Category: Patients, carers, communities

Expression of Interest: Consumer Representative – ART Advisory and Review Board

Health Consumers’ Council has been asked to nominate two consumer representatives with lived experience of assisted reproductive technology (ART) for appointment to a new Ministerial Advisory and Review Board.

The Assisted Reproductive Technology Advisory and Review Board is being established under the Assisted Reproductive Technology and Surrogacy Act 2025. The Board will provide advice to government on the regulation of ART and consider the complex medical, ethical, legal, and social issues associated with these technologies in Western Australia.

They are seeking people who have:

  • Personal experience of ART (including people who have accessed ART services or were born via ART), and
  • An interest in contributing to health policy, decision-making, and consumer perspectives

Board members will participate in monthly meetings (approximately two hours), with additional time required to review documents and prepare for discussions. As the Board is new, the structure of Board meetings will be formalised once the Board is established. It is anticipated that preparation for meetings will likely involve reviewing applications and correspondence and preparing advice in response, which may be lengthy at times.

See below for the relevant section of the Act that outlines the Board’s functions.

The Board functions are outlined in section 237 of the Act and include:

  • Providing the Minister or the Chief Executive Officer (CEO), on its own initiative or on request, information about the regulation of ART procedures and advice about the medical, social, scientific, legal and ethical issues associated with ART procedures.
  • Providing guidance to licensees, if requested, on matters relating to potential surrogacy arrangements, the provision of ART services or concerns raised by an employee of a licensee.
  • Providing to the CEO recommendations about genetic conditions, diseases or abnormalities that can be added to the approved list (as per section 65 of the Act).
  • Consideration and decision of applications made to the Board under the Act regarding:
    o Posthumous use of reproductive material or embryos, where posthumous collection occurred or consent for use is not clear (section 78 and section 83);
    o Exceptions to the five-family limit (section 27(3));
    o Pre-implantation genetic testing (section 63) where the condition is not on the approved conditions list, and for other testing that is not a prescribed type of testing;
    o Export or import of donor material where requirements cannot be met (section 89).
  • Performing any other function given to the Board under the Act.

For more information about the new legislation, visit the WA Health article:
https://www.health.wa.gov.au/Articles/N_R/New-assisted-reproductive-technology-and-surrogacy-legislation-for-WA

This is an opportunity to contribute lived experience to a high-level Board that will help shape how ART is regulated and practiced in Western Australia.

How to apply

To submit an Expression of Interest to HCCWA, please complete the online form and upload a current CV (maximum two pages).

EOI Consumer Representative – Assisted Reproductive Technology Advisory and Review Board – Collaboration

Key information

  • Applications close: 8am, 15th July 2026
  • Time commitment: Monthly meetings (~2 hours) plus preparation

 

NAIDOC Week 2026: Why listening matters in healthcare

NAIDOC Week is a national celebration, a time to recognise and celebrate the histories, cultures, achievements and ongoing leadership of Aboriginal and Torres Strait Islander peoples.

In 2026, the theme is “50 Years of Deadly“, recognising five decades of celebrating the strength, resilience and achievements of Aboriginal and Torres Strait Islander communities.

The origins of NAIDOC Week reach back much further.

On 26 January 1938, while many Australians marked the 150th anniversary of the arrival of the First Fleet, more than 1,000 Aboriginal people gathered in Sydney for what became known as the Day of Mourning. They called for citizenship rights, equality and laws to improve the lives of Aboriginal people. It is recognised as one of the world’s earliest civil rights gatherings.

Nearly 90 years later, those calls still have something to teach us.

At Health Consumers’ Council WA, we believe better healthcare starts by listening.

Listening helps people feel respected.

Listening builds trust.

Listening helps people participate in decisions about their care.

Listening creates safer, fairer and more person-centred healthcare.

Throughout NAIDOC Week we are sharing resources that highlight what Aboriginal and Torres Strait Islander consumers have told us about healthcare and how those insights can improve care for everyone.

Explore our NAIDOC Week resources

What Aboriginal and Torres Strait Islander consumers say makes GP care culturally safe

Hear directly from Aboriginal and Torres Strait Islander consumers about the relationships, communication and behaviours that help people feel safe, respected and heard.

Aboriginal Patient Advocacy Training

Support better health outcomes for Aboriginal patients by building your confidence in culturally safe care and practical advocacy. This full-day workshop at HCCWA HQ will help healthcare professionals and people working with Aboriginal communities better understand health rights, the impacts of racism in healthcare, advocacy skills, referral pathways, and culturally safe practice.

If you work alongside Aboriginal people, this training will give you practical knowledge you can apply immediately.

