to opt out, and these will come on line by 16th July. You can sign up on this web page for updates as they are released.

Why have a My Health Record?

In simple terms, a My Health Record connects the dots between, for example, your GP and your hospital care. Over the last several years, WA Health services have been working on linking your hospital discharge summary to a My Health Record. So when your discharge summary is created, it looks for a match with a My Health Record and if there one, it will connect the two. Your GP will then be able to see the discharge summary, and so will you. Getting a My Health Record will mean important information like this will be at your fingertips 24/7. This will result in faster and safer care for you and your family.

Do you have any allergies???

Patients often wonder why they have to keep repeating tests and explaining allergies over and over again. but currently, we have on way of easily sharing that information across our systems. A My Health Record will help with this.

Across Australia

Having a My Health Record will mean your important patient information follows you no matter where you travel in Australia.

Advanced Care Plan

You can also upload your Advanced Care Plan if you have one, on your My Health Record.

Whose records?

In our Advocacy service we often encounter people needing assistance in accessing their medical records. This will, over time, be a thing of the past, where people can maintain control over their own health information via the My Health Record. This is vital when seeking follow-up treatment, understanding our own health care and knowing what has happened to us.

What about privacy?

This is a huge consideration, and many will know that the My Health Record, which used to be called the Personally Controlled Electronic Health Record, has been in the planning stages for many years, in part because of the important considerations of protecting privacy. If you are really concerned, you can opt out.

Extra privacy protections

One of the new features of the My Health Record will be the ability to set it up so that you get a text if someone accesses your health record. This is not something our current paper based medical records provide. You will also be able to control certain aspects of it yourself.

To find out more please ensure you, your family and friends go to the government website for information and updates.

Health Professional Nominations

Ann Townley | Clinical Nurse at the Acquired Brain Injury Clinic at Perth Children’s Hospital

Ann is a Clinical Nurse at Perth Children’s Hospital, and formerly at Princess Margaret Hospital, who is caring, friendly, kind, and always puts others before herself. One consumer who shared their experience when nominating said Ann “is always willing to listen or explain things in layman’s terms so that we have a better understanding. Whenever we are unsure about things she finds the answers or helps to find the support we need. I feel like Ann has been our life line at times… Ann is like our lighthouse, a beacon of hope when the waves are tough. She is our super star.”

Joanna McIntosh | Team Leader of the Complex Care Coordination service at Armadale Health Service

Jo’s background is in physiotherapy and she has worked in several hospitals across Perth and England including Armadale Health Service, Fremantle Hospital, Rockingham General Hospital, Kettering General Hospital and Innsbrook Hospital. She is an advocate of patient-centred care who continually strives to improve care by strengthening the relationships, partnerships and collaborative care with other community-based services.

“I worked in the Armadale Health Service Emergency Department for 7 years and felt that I made a real difference to patients on their worst day. I could help improve their pain physically, support them emotionally and help them as they were either discharged home or admitted to hospital. Over the years, I realised I could make an even bigger difference to patients and followed my passion of improved communication, interaction and shared care planning with primary health services and GPs. Incorporating my values of kindness, compassion and fairness to everyone, in combination with my determination in the pursuit of excellent patient care, especially to those most vulnerable, has led me to a role I am incredibly passionate about.”

Charl Van Wyk | Co-morbidity Co-ordinator at Cyrenian House

Charl is the Co-morbidity Co-ordinator at Cyrenian House drug and alcohol agency. Since 2011 he has provided clinical support and been a vital referral and support liaison for participants at the jointly run Families 4 Families WA (F4FWA) group.

F4FWA is an education and support group for families and supporters of individuals who experience mental and emotional distress with co-occurring alcohol and drug use and who also may have criminal justice involvement.

Charl works outside of regular hours to offer this support and in the past 12 months has also begun to provide inreach alcohol and other drug support and counselling to Graylands Hospital.

Dr Adam Nuttall | AHG Super Clinic Midland

Dr Adam Nuttall is a knowledgeable, highly skilled and compassionate GP. One consumer who shared their experience when nominating said “In 2014, Dr Nuttall saved the life of my daughter, by diagnosing her with a massive Rosette-forming glioneuroma tumour of the fourth ventricle, when no other health professional had the ability nor the knowledge to do so. We believe that Rebecca would not be alive today, if it weren’t for Dr Nuttall’s diagnosis, advice and follow up.”

