Month: August 2018

My Health Record Webinar 1 – Privacy and Security – Key Takeaways

Consumers Health Forum has been funded by the Australian Digital Health Agency to run a series of free webinars on My Health Record. You can register for them here.

The webinars are just under and hour, and are available on replay on the link above. As everyone is so busy, I have watched this and include key takeaway messages which I have summarised from comments made.

  1. There are three options for consumers – opt in, opt out or opt in but include protections on data you don’t want to be publicly available. (Karen Carey)
  2. You have to make the assumption that the data you have in My Health Record may at some time be inadvertently made public and identify your own risk level and mitigate that risk by using security controls. It is not helpful to try and assuage consumer concern by talking about how high-grade the security is and that a breach will never occur. The chances are it will, so consumers need to proceed on that basis. (Karen Carey)
  3. Risk mitigation means considering your own personal circumstances and make sure that any relevant information is not included (Karen Carey)
  4. My Health Record is just a summary of the rich data that at GP or specialist may have about you – a summary page, not the whole thing (Charlotte Hespe)
  5. You can work with your GP on the summary – (Charlotte Hespe)
  6. The protections on our data and privacy over the last thirty years have been eroded, drip by drip. Policy and legislation can be altered and so we do need to be mindful of this when given assurances that our data won’t be shared with other agencies. (see point 2) (Bruce Arnold)
  7. These are important conversations about My Health Record but a) they should have taken place some time ago and b) they need to be with a much broader audience (Karen Carey and Bruce Arnold, various comments)

I have had a My Health Record for three years now, and when I applied you needed to have all your key documents with you and it was a cumbersome process. There was not much data on it but it is increasing. I personally feel like Facebook knows more about me that the Australian Government ever will. My Health Record is a necessary step towards simplifying our complex health system and literally saving people’s lives by the access to key information about allergies and medications. However, as it was mentioned several times in the webcast, people’s care will be impacted by certain things – mental health diagnosis, drug and alcohol history and on and on – for myself personally this is not an issue and it is important to consider your own circumstances. If in doubt, opt out.

How easy the privacy controls will be for someone with no or low literacy or minimal computer access is not really considered, as in so much of how our systems work.

Panellists:

Kim Webber – General Manager, Strategy at the Australian Digital Health Agency
Karen Carey – Consumer Advocate, former chair of CHF and Chair of the NHMRC Community and Consumer Advisory Group
Dr Bruce Baer Arnold – Assistant Professor, Law at University of Canberra and Vice-chair of the Australian Privacy Foundation Board
Dr Charlotte Hespe – GP, Glebe Family Medical Centre and RACGP Vice President

 

Pip Brennan, Executive Director, Health Consumers’ Council

Diversity in Consumer and Carer Engagement – Health Engagement Network Event

Are you active in consumer or community engagement? Do you want to promote best practice and build capability in consumer/carer engagement across the health sector in WA? Join us to explore diversity and discuss practical ways of engaging diverse groups of consumers and carers in the health system.

Come along to a FREE event hosted by SCGH Centre for Nursing Education on Thursday 20th September, 1.30-3.30pm in Room G24 at the Harry Perkins Building, QEII Medical Centre, 6 Verdun Street, Nedlands.

RSVP to scgh.cne.registrations@health.wa.gov.au

End of Life Choices Event – Palliative Care WA Tues 28 August

The WA Parliament’s Joint Select Committee on End of Life Choices are scheduled to release their report on the 23 August. Palliative Care WA is hosting a forum to provide the sector with an early opportunity to understand and discuss the interim findings and recommendations.

When   Tuesday, 28 August 2018, 4.30pm to 7pm
Where  The Boulevard Centre, 99 The Boulevard, Floreat.
Who  Members and supporters of Palliative Care WA, palliative care service providers, health and allied health practitioners, aged care providers, and general community.
Cost Free to Palliative Care WA individual members, $40 non-members
Please register online  https://pcwa-eol-forum.eventbrite.com.au
For more information  Palliative Care WA T 1300 551 704 E info@palliativecarewa.asn.au

Department of Health – Prostheses Clinical Advisory Groups closes 16 Sept

The Prostheses List Advisory Committee (PLAC) advises the Minister on the suitability to list on the Prostheses List under the Private Health Insurance Act 2007. The Prostheses List Clinical Advisory Groups (CAGs) are expert sub-committees of the Prostheses List Advisory Committee (PLAC) providing advice on issues relating to the clinical effectiveness of prostheses, including effectiveness compared to other devices. The PLAC makes recommendations to the Minister on which products are listed on the Prostheses List. Listing on the Prostheses List affects whether or not a prostheses benefit is available to consumers from a private health insurer.