Acknowledging Country Workshop

Learn about the purpose, meaning and respectful practice of Acknowledging Country, and why it matters in health and community settings.

More Aboriginal health resources

Browse HCCWA’s growing collection of Aboriginal health resources, events and opportunities to learn.

Listening should not end with NAIDOC Week

NAIDOC Week reminds us that listening is not a once-a-year activity. Every conversation with a consumer, family member or community member provides an opportunity to improve healthcare. At HCCWA, listening to lived experience is central to everything we do.

Together, we can help make healthcare fair for all.

Join our eNews and let’s make healthcare fair for all!

* indicates required

Understanding Australia’s New Open Disclosure Framework: What It Means for WA Health Consumers

Everyone deserves honest, respectful communication when something goes wrong during healthcare.

By Health Consumers’ Council WA

The Australian Commission on Safety and Quality in Health Care released the updated Australian Open Disclosure Framework in June 2026. It replaces the 2014 framework and aims to support more consistent, person centred communication when a patient experiences harm or potential harm during their care.

For Health Consumers’ Council WA (HCCWA), this reflects what health consumers have consistently told us through our advocacy work. People often remember less about the clinical details of an incident than how they were treated afterwards. Being listened to, receiving a genuine apology where appropriate, and understanding what happens next can make a significant difference.

Key takeaways

  • Open disclosure is about honest, respectful communication when a patient experiences harm or potential harm during healthcare.
  • Australia’s updated Open Disclosure Framework places greater emphasis on person centred care, cultural safety and ongoing communication with patients and families.
  • Good open disclosure includes listening to the patient’s experience, explaining what happened, offering a genuine apology where appropriate, and discussing what happens next.
  • If something goes wrong during your healthcare, you should expect clear communication, opportunities to ask questions, and ongoing updates as more information becomes available.
  • HCCWA supports safer, more compassionate healthcare by advocating for consumers and working with health services to strengthen open disclosure practices.

What is open disclosure?

Open disclosure is the process of having honest, timely and respectful conversations with patients, families and carers when something goes wrong during healthcare.

It involves:

  • explaining what is known about what happened
  • acknowledging the impact of the event
  • offering an apology where appropriate
  • listening to the person’s experience and concerns
  • discussing what will happen next, including any investigations or ongoing care.

Open disclosure is based on the principle that people have a right to be informed about their healthcare. It supports safer care, helps maintain trust and encourages learning when things do not go as planned.

When should open disclosure happen?

Open disclosure should be considered whenever a patient experiences harm, or potential harm, during healthcare.

Harm is not limited to physical injury. The updated framework recognises that people may also experience psychological, emotional or social harm. Importantly, individuals may experience harm differently from how a health service defines or understands it.

This reinforces the importance of listening first, rather than assuming everyone shares the same perspective.

What has changed in the 2026 framework?

Open disclosure has been part of Australian healthcare for many years, but the updated framework places greater emphasis on:

  • person centred communication
  • cultural safety
  • restorative approaches that support healing and learning
  • recognising different experiences of harm
  • building trust through ongoing communication, rather than treating open disclosure as a single event.

The framework encourages health services to see open disclosure as more than a process to complete. It describes it as an opportunity to build respectful relationships with patients, families and carers, even during difficult circumstances.

Why this matters for consumers in Western Australia

At HCCWA, we regularly hear from people who have experienced harm during healthcare.

Through both our advocacy work and our open disclosure training with health services, we know these conversations can be challenging for everyone involved. Many clinicians may only participate in a small number of serious open disclosure conversations during their careers.

Our experience is that what matters most is not having the perfect words. It is listening carefully, responding honestly and creating space for people to ask questions, express concerns and be heard.

Open disclosure is not a one way conversation. While it involves sharing information, it is equally about understanding the patient’s experience.

People who are distressed may not remember every detail they are told. They are far more likely to remember whether they felt respected, listened to and treated with compassion.

A genuine apology can play an important role in rebuilding trust. It should be sincere, communicated in plain language and accompanied by meaningful follow up.

Trust is rarely rebuilt in a single meeting. It develops over time through ongoing communication, transparency and action.

Cultural safety must be part of the conversation

The updated framework recognises that open disclosure must be culturally safe for Aboriginal and Torres Strait Islander peoples.

It acknowledges that racism, discrimination and power imbalances can influence how people experience healthcare and whether they feel safe speaking openly.

Importantly, cultural safety is determined by the person, family or community receiving care, not by the health service.

This means services need to consider who should be involved in conversations, how information is shared and whether people feel respected, supported and safe throughout the process.

From HCCWA’s experience delivering open disclosure training, cultural safety cannot be added at the end. It needs to be considered from the beginning and embedded throughout every stage of open disclosure.