Dr Andrew Leech | Queensgate Medical Centre

Dr Andrew Leech is passionate about family health and the integral role of a GP. He believes that GPs have a unique opportunity to see patients regularly, see their concerns from another perspective, and work through the impact those problems can have on each individual member of that family.

One consumer who shared their experience when nominating said Dr Leech was an amazing GP who has “time after time gone above and beyond the call of duty for our kids and family, showing such dedication to his job and patients”.

Carli Beange | Clinical Midwife – Armadale Kalamunda Group

Carli has been recognised by patients and their families on numerous occasions for her dedicated and professional ongoing care and commitment to her clients. She has been described as caring and supportive, specifically when things didn’t go as planned and patients became distressed and anxious.

Carli’s patients often describe her as amazing and awesome, saying she goes above and beyond in her role. They say they have great respect, appreciation and admiration for her and the significant role she has played in their lives. She has been able to help women feel comfortable and confident becoming first time mothers, being the perfect balance of assertive and helping to realise realistic expectations.

Dr Nathan Highton | Royal Perth Hospital – Emergency Department

Royal Perth Hospital Emergency Department’s Dr Nathan Highton is recognised for continuing to go above and beyond his call of duty, and making his patients and their family members or carers feel comfortable and well cared for during what can be a stressful and sometimes unsettling time.

One consumer who shared their experience when nominating said Dr Highton was a credit to the hospital. “The care, professionalism and communication skills he has are second to none.”

Elizabeth Reeves | Osborne Park Hospital

Elizabeth returned from maternity leave in January 2019 and took on board all changes and policies made during her year off into her stride. She sits on several hospital committees (Falls Committee and Social Club committee) which regularly hold community functions for education on footwear and podiatry care.

Recently she had to handle more than double the workload for a month while providing cover for colleague who was away on annual leave. “Despite being double booked and over capacity, Elizabeth demonstrated willingness to book in urgent patients for urgent needs, providing phone advice as well.”

Dr Nick Gottardo | Head of Department of Paediatric Oncology and Haematology at Perth Children’s Hospital

Dr Gottardo is driven by his belief that it’s unacceptable for children to die from brain tumours. His research interests include developing laboratory models of brain tumours, testing new therapies using these models and identifying areas of weaknesses in the tumours that might be suitable drug targets.

One consumer who shared their experience when nominating said “Dr Gottardo has been a paediatric oncologist throughout my son’s 13 year cancer journey, he is loved by all the staff children and carers. He goes one step further continuously, he is always looking into research and ways to extend the lives of those going through treatment”.

Dr Judith Thompson | Bodylogic Physiotherapy

Judith is a Specialist Continence and Women’s Health Physiotherapist (as awarded by the Australian College of Physiotherapists in 2008) and is a lecturer on the post graduate Continence and Women’s Health physiotherapy course at Curtin University. Judith specialises in the treatment of bladder and bowel incontinence in men and women, bladder, uterine and bowel prolapse problems, as well as pre and post-natal disorders, and pelvic pain management.

One consumer who shared their experience when nominating said “Judith goes above and beyond her job role to deliver exemplary care. She sacrifices personal time to fit me and others in need into her day. She is truly dedicated to her vocation.  She has seen me through a very challenging time in my life and been a pillar of strength and shining light in a time where other health professionals were not accessible”.

Dr Mark Daykin | Glen Forrest Medical Centre

Born and trained in England’s Midlands, Dr Daykin worked as a GP in Bristol and the Cotswolds before moving with his wife to the Western Australian Wheatbelt in 2009. Originally planning to work abroad for just two years, they fell in love with the Perth Hills and decided to move here for good.

One consumer who shared their experience when nominating said “Dr Daykin provides ongoing, consistent, high level and outstanding care with a friendly disposition. Dr Daykin has a thorough knowledge with wide and varied experiences that he happily shares with his patients, he far exceeds expectations of what any patient could expect from a general practitioner”.

