Category: Community Consultation

Community forum on advance care planning and My Health Record – find out more and share feedback

You are invited to an interactive community forum about advance care planning. Advance care planning can help you to plan ahead, so your family, friends and doctors will know what you want if you can no longer speak for yourself.

As part of the workshop, we will provide you with some information about My Health Record and how you can use it to help store you or your family’s advance care planning documents.

The morning session will cover information related to advance care planning. The afternoon session will give an overview of My Health Record and then involve an interactive session where feedback is sought about the practical aspects of using My Health Record for storing advance care planning documents. A consumer participation payment is payable to people who participate in the afternoon workshop session.

Health Consumers’ Council, Carers WA, the Advance Care Planning Consortium (via Palliative Care WA) and the WA Health Support Services are organising this workshop:

  • Tuesday 26 November
  • 10am – 3pm
  • Bendat Basketball Centre
  • Free to attend – lunch provided
  • Free parking on-site

For more information and to register, see https://www.eventbrite.com.au/e/advance-care-planning-and-my-health-record-community-forum-tickets-78934628599

Share your feedback

If you’re unable to attend this session, please take 5 minutes to complete this short survey – we will be providing this information to the WA Health team to inform future work about Advance Care Planning and My Health Record

If you have any questions about this event, please contact us at info@hconc.org.au or call 08 9221 3422

What should a safe space alternative to Emergency Departments look like?

If you experience a mental health issue, or support someone who does, would you like to help design a safe space alternative to Emergency Departments?

The State Government has committed to implementing a number of recommendations from the Sustainable Health Review, including the establishment of a Safe Haven Café, a place to go when medical attention is not required but people need a place to feel safe and have access to non-judgemental support.

The WA Mental Health Commission has funded the Consumers of Mental Health WA (CoMHWA) to gather a wide range of views to ensure the space meets the needs of consumers and family members/friends in a caring/support role. We welcome your input via the surveys

Individuals with a lived experience of mental health and or alcohol/other drug issues
Families, carers and support people
Service providers

To hear more about the Safe Haven Café at St Vincent’s https://vimeo.com/295478108

Privacy and responsible data sharing in the WA public sector – closing 1 November

WA is one of only two states in Australia not to have legislation covering the issues of privacy and data sharing in the public sector. To address that, the state Government is planning to introduce legislation covering data sharing and privacy in the public sector.

You can have your say on this important topic:

– A (free) public information session on 4 September at 5.30pm https://www.eventbrite.com.au/e/privacy-and-responsible-inf…
– A free consultation session on 2 October at the Rise in Maylands (run by HCC) – register at https://www.eventbrite.com.au/e/privacy-and-responsible-information-sharing-lets-start-the-conversation-registration-71466394911  
– an online survey – complete this by Friday 1 November https://www.wa.gov.au/…/privacy-and-responsible-information…

The HCC team were at a roundtable table discussion on these issues on 27 August hosted by the Consumer and Community Health Research Network team of the WA Health Translation Network.

Some themes emerged from the discussion including:

– recognition of the value of legislation that would enable the community to benefit from appropriate data sharing
– interest in an independent body, with community involvement, to oversee the legislation and how it’s implemented – including what happens with any data breaches
– public reporting on how the legislation is being implemented, including what, if any, breaches have occurred
– clear information about what consequences there are for individuals and organisations that breach the law
– recognition that not all data is the same – and that different circumstances may require different approaches