Putting these principles into practice

The updated framework provides clear principles. The challenge is putting those principles into everyday practice.

Through our work with health services, HCCWA focuses on practical skills that support meaningful open disclosure, including:

  • preparing for conversations
  • identifying who should be involved
  • communicating honestly without speculation
  • creating opportunities for patients and families to share their experience
  • providing clear follow up and updates as new information becomes available.

These practical actions often determine whether people feel genuinely supported or simply informed.

What should consumers expect after a healthcare incident?

If something goes wrong during your healthcare, you can reasonably expect:

  • honest and timely communication
  • an explanation of what is known
  • an opportunity to ask questions
  • respectful treatment throughout the process
  • ongoing updates if more information becomes available
  • information about the next steps in your care.

If you feel your concerns have not been heard, you can ask for further discussions or seek support from an independent organisation such as HCCWA.

The Australian Charter of Healthcare Rights also outlines your rights to access, safety, respect, partnership, information, privacy and the opportunity to provide feedback about your care.

What if open disclosure does not happen?

Not every healthcare incident is managed well.

If you believe open disclosure has not occurred, or you feel you have not received honest communication after an adverse event, you can:

  • ask whether an open disclosure process has been considered
  • request another meeting
  • bring a family member, friend or advocate to support you
  • write down your questions beforehand
  • ask for information in writing where appropriate
  • seek independent advice or advocacy if you need support navigating the process.

What this means for consumer representatives and advocates

The updated framework strengthens the role of consumer representatives and advocates in improving healthcare.

It provides a stronger foundation for asking whether open disclosure is being done well. This includes whether communication is timely, whether people feel listened to and whether health services follow through on their commitments.

For consumer representatives, the framework is another practical tool that can help keep the focus on people’s experiences and support improvements across the health system.

How HCCWA supports open disclosure

HCCWA has worked with health services across Western Australia to deliver open disclosure training that combines practical communication skills with the perspectives of health consumers.

Our training helps clinicians build confidence in having honest conversations after adverse events and supports organisations to strengthen their open disclosure practices.

If your organisation is looking to improve its approach to open disclosure, HCCWA can work with your service to deliver practical, consumer informed training tailored to your setting.

To learn more, contact HCCWA at tania.harris@hconc.org.au.

HCCWA advocates can also help consumers feel supported during an open disclosure process. For more information see our information for consumers: https://www.hconc.org.au/individual-advocacy/open-disclosure-when-things-go-wrong-in-healthcare/

Frequently asked questions

No. Open disclosure is about communicating openly and respectfully after something has gone wrong. Having an open disclosure conversation does not, by itself, determine legal liability.

Can I ask for open disclosure?

Yes. If you believe you have experienced harm during healthcare and open disclosure has not been offered, you can ask the health service whether an open disclosure process is appropriate.

Can I bring someone with me?

Yes. You can ask a family member, friend, carer or advocate to attend an open disclosure meeting with you for support.

Does open disclosure replace making a complaint?

No. Open disclosure and complaints are different processes. You can still make a complaint if you are unhappy with your care or with how an incident has been managed.

Learn more

Read the Australian Open Disclosure Framework on the Australian Commission on Safety and Quality in Health Care website.

You can also learn more about HCCWA’s advocacy services, consumer representation opportunities and training programs through our website.

HCCWA’s Diversity Dialogues Forum 2026

Older people from multicultural communities and their access to, and experience of, healthcare

Older people from culturally and linguistically diverse communities can face significant barriers when accessing healthcare in Western Australia. These barriers extend beyond language differences and include difficulties navigating the health system, digital exclusion, transport, cultural understanding, trust, trauma, and limited awareness of available services.

To better understand these experiences, Health Consumers’ Council WA (HCCWA) convened a Diversity Dialogues forum bringing together community leaders, healthcare professionals, researchers, service providers and consumers. Participants shared lived experience, professional insights and practical examples of the challenges older people encounter when seeking healthcare and aged care.

Across diverse communities, participants consistently identified common issues. These included difficulties accessing information and services, limited cultural responsiveness within healthcare settings, challenges using digital systems such as MyGov and My Aged Care, and the importance of building trust through long-term community relationships.

The discussion also highlighted practical solutions already being implemented across Western Australia. Community-led navigation services, culturally responsive education, Care Finder programs and stronger partnerships between community organisations and health services were identified as important approaches to improving access and health outcomes.

The findings reinforce the importance of involving multicultural communities in the planning, design and delivery of healthcare services. They also demonstrate that improving equitable access requires both system-level change and ongoing collaboration with the communities most affected.