Paul Philpott | Bentley Community Child & Adolescent Mental Health Service

Paul is a registered Senior Mental Health Nurse, originally from Victoria, with over 35 years’ experience in Child and Adolescent Mental Health. He has been instrumental in working with schools and students in the provision of mental health in-service, consultation-liaison. This has been in the form of formulating and implementing parenting and student training and therapeutic group work for youth at risk of self-injury and suicide. Paul is regularly involved in consumer focus groups to evaluate the parent and young person self-harm therapeutic group and psycho-education workshops utilising formal feedback questionnaires and clinical outcome measures.

“Paul’s enthusiasm, dedication and positive energy and family focused care is a testament to his drive to achieve better outcomes for this high-risk client group.”

Kelly Holmes | Cardiac Liaison Nurse at Perth Children’s Hospital

Kelly is the Cardiac Liaison Nurse for Perth Children’s Hospital. She always makes the effort to go above and beyond for patients, and is described as empathetic, caring, understanding and amazing at her job.

Kelly said “One of my most precious gifts in this role is to provide updates throughout the surgery itself, I become the family’s eyes and ears when they cannot be with their child during the most stressful time. I see this role as extremely important and provide honest updates throughout the surgery and do not hide any information from our families. It will be myself that will inform families that all is going well but equally if all is not going well. This is enabled by the trust that is built with the family in the lead up to the surgery and preparations”.

Di Barr | Executive Director at Armadale Kalamunda Group

Di Barr is the Executive Director of Armadale Kalamunda Group (AKG) where she is responsible for the delivery of a range of general hospital, mental health and community services.

Di has held a number of strategic and operational roles in WA Health, both in the public and private sector. Di is committed to supporting leadership growth and capacity within WA Health and is a Fellow with the Australasian College of Health Service Management. She has been commended for her impressive and empowering leadership, and her professional yet compelling and inspiring approach.

Erica Bosveid | Royal Perth Hospital Haematology & Oncology

Erica Bosveid is commended as being attentive and devoted in her role at Royal Perth Hospital.

One consumer who shared their experience when nominating said “Erica’s commitment to her clients is second to none. My personal opinion of Erica is that she runs herself ragged for people such as I and others. She is also very committed to our Traditional and Urban Aboriginal people”.

Linda Kuuse | Senior Coordinator of the Stirling Community Care Day Clubs

Linda Kuuse is the Senior Coordinator of the Stirling Community Care Day Clubs in the City of Stirling. She is praised as an outstanding mentor and leader who works together with her staff, clients and carers to deliver optimal health outcomes for the clients she sees on a daily basis, and the wider community.

“She has worked tirelessly to implement a culture change within the environment which has provided some assurance of sustainability of the programs which were previously under threat. During unsettling times, she has been a pivotal support for staff and members, using effective performance management skills to not only retain existing staff members, but to further develop staff skills to provide an enhanced model of care.”

Trish Boomer | Bentley Health Service

Trish has been described as going above the call to ensure a date that is suitable for the consumer is found for both their preadmission appointment and Endoscopy procedure. Spending lengthy periods on the phone initially to patients and then taking or making multiple calls back from them to reschedule, Trish is constantly rewriting the booking diary knowing it provides the best service for our community. Trish believes finding a date that works for the patient ensures they have their vital procedure without delay whilst working in with peoples busy schedules. Trish interfaces with consumers in whatever medium they find easiest.

Michele Young | Geraldton Hospital – WA Country Health Service

Michele is passionate about patients and health service users receiving great care. “She makes you feel like you matter and what you say is important and I feel listened to. I am not the only one, our community is very lucky to have someone like Michele.”

“Michele is a great at communicating and through her work with Patient Opinion and other forums is keeping our community up to date on service improvements and what services are available to us which we would not have known about. Michele makes the community feel like they are being listened to, they are important and what they think matters.”

Louise Splatt | Senior Occupational Therapist at Bentley Health Service

Louise has been praised for her commitment, enthusiasm, compassion, quick thinking, and innovative approach to the care of younger adults in the area of mental health is exemplary. She has been heavily involved in developing the service and evolving models of care, specifically the therapeutic multidisciplinary group program and occupational therapy services within the East Metropolitan Youth Unit (EMyU).

