Category: Community Consultation

Consumer consultation – lung and respiratory health community services

Share your experience to improve community based services for people with lung and other respiratory conditions

The WA Department of Health is reviewing what community-based services are provided for people with lung and other respiratory conditions.

To ensure those services meet the needs of people living with those conditions, Health Consumers’ Council is hosting a consumer and carer consultation session to seek your views about the quality of existing services, how easy or difficult they are to access, and any potential gaps in services.

Community-based services are those that support people to receive care closer to home, to better manage their condition, and avoid potentially unnecessary trips to hospital.

  • Date: Wednesday 24 June
  • Time: 10am – 11.45am
  • Location: online via Zoom – if you require assistance to join an online meeting, or would prefer to attend in person in central Perth this will be possible. Please let us know. The details for the online session will be sent out a couple of days before the session.
  • Who: we are interested to hear from people with personal experience of living with lung or respiratory conditions, as well as people who care for people with this experience. The conditions include asthma, COPD, bronchiectasis, interstitial lung disease, lung infections (like pneumonia), occupational lung disease and rare lung conditions (like cystic fibrosis) and people living with multiple lung conditions. The team are particularly keen to hear from people from culturally and linguistically diverse backgrounds, and people living regionally.

A consumer participation payment of $35/hour will be offered to people who participate in this session.

If you have any questions about this opportunity, please contact Clare Mullen (clare.mullen@hconc.org.au) or Nadeen Laljee-Curran (nadeen@hconc.org.au)

Register online by Tuesday 23 June at 12pm at https://www.eventbrite.com.au/e/consumer-consultation-lung-and-respiratory-health-community-services-tickets-109120706972

Have you ever had a genetic or genomic test?

Would you like to share your experiences so that we can make genetic and genomic testing in the WA health system the best possible for consumers?

WHAT?

The Population Health Genomics team at the WA Department of Health are holding a community conversation with people with lived experience of genetic and genomic testing here in WA. You are invited to take part in the conversation – the team is keen to hear your voices.

WHY?

The team want to set a clear vision for how genetic and genomic testing (and related services) are delivered in the WA health system. To do this, they need to better understand the lived experience of those who have had a genetic or genomic test in the past. This includes family members and carers too – here is your chance to have your voice heard. All information will be kept confidential and you will not be identified in any way.

HOW?

We are collecting expressions of interest from people interested in participating. If you are interested, please fill in the Department of Health’s web form. Click on the hyperlink or copy and paste the following link into your web browser to register your interest:

https://forms.office.com/Pages/ResponsePage.aspx?id=ub4mXTDXQ0OiUdFwyoY3fAU6MwBwQ_xOny1xRsNlp45UN04wVzdINkJWMTEwWUtSVkRGTlU5Q0xDRy4u

WHEN?

There are two ways to participate:

  1. You can express your interest to attend a group forum in person. You can choose one of three days you would like to attend, either Saturday 21 March 2020 (10-12noon), Monday 23 March 2020 (10-12noon) or Tuesday 24 March 2020 (6-8pm).
  2. For those who can’t make it in person, you can express your interest in completing an online survey from home or wherever else is comfortable for you by Sunday 27 March 2020. The team will send that link out to people who register their interest.

WHERE?

The group forums will be held at The Bendat Parent and Community Centre, near Lake Monger in Wembley. There is ample free parking at the venue. Lunch will be provided, along with an honorarium to thank you for your participation.

WHO?

This event is being organised by the Office of Population Health Genomics within the WA Department of Health, in partnership with the Genetic and Rare Diseases Network and the Consumer and Community Health Research Network.

MORE INFO?

If you would like more information about the event, please call Angela Cho on (08) 9222 2291 and she will be happy to answer any questions you may have.