About Diversity Dialogues

Diversity Dialogues is an ongoing initiative of Health Consumers’ Council WA that brings together consumers, community organisations, healthcare providers and policymakers to explore issues affecting culturally and linguistically diverse communities.

The forums provide an opportunity to share lived experience, identify barriers to healthcare, and develop practical recommendations that can improve health services across Western Australia.

Key Findings

Read the in-depth report here.

1. Healthcare systems are often difficult to navigate

Participants described healthcare and aged care systems that can be difficult to understand, particularly for people who migrated to Australia later in life or who have limited English proficiency.

Common barriers included:

  • complex forms and eligibility processes
  • difficulty using MyGov and My Aged Care
  • limited awareness of available services
  • uncertainty about how to access support

Many participants emphasised that services may exist, but understanding how to access them remains a significant challenge.

2. Language and communication remain significant barriers

Participants discussed how language barriers affect every stage of healthcare.

Challenges included:

  • limited English proficiency
  • low literacy in any language
  • complex medical terminology
  • translated information that does not reflect cultural context
  • interpreter availability and quality

Some participants also described concerns about privacy when interpreters come from small local communities.

These communication barriers may contribute to misunderstanding, delayed care and reduced confidence in healthcare services.

3. Trust is essential for good healthcare

Many participants explained that trust strongly influences whether people seek healthcare.

Past experiences of conflict, displacement, trauma or negative interactions with institutions can influence how some older people engage with Australian healthcare services.

Participants noted that trust often develops through long-term relationships with healthcare professionals and trusted community organisations rather than through single appointments.

4. Cultural understanding influences healthcare experiences

Participants shared examples where cultural practices or expectations had been misunderstood within healthcare settings.

Examples included:

  • differing expectations about family involvement in care
  • culturally appropriate food during hospital stays
  • differing understandings of ageing and illness
  • differing expectations about consultation length

Participants suggested that greater cultural understanding could improve communication, person-centred care and consumer experience.

5. Digital exclusion is becoming a healthcare barrier

As healthcare increasingly relies on digital systems, many older consumers experience additional barriers.

Participants highlighted difficulties using:

  • MyGov
  • My Aged Care
  • online appointment systems
  • SMS verification
  • email-based communication

Without practical support, digital systems may unintentionally reduce access for older people with limited digital literacy.

6. Social isolation increases health risks

Participants described social isolation as an important contributor to poorer health outcomes.

Examples included:

  • delayed assistance following falls
  • reduced access to appointments
  • fewer opportunities to receive health information
  • increased loneliness

Community organisations highlighted the importance of regular outreach and trusted relationships to reduce isolation.

Community-led solutions

The forum highlighted several initiatives already improving access for multicultural communities across Western Australia.

These included:

  • Care Finder services
  • community health navigation
  • digital literacy programs
  • culturally responsive community education
  • seniors’ support programs
  • intergenerational community initiatives

Participants emphasised that community-led approaches help build trust and support people to navigate complex healthcare systems.

Recommendations

The discussions identified several opportunities to improve healthcare access for older people from multicultural communities.

These include:

  • Increase cultural responsiveness across health and aged care services.
  • Improve representation of culturally and linguistically diverse consumers in health service planning and decision-making.
  • Expand community-led navigation and Care Finder services.
  • Improve access to face-to-face assistance with digital health systems.
  • Increase awareness of available health and aged care services through trusted community organisations.
  • Strengthen partnerships between health services and multicultural communities.
  • Ensure culturally appropriate food, communication and care are recognised as components of quality healthcare.
  • Continue investing in community-led mental health education and culturally appropriate support.

What this means for Western Australia

The experiences shared during this forum demonstrate that improving healthcare access for older people from multicultural communities requires more than translation services alone.

Participants described the importance of trust, culturally responsive care, accessible information, community leadership and meaningful partnerships.

Many of the barriers identified are interconnected. Addressing them will require collaboration between consumers, community organisations, healthcare providers and government.

By listening to lived experience and working alongside multicultural communities, Western Australia has an opportunity to create a more equitable, accessible and person-centred health system.

It is also worthwhile considering that improvements to help older people from multicultural communities would benefit everyone in WA, for example trust, accessible information and meaningful partnerships make healthcare fair for all.

Acknowledgements

Health Consumers’ Council WA thanks the forum panellists, participants and community organisations who generously shared their knowledge, lived experience and practical insights.

The experiences documented in this report reflect the views shared during the forum and are intended to inform ongoing discussion, collaboration and continuous improvement across Western Australia’s health system.

About Health Consumers’ Council WA

Health Consumers’ Council WA is the independent peak body representing health consumers across Western Australia. HCCWA works alongside consumers, carers, communities, clinicians and policymakers to improve access, equity, safety and person-centred care across the health system.