“Louise continually looks at ways to engage youth and families in an enabling framework and encourages and inspires her colleagues to do the same daily, including adjusting her working schedule to work weekends in order to assist with engagement with families. She is valued highly by other team members for her clinical expertise, skills, knowledge, creativity and ability to facilitate positive outcomes for individuals within EMyU.”

Nicole Pates | Director – Paediatric physiotherapist

In 2017 Nicole Pates developed a partnership with the WA Arthritis and Osteoporosis Foundation (WAOA) to run hydrotherapy groups for children and teens with rheumatological conditions. These groups are continuing to run successfully to the present day, and she have trained two other physiotherapists to ensure that this group continues.

One consumer who shared their experience when nominating said “Nicole has developed a wonderful multidisciplinary service for children with pain, arthritis, and mobility issues. As a parent this is amazing to have so many diverse health professionals in one place for kids”.

Teresa Togno | Mental Health Recovery Worker at Chorus

Chorus is an organisation that offers support, mentoring, and a future for people with mental health illnesses. Teresa has been praised for going out of her way to make sure clients feel listened to, feel supported and feel safe.

“She makes sure contact details of organisations are given to clients in case they need support after hours, she attends as an advocate where needed. She turns up early for work if a client has been unwell and may need extra support or some inspirational words to get through till psychs/specialists open at 9am. Many clients see her as their first call of direction/support and she always has good things to say, very pleasant happy personality.”

Michelle Baines | Clinical Nurse Specialist at the Kalamunda Palliative Care Unit

Michelle has been praised for consistently showing high standards of quality and compassionate care to patients and their families. She has previously done some amazing work in the Armadale Rehabilitation and Aged Care Ward in facilitating a number of initiatives to prevent patient falls and providing education to staff.

“Michelle has recently undertaken the Clinical Nurse Specialist role up at the Kalamunda Palliative Care Unit where her professional, compassionate and caring efforts have been recognised by both consumers and staff of the community hospital. Michelle has taken her new role in her stride and identified a number of initiatives to improve the overall patient and family experience across the Palliative Care Unit. This includes communication workshops for all staff to attend covering subjects like understanding triggers and escalation, and strategies to improve communication by really putting yourself in others shoes”.

Alison Maclean | Senior Social Worker at Sir Charles Gairdner Hospital

Since joining the SCGH Social Work Department in 2014, Alison has focused on maximising healthcare outcomes for patients and their carers through careful, respectful and comprehensive assessments of their support needs, lifestyles and individual goals. The quality of her intervention on behalf of patients and carers has been recognised by Carer’s WA in her receipt of the ‘Outstanding Support of Carers’ award in 2016 and 2017.

“In her daily work, Alison rapidly develops constructive relationships with patients and carers through skilled listening and assessment and her clear, dependable and persistent advocacy and feedback to them. Alison is committed to improving the patient experience, which has been acknowledged by Sir Charles Gairdner Hospital in awarding her ‘Dedicated Staff Member’ in 2018.”

Health Organisation Award Nominations

Nidjalla Waangan Mia – GP Down South

Nidjalla Waangan Mia was established in 2010 to help meet the needs of the Aboriginal and Torres Strait Islander people in the Peel region by providing Culturally Appropriate Health and Wellbeing Services for clients who live in Mandurah, Murray, Waroona and Pinjarra. It is an AGPAL accredited practice.

Services include a nurse-led GP clinic, and Integrated Team Care including an outreach worker and Transport Officer. The centre also offers Wellness Programs including such as cooking and healthy lifestyle, runs podiatry clinics, and has a visiting paediatrician. All activities and programs are directed towards achieving maximum improvement in health outcomes for clients. “We try to deliver them in a fun, non-clinical and non-threatening way to reduce barriers and maximise attendance.”

Peel Youth Medical Service

Peel Youth Medical Service (PYMS) is a holistic, youth friendly medical centre for young people between the ages of 12 and 25.

PYMS offers a confidential, comprehensive, multi-disciplinary service with GPs, registered nurses and counsellors on site. PYMS aims to promote wellness by improving the mental, social and physical health of young people in the Peel region.

