Category: Lived experience/consumer groups

Expression of Interest – Consumer Representative pool for the WA Health EMR Program

Help shape how care works across WA

WA Health is introducing a new Electronic Medical Record (EMR) across public hospitals and health services in Western Australia.

This is the largest clinical and digital transformation WA Health has ever undertaken, and a once-in-a-generation opportunity to improve how care is delivered across the state.

An EMR is a secure digital version of your health record. It brings together information about your care in WA public hospitals – such as test results, medicines and treatment plans – so clinicians can access the information they need to support your care, when they need it. It also includes smart clinical features, such as alerts for allergies or medicine interactions, that help support safer care.

The EMR will also include a portal for patients. The intent is to provide a secure online tool that could, over time, offer access to selected health information (such as parts of a health record, appointments and results) and support people to be more involved in their care and in supporting their family members. Final features and timing will be determined as the program progresses.

What this means for consumers and carers

For consumers and carers, the EMR is intended to support care that feels more joined-up and consistent across WA. It can reduce the need to repeat your story, help avoid delays caused by missing information and support safer care by helping clinicians spot important information sooner. It will also make it easier to access your own health information.

Why we’re asking for consumer input now

The EMR Program has been working closely with the Health Consumers’ Council and the EMR Program Consumer Reference Group for some time to establish strong foundations for consumer input into the Program. This work has helped shape how consumers are involved and has informed key principles around safety, equity, privacy and trust, including the development of the EMR Program’s Consumer Charter.
As the Program moves into more detailed decision-making, it is now important to broaden consumer involvement and build a large, diverse pool of consumers who can contribute across different areas of care. This helps ensure decisions reflect the experiences of people with different health needs, backgrounds and interactions with the WA health system.
The EMR Program is currently working through important decisions about how care is delivered across WA, including where it makes sense for things to be done in the same way everywhere.
To support this, the Program is setting up a number of Clinical Advisory Groups, working groups and committees. These are groups of clinicians and other experts who look at specific areas of care and help guide decisions about how the EMR should support safe, high-quality care across the system.
Many of the topics these groups consider affect how people experience care in real life – for example, how care teams work together, and what it’s like to move between hospitals and services. Because these decisions will shape how care works for many years to come, it’s important they are informed by the experiences of patients, carers and families.
Your input helps ensure decisions are grounded in what actually works well, what’s difficult, and what could be improved, so care can be delivered more consistently and in ways that better support people across WA.

About the Expression of Interest

We are seeking Expressions of Interest (EOI) from individuals who are experienced in representing consumer perspectives to join a pool for the following roles:

  • Standing member of an EMR Clinical Advisory Group (CAG), or other relevant committee or working group
  • Participation in short-term or topic-specific meetings, where your lived experience or expertise is particularly relevant.

The Expression of Interest Form highlights the different clinical focus areas we may need input on, and you can nominate up to five.

Who we’re looking to hear from

We are seeking people of different ages, cultural backgrounds and life experiences, people living in metropolitan, regional and remote areas, carers and family members, and people with experience of different health services and conditions. Having a wide range of perspectives helps ensure the EMR works well for the many different people who use WA Health services.

You don’t need any technical knowledge. What matters is your experience of care as a patient, carer or family member, and your willingness to share that experience in a way that helps improve care for others.

Time Commitment: Some people may be invited to join a Clinical Advisory Group with a regular (likely monthly) commitment, while others may be invited to take part in short-term or topic-specific discussions where their experience is particularly relevant. The Program is still evolving, so topics, timing and levels of involvement will vary. Commitment expectations will be discussed in advance of your appointment.

Support: Consumers can elect to receive additional support before, after and between meetings. This may include pre- and post-meeting briefings and cross-committee meetings to access peer support and learning. The Program will consider reasonable adjustments to support accessibility, communication and participation needs, and encourages consumers to discuss any barriers or support needs with the HCC team.

Online/ in-person attendance: Most meetings will be held online and are designed to be accessible using common devices. If access to technology or confidence using online tools may affect your ability to participate, please contact HCC to discuss available support or reasonable adjustments.

Consumer participation payment: Participation is paid in line with agreed consumer payment arrangements ($75/hour for consumer advisory roles and $37.50/hour for consumer representative roles), with details provided before any involvement is confirmed.