Join our eNews and let’s make healthcare fair for all!

* indicates required

What Aboriginal and Torres Strait Islander consumers say makes GP care culturally safe

What is culturally safe GP care? New research from Aboriginal and Torres Strait Islander consumers

A new paper, “Towards assessment of culturally safe general practitioners: co-designing with Aboriginal and Torres Strait Islander peoples’ perspectives, the Calgary–Cambridge guide and clinical yarning”, published in the Australian Journal of Primary Health on 25 May 2026, puts Aboriginal and Torres Strait Islander consumer voices at the centre of the conversation about cultural safety in general practice.

The research was carried out in Queensland across four sites, including three Aboriginal Medical Services and one mainstream general practice, spanning regional, rural and very remote communities. A total of 131 Aboriginal and Torres Strait Islander people took part through surveys, interviews and group processes. The work was guided by an Aboriginal Community Reference Group to ensure the findings reflected community perspectives.

This research matters because cultural safety is often discussed in policy or training settings, but less often defined by consumers themselves.

What Aboriginal and Torres Strait Islander consumers said matters most

Participants were clear about what they expect from a GP consultation. The priorities people identified were not theoretical; they were grounded in what really helps people feel respected, understood and confident about their care.

The most important attributes were:

  • knowing how to diagnose and treat disease properly
  • explaining things clearly, using basic words
  • greeting people respectfully
  • not stereotyping Aboriginal people
  • listening carefully

Other highly ranked elements included recognising what matters to the patient, not interrupting, being polite and respectful, creating a welcoming environment, and providing enough time for the appointment.

These findings show that culturally safe care is not something separate from everyday practice but is built through how care is delivered and whether people feel heard and taken seriously.

What does culturally safe care look like in a GP appointment?

Consumers said they want GPs who get clinical care right, use plain language, listen without interrupting, speak respectfully and as an equal, and avoid assumptions.

Participants also described the importance of privacy, comfort, and having enough time in appointments. Cultural safety also sits in the environment, including how welcoming the service feels, whether privacy is maintained, and whether people feel comfortable in the space.

What consumers want to see change

Consumers are asking for consistent, high-quality clinical care, clear communication, genuine listening, respectful interactions, freedom from stereotyping, and adequate time, privacy and follow-up.

There was also a strong message about consent. Participants wanted control over who is involved in their care and how information is shared, including during consultations, procedures and examinations.

Participants also valued continuity of care. Seeing the same GP over time, not having to repeat their story, and having follow-up on results and referrals all contributed to feeling safe and supported.

Important findings about culture and identity

Participants had mixed views about being asked about Country, Mob or cultural identity. For some, this was helpful. For others, it was intrusive or distressing, particularly where identity had been questioned or where people were disconnected from family or community. The paper recommends allowing these conversations to develop over time, rather than making them a standard opening question.

The research also goes further in challenging routine identification processes in general practice. It highlights that asking people to identify as Aboriginal or Torres Strait Islander in a standard administrative way can create fear of stereotyping, mistrust and disengagement. It points to the need for safer systems, where identity can emerge over time through relationships and where access to supports does not depend on a process that can cause harm.

What this means for general practice

The authors recommend strengthening existing GP consultation approaches by embedding relational practices such as respectful greeting, listening and clear communication, and integrating elements of social yarning into standard practice.

The paper also challenges commonly taught approaches. It shows that practices such as asking about Country, using silence, or trying to find common ground should not be assumed to be culturally safe for everyone. These approaches need to be used carefully and in response to the individual.

Where to next

Suggested future work includes testing the proposed consultation model in real settings and developing tools to assess cultural safety from a consumer perspective. This research was conducted in specific Queensland communities, and further work is needed across different regions and communities.

Why this matters in Western Australia

This paper provides clear direction based on what Aboriginal and Torres Strait Islander consumers have said themselves.

The key message is straightforward, people want care that is clinically sound, clearly explained, respectful, and free from judgement or stereotyping.

For services, this means reviewing how care is delivered and making practical changes that reflect these expectations.

Further reading & reference

Training for healthcare professionals

The insights in this article reflect what Aboriginal and Torres Strait Islander consumers have shared with HCCWA over many years. They also inform the content of our Aboriginal Patient Advocacy Training, where we work with community workers, advocates and health professionals to turn these insights into practical skills. Visit our training and events page to register for our next training session, or contact us to find out more.