Pulmonary Hypertension Network Australia

Pulmonary Hypertension Network Australia is a national charity that partners with the community to reduce diagnosis times, support and educate those living with pulmonary hypertension in Australia.

The organisation was started when founder Melissa Dumitru was diagnosed with idiopathic pulmonary arterial hypertension in 2008 and given just four years to live. Melissa quickly realised the enormous gap in the availability of support, information and resources for people newly diagnosed with pulmonary hypertension in Australia. The Network endeavours to develop effective and holistic, person-centred approaches to care and treatment. It supports and assists people through their journey to develop the knowledge and skills needed to manage and live well with a serious, chronic disease.

Kalamunda Hospital Palliative Care nursing team

Kalamunda Hospital has seen focused growth in its specialist inpatient palliative care service during its 40 years of operation. In the last few years alone, the palliative care ward has gone from a four bed unit to a 20 bed unit.

Clinical Nurse Specialist Cheryl Potter said the service provides comprehensive specialist medical, nursing and allied health care based on the unique needs of patients, carers and families when facing a life limiting illness. One consumer who shared their experience when nominating said the nursing team always put the patient first. “They go above and beyond and treat every patient with respect and dignity at the worst time of their life. They showed such compassion and care.”

Aboriginal Health Champions Program

The Aboriginal Health Champions (AHCs) program was established in 2018 to assist in improving health outcomes for Aboriginal patients accessing all South Metropolitan Health Services (SMHS). The Working Group involved in the establishment of the Aboriginal Health Champion program consisted of Aboriginal consumers, carers and community members, who contributed to the program concept along with SMHS staff.

This program was designed to build on the existing knowledge base and practice of the Aboriginal Health Champions and assist them to further develop their leadership within the organisation and their understandings of the cultural and health care needs for Aboriginal patients.

SJOG Endoscopy Unit

The Endoscopy Unit at St John of God Murdoch Hospital performs, on average, 240 procedures per week. One consumer who shared their experience when nominating said the team helped alleviate her stress and address her concerns before a procedure. “I received such thoughtful and compassionate care – I had full confidence in this friendly and professional team.”

RPH Emergency department

Each year the Royal Perth Hospital Emergency department sees more than 84,000 patients. The consumer who nominated them for this award said the team acted with expertise, kindness and humour during their emergency visit, despite the busy nature of the department.

Te Urupu IMPI (Te Urupu Indigenous Community Development Inc)

Te Urupu Indigenous, Maori and Pacific Island Community was created to engage indigenous communities in healthy living, sport opportunities, upskilling and education. They promote positive pathways to Youth Mental Health, by empowering youth with the tools to care for their own wellbeing, under the guidance of youth workers and peer support programs.

One consumer who shared their experience when nominating said the organisation really helped with mental health support for their family. “I was not coping at all until Tina came along to listen to our very sad, sad hearts. We were lost beyond any words. Tina stood beside us and got us professional help. I want to show my appreciation of this organisation, by giving them what they deserve. A huge pat on the back”.

NMHS Adult Mental Health Program

The Adult Program within North Metropolitan Health Service (NMHS) Mental Health has cultivated a long-term commitment to empowering consumers and carers to participate in health service delivery decisions. Having established its first Consumer Advisory Group in 1994, the Adult Program now has three active CAG groups and a ‘lived experience’ workforce that comprises of eight peer support workers, 18 consumer and carer consultants and 22 representatives.

The Service values consumer and carer engagement as a high and continuous priority. Consumer and carer contributions have included, but are not limited to, consumer care planning processes and the provision of integrated co-located services and partnerships that make a real difference in meeting the needs of consumers and carers.

RPH Haematology & Oncology

Royal Perth Hospital provides a comprehensive range of tertiary level clinical and laboratory services including haematology and oncology. One consumer who shared their experience when nominating said that, over a period of attending the department regularly, they had observed the staff to be “very committed to their work”.