What happens after you submit an EOI

  • Everyone who submits an EOI will receive an acknowledgement. EOIs will be reviewed to identify people whose experience and interests best match current and upcoming opportunities.
  • Some applicants will be invited to a short, informal conversation so we can better understand their experience, availability and any support needs. These conversations are not formal interviews – they’re about getting to know you and working out how and when involvement might be a good fit.
  • Not everyone who submits an EOI will be invited to a conversation at this stage. This doesn’t reflect the value of your experience – it simply reflects current Program needs and timing.

There will be further waves of recruitment as the EMR Program continues, and people who are not contacted in this round may be considered for future opportunities.

How to apply

If you would like to submit an EOI, please complete the online form using the link below. Please allow 15-20 minutes to complete the form.

If you need any assistance or support to complete this EOI, please contact HCCWA on 08 9221 3422 or emr@hconc.org.au

Please complete the EOI at your earliest convenience. The first round of committee appointments is expected to occur February and March 2026.

Connecting and communicating consumer perspectives on cancer care in WA

 

Has cancer affected your life – currently or in the past? A desire to connect with others who have similar lived experiences is the drive behind the upcoming community conversation welcoming consumers affected by cancer in WA. Health consumers’, carers, family, and community are invited to join “Connecting and communicating consumer perspectives on cancer care in WA“.

Be part of the conversation to discuss progress on the 2020-25 WA Cancer Plan. Discuss opportunities for future consumer and community connections.

Date and time

About this event

The WA Cancer Plan guides cancer care in WA: find out about progress on the 2020-25 plan and discuss opportunities for future consumer and community connections

Health Consumers’ Council (HCC) WA and the Consumer and Community Involvement Program (CCIP) are hosting this community conversation for people with experience of cancer – either for themselves, or for a loved one.

In this session, consumer representative Susannah Morris, the HCC WA consumer representative in cancer involved in work relating to the development and now implementation of the WA State Cancer Plan, will give an update on work so far as background for the conversation. Cancer care is delivered in the states and so state plans provide important context that guides care and affects consumer experiences and outcomes. Unlike some other jurisdictions, WA does not have a readily identifiable network of cancer consumers: we are fragmented between our cancer types and our treating locations and so this community conversation provides a space for us to come together.

This will be an opportunity for attendees to discuss their interest in people with experience of cancer in WA connecting with each other in order to influence the scope, design and delivery of health services and health research in relation to cancer and survivorship.

(NB This information session is being hosted independently by HCC and the CCIP to provide an opportunity for people with experience of cancer to connect with each other and learn about work relating to cancer care and services in WA. This is not a Department of Health event.)

This conversation will be held online, via Zoom – details will be sent out in the week before the session.

 

About the organisers

We are (Health Consumers’ Council WA) an independent charity that exists to support and promote consumer, carer and community perspectives in the WA health system.

The Consumer and Community Involvement Program (CCI Program) is an activity of the Western Australian Health Translation Network (WAHTN). The CCI Program (CCIP) supports consumers, community members and researchers to work in partnership to make decisions about health research priorities, policy and practice with the aim of improving health outcomes and ensuring community involvement becomes standard practice.

BACKGROUND: Cancer Care and the WA Cancer Plan, launched 2020

The WA Cancer Plan was released in February 2020 setting out the next five years of strategy in relation to cancer services. This work was undertaken by the WA Department of Health, and the Health Consumers’ Council supported the project through running a community survey and developing consumer videos reflecting consumer patient journey experiences. A summary of survey results is available here. The launch event featured a moving and articulate presentation from Advisory Group member Susannah Morris, who ensured the consumer voice was at the heart of the plan as much as possible.

(An abridged version of Susannah’s speech is in Health Matters (pages 10-11: March 2020 issue) on the Health Consumers’ Council (WA) website, titled “A new plan for cancer
care in WA“)

REGISTER FOR THE COMMUNITY CONVERSATION HERE:

https://bit.ly/WA-Cancer-Plan-Community-Conversation-Consumer-Perspectives

(LinkedIn: for Dr Susannah Morris)

Eating Disorders Lived Experience Network – WA

The Eating Disorders Lived Experience Network is a group with lived experience of eating disorders that connect regularly to share their experiences and to discuss how they can advocate for bettering treatment options and outcomes, clinical service, recovery support, and access to services in WA.

This group is an informal group that meets virtually once a month with presentations by guest speakers, and is moving towards regular in person Support Group meetings. The group is self-organising and is co-ordinated by group members, not the Health Consumers’ Council.

If you have lived experience of eating disorder, a clinical diagnosis and are interested in being added to the email circulation list for this group, please contact clare.mullen@hconc.org.au to be put in touch with the group.

A white canvas with multi-coloured splashes of paint. The word together is across the canvas in capital letters.