Further reading

Brumpton K, Evans R, Sen Gupta T, Ward R (2026) Towards assessment of culturally safe general practitioners: co-designing with Aboriginal and Torres Strait Islander peoples’ perspectives, the Calgary–Cambridge guide and clinical yarning. Australian Journal of Primary Health, 32, PY25245. doi:10.1071/PY25245

ABSTRACT
Background. Cultural safety is a key component of quality general practice for Aboriginal and Torres Strait Islander peoples; however, few tools exist to assess this from the patient’s perspective. This study aimed to explore the qualities of a general practitioner (GP) that support culturally safe consultations, as described by Aboriginal and Torres Strait Islander peoples, and to examine how these align with two consultation models: the Calgary–Cambridge Guide and clinical yarning. Methods. A mixed methods approach was used, including a survey, qualitative interviews and a modified nominal group technique (mNGT). Participants were Aboriginal and Torres Strait Islander peoples who had previously engaged with general practice care. Data were both described and analysed thematically. Results. In total, 131 Aboriginal and Torres Strait Islander peoples participated (70 in the survey and interview; 43 in mNGT to validate the findings; and 18 in three separate mNGTs to rate desirable attributes of a GP). Participants identified several qualities underpinning a safe GP consultation. Within the top five attributes in the mNGT were universal skills – clinical competence, avoidance of jargon and attentive listening – alongside welcoming patients with a greeting and avoiding stereotyping. Although there was strong emphasis on respectful, individualised care, preferences varied significantly, highlighting the limitations of a generic approach to consultation skills. Some findings challenged core assumptions regarding clinical yarning and elements of cultural safety training. Conclusion. We propose a refined, integrated consultation model that enhances the Calgary– Cambridge Guide with relational elements of the social yarn, particularly during initiation of the consultation. This integrated model, grounded in Aboriginal and Torres Strait Islander peoples’ perspectives yet familiar to GPs and academics, offers a promising foundation for culturally safe practice and assessment, with potential applicability across other diverse populations.

Keywords: Aboriginal and Torres Strait Islander health, Australia, Calgary–Cambridge guide, clinical yarning, cultural safety, equity, general practice, Indigenous health care.

Why consumer representatives matter more than ever in WA healthcare

What we heard in 2026

In March and April, we ran two workshops and brought together thirteen people at different stages of their consumer representation journeys. What they shared was honest, thoughtful and consistent with what we have heard over many years of running this training.

People come to this work because something happened to them or to someone they love, and they want it to mean something changes for the next person. They want to understand the system well enough to push back on it. They want to contribute in a way that is heard and respected, not just invited in and then overlooked.

“our perspectives and experiences are so valuable and give services and systems the information they can’t get anywhere else”

We have put together a full summary of both workshops, including what participants told us about the value of lived experience, the realities of consumer representative roles, the importance of diversity and who is still missing from these spaces, and what makes participation meaningful rather than tokenistic.

Why this matters beyond the training room

Consumer representatives play a specific and important role in systems change. They bring the perspectives of people who use services into the places where decisions are made. They help ensure that what the health system understands about what is working, what is missing and what needs to change is grounded in real life, not just data and projections.

HCCWA’s role is to make sure the people stepping into those roles feel ready: informed, supported and clear that their experience is a form of expertise. That has been our commitment for 34 years and this training is one of the places where that commitment shows up in practice

A training built for the long haul

This is not a one-off workshop or a box to tick before someone is assigned to a committee or a working group or a seat at an executive table. It is a space where people with lived and learned experience of health services can explore what consumer representative work actually involves, think about whether and how they want to contribute, and build confidence to do that well. The content covers the shape of the WA health system and where consumer voices can fit within it. It is honest about the challenges: the risk of tokenism, the emotional weight of bringing personal experience into formal spaces, the patience required when change is slow. And it is grounded, always, in the belief that people who use health services hold knowledge the system cannot get from anywhere else.

It has been delivered face to face, fully online, and now in both formats because we have learned that different options open the door for different people. In 2026, two people who couldn’t make the Saturday in-person session came back and attended the Tuesday evening online session instead. That is what genuine accessibility looks like: not just saying people are welcome, but making sure there is more than one way in.

Over three decades of consumer voices: the training that keeps people ready

Since 1994, Health Consumers’ Council WA has stood alongside people who use health services across WA. Throughout that time, one thread has run consistently through our work: helping people understand that their experience matters, that their voice belongs in the room, and that they have something real to contribute to making the health system better.

Our Introduction to Consumer Representation training is one of the ways we do that. The current iteration of this training goes back to 2019, but this commitment goes back much further. The format has evolved; the purpose has not.

Read the full 2026 workshop summary report or get in touch with us at engagement@hconc.org.au if you are interested in consumer representation opportunities or want to know when our next session is running.