BHS – Silent Disco Program

Patients at Bentley Hospital have recently been rocking out to a silent disco. The patients listened to music through wireless headphones which enabled them to enjoy the music without disrupting others on the ward. The groups are run by Occupational Therapists in the inpatient program and began in November last year with the purpose of providing music to all patients within the adult mental health inpatient wards.

Michelle Dillon has led the collection of extensive evidence for enriched environments and using music and music groups to enhance social, physical and cognitive function and increase outcomes for inpatients. Using this information, she has implemented innovative programs that support the delivery of enriched environments at Bentley Hospital.

Donate to Health Consumers’ Council

When something has gone wrong when receiving healthcare in WA, and people are having trouble getting answers, Health Consumers’ Council can help by walking alongside them as they seek information and redress.

By informing and educating the community about health rights, we can help people advocate for themselves in the moment and reduce the chances of things going wrong.

And by ensuring the voices of consumers are heard at every level of decision making that impacts on the patient, we’re helping to make sure decisions that affect patient safety are made with consumer perspectives front and centre.

Your generous support can make a significant impact on the lives of individuals, families, and communities across WA. By donating today, you are joining and supporting a community of people committed to empowering consumers, improving health services, and working towards equitable, person-centred, quality healthcare for all West Australians.

How your donation helps

Your donation helps us help WA consumers at every level.

With your support, we can:

  • Walk alongside more people who need help when things have gone wrong, ensuring they are aware of their health care rights and helping them get answers and redress so they can decide what action they want to take
  • Fund consumer participation in consultations, and ensure the voices that need to be heard are included in the conversation
  • Contribute to travel costs so that regional consumers are represented
  • Upskill consumers to become effective, engaged consumer representatives
  • Compensate consumers for their time when they help us develop training or workshops that will benefit the health system
  • Compensate consumers who share their stories with us, so that we can get more lived experience voices and perspectives in front of clinicians and policy makers

By clicking the “Donate” button below, you can securely make your donation and be part of our mission to ensure the consumer is at the heart of our state’s health care system.

Together, we can drive positive change in health care.

Thank you

Every donation makes a meaningful impact on our efforts to improve health care in WA, and we want to thank you.

Donations over $100 will receive a thank you email from our Executive Director. Donations above $200 will, with your permission, receive a public thank you on our social media.

Donations of $2 or more are tax deductible.

Health Engagement Network

Community of Practice – Connect and share to improve the practice of engaging consumers and carers in health in Western Australia

The Health Engagement Network is an emerging community of practice for staff and consumer and carer representatives who are involved in consumer and carer engagement across the health system in WA. The aim of the Network is to promote best practice and build capability in consumer/carer engagement and participation across the health sector in WA. The Network is free to join and is open to everyone – including staff and consumer and carer representatives – with an interest in the practice of consumer and carer engagement in the health system in WA. We have over 200 members so far and it’s growing all the time! See the Network’s statement of aims.

Get involved

People involved in the Network plan to organise face to face and online events, as well as staying in touch through an online platform.

Attend the free events – or organise your own!

If you have an idea for a future event, contact Clare Mullen (clare.mullen@hconc.org.au).

Join the Network online – read, connect, discuss

Members of the Health Engagement Network connect via an online platform. The Health Engagement Network online platform is free to join and supported by the Health Consumers’ Council and the WA Primary Health Alliance. You can request to join the Network here.

The Network online platform includes discussion forums, links to existing frameworks on consumer and carer engagement in the health sector in WA, and links to articles, short videos and other resources of interest.

The online space is moderated by a group of staff and consumer/carer representatives who volunteer their time.

Background to the Health Engagement Network

A Community of Practice (CoP) is: “A group of people who share a concern or a passion for something they do and a desire to learn how to do it better as they interact regularly.”

This community of practice was initiated after discussions between the Health Consumers’ Council, the WA Primary Health Alliance (WAPHA) and Aha! Consulting based on their observations and feedback from their work with health service staff and consumer/carer representatives across the health system in WA.

With funding from WAPHA, the Health Consumers’ Council started a project (working with Aha! Consulting) to explore the level of interest for this community of practice amongst staff and consumer/carer representatives.