Health Consumers’ Council WA
www.hccwa.org.au

Body worn cameras in WA health facilities

Balancing safety, dignity and trust

WA Health has introduced a statewide mandatory policy for body worn camera use in public health facilities. The policy is about staff and visitor safety, but it also raises important questions about trust, dignity, communication, privacy and accountability.

WA Health has introduced a new mandatory policy about the use of body worn cameras in public health facilities. The policy is focused on supporting safety during incidents involving violence, aggression or threatening behaviour. It sets out when body worn cameras can be used, who can use them, how people should be told they are being recorded, and how footage should be managed.

Health Consumers’ Council WA was invited to take part in the policy consultation process, alongside clinical, safety and health system representatives. We appreciated the opportunity to bring a consumer perspective into those discussions and to speak to what matters for people, families and communities when they are accessing care.

For us, this conversation was about more than the cameras themselves. It was about trust, dignity, communication, privacy and safety.

Here’s our summary of the policy.

Why staff safety matters

We also want to acknowledge why this policy exists. Health care workers, security staff and others working in our health system have the right to be safe at work. No one should experience violence, aggression, threats or abuse while providing care or supporting people in health services.

When staff feel unsafe, this can affect everyone – staff, patients, families, carers and other people nearby. A safer environment supports better care.

From a consumer perspective, supporting staff safety and protecting consumer rights are not opposing goals. Both matter. The important question is how safety measures are used, especially in situations where people may be unwell, frightened, distressed, overwhelmed or in crisis.

This is not completely new

Body worn cameras are already used in a range of public safety and frontline settings across Australia. They have also already been used in some WA health settings.

For example, WA Country Health Service has had a local Body Worn Camera Procedure for security officers working at WACHS health sites and facilities. That procedure was published in May 2025 and covers the use of body worn cameras, associated equipment, and the capture, management, storage, retrieval and release of digital data.

WACHS also has an Electronic Security Systems Policy that includes body worn cameras as part of its broader security arrangements, alongside CCTV, duress alarms and access or identification cards.

So, the new WA Health policy is not simply about introducing a new technology for the first time. What is new is the statewide mandatory policy. This creates a system-wide framework for the lawful, ethical and consistent use of body worn cameras across all WA public health facilities.

We have not found publicly available body worn camera-specific policies for every Health Service Provider. This is one reason a statewide policy matters: it gives services a shared set of minimum requirements, rather than relying only on local arrangements that may differ between services and may not be easy for consumers to find.

What the WA policy says

Under the WA Health policy, body worn cameras can only be used by Security Officers. They are not for routine surveillance. They may be activated only when there is an imminent risk to the safety of staff, patients or visitors because of violent, aggressive or threatening behaviour.

Where practicable, people should be told that recording is starting. This is important because clear communication can help reduce fear, confusion and mistrust, especially for people who may already be distressed or struggling to understand what is happening.

The policy also recognises that extra care is needed in private, sensitive and clinical areas. From a consumer perspective, this is one of the most important parts of implementation. A person’s dignity, privacy and cultural safety still matter, even when a situation is difficult or unsafe.

What happens to the footage?

The policy does not set one simple storage timeframe for body worn camera footage. Instead, footage must be managed in line with WA Health information policies and State Government records rules. In practice, footage linked to a security incident may be kept for longer than routine footage, depending on the type of incident, whether it is needed for investigation, and how the record is classified.

A consumer who wants access to footage involving them will need to contact the relevant hospital or health service and ask about access through Freedom of Information or the appropriate information access process. Access may not be automatic, especially if other people are identifiable in the footage.

Questions consumer representatives can ask

As this policy is put into practice, consumer representatives, Chairs and committee members can play an important role by staying curious and asking practical questions, like:

  • How will people be told when a body worn camera is being turned on?
  • How will staff make sure people understand what is happening, especially if they are distressed, unwell, cognitively impaired, culturally unsafe, or communicating in a language other than English?
  • How often are body worn cameras being activated, and in what kinds of situations?
  • How will services monitor whether cameras are being used appropriately?
  • How will consumers, families and carers be able to raise concerns or provide feedback?
  • How long is footage kept, who can access it, and how are people told about their rights to request access?
  • How will consumer experience be included in evaluation of the policy?

Keeping people at the centre

HCCWA supports safe health services for everyone – patients, families, carers, staff, volunteers and visitors. We also believe that safety measures must be implemented in ways that protect dignity, trust, cultural safety and compassion.

Many of the situations where body worn cameras may be used will involve people at very difficult moments in their lives. That is why monitoring and evaluation should look beyond compliance and should also consider what body worn camera use means for consumers, including whether people feel respected, informed and safe.