A survey of staff and consumer representatives across the WA health system in March 2018 received over 130 responses. There was overwhelming support from respondents for the idea of a community of practice for consumer engagement. A number of workshops were held in April where staff and consumer/carer reps discussed what they’d like from a community and how it might work. The survey results and notes from the workshop are below:

Based on these discussions, the community of practice will provide spaces, real and virtual, where staff and consumer/carer representatives can share information, resources and their experiences around consumer, carer and community engagement.

Phase 1 of the project (January – June 2018) was to scope the needs and functionality of such a group and work with user groups to design and be part of contributing content for the platform.

People with examples of quality consumer engagement in the health system that they would like to share, either in WA or elsewhere, are encouraged to join the Health Engagement Network and share them there (epic failures/learning opportunities are also welcome). This includes primary, community and hospital services.

Life with a chronic health condition – what is the consumer experience?

For six months of 2017, HCC has worked with the WA Primary Health Alliance and Curtin University on a project to explore consumers’ experience of chronic disease and what kind of care they are seeking from the GP and community based services.

People living with chronic health conditions and a range of community-based health service providers came together at a forum on Friday 1st December 2017 to hear the outcomes of a focus group study conducted by Curtin University and Health Consumers’ Council in 2017.

The aim of the study was to better understand the current system of GP management of long term conditions, from the perspective of consumers. This information will be used as part of an overhaul of the primary care system being conducted by the WA Primary Health Alliance (WAPHA) in conjunction with GPs.

Forty six consumers were involved in the focus groups which met in Wanneroo, Midland, Armadale, Rockingham, Bunbury and Albany. They represented a range of ages, backgrounds and health conditions but agreed on many key points:

  • Consumers want a long term relationship with a GP who is a good listener and will work with them in partnership
  • Bulk billing and reduced up-front costs to care helps consumers to get the care they need
  • Chronic condition care plans are not well promoted and don’t deliver enough care – especially to people who have more than one conditions
  • There is a role for specialist “care coordinators” to support better management of different services
  • People with chronic health conditions should be treated differently within the GP system to people who only require occasional GP contact

You can view the summary of both the provider and consumer consultations here.

Kate Bullow, Project Co-ordinator.

How do you know about your rights in health care when you have come from a country where human rights may not be recognised?

Picture source: New York Times 29 Aug 2009

On Tuesday the 11th April twenty-three people who have come to Australia from Burma/Myanmar learnt about their rights and responsibilities in health care. The session was held at the Herb Graham Centre in Mirrabooka and was supported by two interpreters. Some of the people attending speak Karen and others speak Burmese; have you ever worked with interpreters? Here are a few tips for when you do:
 Speak clearly and avoid using colloquialisms or slang
 Speak in sentences, not paragraphs, the interpreters can only retain so much
 Allow more time, whatever you are doing will require additional time for the interpreting to take place
 Speak to your audience/client, not the interpreter, they are the conduit, not the focus
 If you are imparting information, ask your client/patient to feedback the information you have provided to check they have understood
The HCC provides information sessions to people who may not speak English as part of our mandate to “raise awareness of and advocate for health consumers’ rights in Western Australia”. Sadly, some who arrive here have come from countries where their human rights have been abused. Expecting people to understand they have rights in health care requires them to have both knowledge and confidence and to be proactive when engaging with health professionals. In many instances this is a ‘bridge too far’. Providing people with basic information however is a good starting point and this is what HCC is doing. HCC is also working on an online health rights quiz which will be launched in the future.
I was joined by Diana McTiernan from the Equal Opportunity Commission (EOC) who delivered information on that topic. The two areas complement and support each other and I hope to continue partnering with the EOC. The participants were very engaged in both sessions, some related experiences which concerned them in the areas of employment and healthcare. Evaluations from the session show that people gained knowledge and confidence and that they found the information useful and will share with friends and family. Rather than written evaluations I use ‘faces’ and a small amount of writing that is easy to interpret, people can tick the appropriate ‘face’ e.g.
“After this information session I am more confident about attending medical appointments”

 

I would like to thank Say Paw from the Metropolitan Migrant Resource Centre at Mirrabooka for inviting me to present and look forward to future sessions and opportunities to work together.

Louise Ford – Manager – Culture and Diversity Program