We are sharing this information as part of our commitment to keeping our consumer community informed about policy changes and the work HCCWA is involved in. We hope it supports consumer representatives, Chairs and community leaders to take part confidently in conversations about how this policy is implemented across WA Health.

Sources

Needle-free flu vaccine now available for WA kids

Written by Tania Harris
Engagement Manager | Aboriginal Engagement Lead | Disability Engagement Lead

This year, Western Australia has introduced something important for families — a free, needle-free flu vaccine for children.

The FluMist program is now available for children aged 2 to 11 years, a quick nasal spray instead of a needle. For many parents and carers and especially for children who are anxious about injections, this is a very welcome option.

FluMist works in the same way as traditional flu vaccines by helping protect children against influenza and its complications. It’s not new internationally, it’s been used safely overseas for many years. 2026 is the first time we’re seeing a state-wide rollout here in WA.

We are currently running a Winter survey to hear the perspectives of the community, and what stands out to me is just how varied people’s experiences and attitudes to vaccination are.

Many people told us they actively plan for winter and see vaccination as part of that:

  • “Make sure I get the flu vaccination… and encourage my family to do the same.”
  • “Flu vaccination, take vitamin C supplements… wash hands more regularly.”

But alongside this, we’re hearing about very real barriers that not just about choice, but about access, timing and experience:

  • “I always plan to and then get too sick… to actually get it.”
  • “I should probably get a flu injection, but I always put it off and forget.”
  • “Vaccination clinics outside of ordinary working hours… it’s difficult to find time to take the children when working full time.”

We’re also hearing that for some people, concerns and past experiences are influencing decisions:

  • “Had a fever/chills after last vaccination and dislike needles.”
  • “I don’t trust vaccinations… and their side effects.”
  • At the same time, there’s a strong sense of shared responsibility coming through:
  • “Even if people reject vaccinations, we all have a duty of care to protect each other from harm.”

For me, this is exactly why initiatives like FluMist matter

They respond directly to what people are telling us by removing one of the most common barriers (needle anxiety), making the process quicker and easier for families.

Children are a key group when it comes to influenza. They are more likely to spread the virus, and even otherwise healthy children can become seriously unwell. Supporting children to get vaccinated helps protect not just them, but the wider community as well.

What families need to know

The FluMist vaccine is free for children aged 2–11 years in WA

It is delivered as a gentle nasal spray — no needles required!

It’s available through GPs, community health clinics, Aboriginal medical services and some pharmacies

It’s designed to make flu vaccination easier, particularly for children who may otherwise miss out
If you are supporting families, please let them know about this new initiative.

Where to find out more

Take our 4min survey!

If you have a moment, please do fill out our Winter Survey and let us know what you are planning to do to keep healthy this winter.

4 minute survey: How will you protect yourself and your loved ones from winter bugs?

ICYMI: Three Exciting Events Coming Up with Dr Margaret Faux! 

We’re excited to share that we have three special events coming up in April with Dr Margaret Faux, Australia’s leading expert in medical billing and author of the newly released How to Avoid the Medical Bill Rip Off

Book Club with Dr Margaret Faux – Tuesday 7 April 

Join us for a Q&A with Margaret, hear about her new publication, and learn more about the rules and realities of medical billing, Medicare charges, rebates, bulk billing and private specialist fees and more! 
 
Free – Find out more and register: https://events.humanitix.com/hccwa-book-club-how-to-avoid-the-medical-bill-rip-off 

Consumer SelfAdvocacy Workshop – Tuesday 7 April 

Margaret has also generously offered her time to run a workshop for our consumer network!  

This session will help consumers and carers increase their confidence in understanding all things medical billing, navigating Medicare, understanding private healthcare costs, and how to identify if Medicare has been billed for services that did not take place.  

This is a supportive, practical space to build skills for making informed decisions and asking clearer questions.  
 
Free – Find out more and register: https://events.humanitix.com/consumer-complaints-clinic-medical-billing-with-margaret-faux 

AND A SPECIAL ANNOUNCEMENT…… 

Workshop for Staff Supporting Consumers – Wednesday 8 April 

To complement our consumer workshop, we’re also hosting a specialised session for staff who support people with questions or concerns about healthcare costs and billing. 

Ideal for advocates, community workers and financial counsellors supporting people at risk of being overcharged, confused by fees, or facing unexpected medical bills. 
 
There is a $25 charge to assist with the costs of hosting this event; however, we don’t want cost to be an issue! Please email engagement@hconc.org.au if cost will be a barrier to attending.  

Find out more and register: https://events.humanitix.com/making-sense-of-medical-billing-insights-for-advocacy-professionals