Nominations/renominations are now due for the following Clinical Advisory Groups:
Prostheses Clinical Advisory Group – Specialist Orthopaedic
Prostheses Clinical Advisory Group – Cardiac
Prostheses Clinical Advisory Group – Cardiothoracic
Prostheses Clinical Advisory Group – Ophthalmic
Prostheses Clinical Advisory Group – Orthopaedic (Hips)
Prostheses Clinical Advisory Group – Orthopaedic (Knees – KPCAG)
Prostheses Clinical Advisory Group – Spinal
Prostheses Clinical Advisory Group – Vascular Stents and Grafts

The CAGs refer applications to the Medical Services Advisory Committee (MSAC) where the:
• new medical device employs a medical service that is not currently covered in the Medicare Benefits Schedule (MBS), or
• new medical device might be used in a medical service that is currently described in the MBS, but potentially extends the range of indications/patients beyond the original intent of the MBS item/s.

The CAGs also advise the PLAC on:
• the evidence and information they require to assess applications to list medical devices on the Prostheses List.
• any concerns in relation to safety and/or performance of medical devices, for referral to the Therapeutic Goods Administration.
• reviewing the listing of medical devices in view of issues relating to comparative health outcomes.
• on any other matter, as required.

More information is available here.

The workload for this work consists of four meetings per year over a four year term. Meetings will be a combination of face to face and teleconference meetings. Please note that the Department of Health will cover sitting fees and travel costs for this work.

CHF thanks the following consumer representatives for their work over the last four years in providing a consumer perspective to the CAG’s:
Janney Wale – Prostheses Clinical Advisory Group – Specialist Orthopaedic
Rachel Bishop – Prostheses Clinical Advisory Group – Cardiac
Paul Simpson – Prostheses Clinical Advisory Group – Cardiothoracic
Karen Carey – Prostheses Clinical Advisory Group – Ophthalmic
Neville Millen – Prostheses Clinical Advisory Group – Orthopaedic (Hips)
Janney Wale – Prostheses Clinical Advisory Group – Orthopaedic (Knees – KPCAG)
Mary Jane Morales – Prostheses Clinical Advisory Group – Spinal
Eileen Jerga – Prostheses Clinical Advisory Group – Vascular Stents and Grafts

CHF invites expressions of interest from consumer representatives by midnight AEST on Sunday 16 September 2018. Interested consumer representatives will need to:
1. Complete a CHF nomination form available online at https://chf.org.au/representation/forms/consumer-representative-nomination-form
2. Attach a letter of endorsement from a supporting health consumer organisation and/or provide sound demonstration of your links with a consumer base. This information ensures that consumer representatives are accountable to consumers. Please note that the health consumer group need not be a CHF member. This process ensures consumer representatives are placed with the confidence of consumers and have in place a consultative base enabling reps to draw from and report to consumers.
3. Attach a short CV in pdf format

Please contact Ghislaine Martin on 02 6273 5444 or via email at g.martin@chf.org.au should you have any queries.

Expressions of interest close at midnight AEST 16 September 2018

IHI and BMJ – Forum on Quality and Safety in Healthcare – closes 26 Aug

The International Forum on Quality and Safety in Healthcare is a biannual gathering of healthcare professionals with the aim of improving quality and safety in healthcare. The International Forum is jointly organised by the Institute for Healthcare Improvement (IHI) and the British Medical Journal (BMJ).

The 23rd International Forum will be held on 10-12 September 2018 at the Melbourne Convention and Exhibition Centre. The theme for 2018 is Connect. Co-Create. Communicate.

CHF has approved the use of the #withconsumers tick for the 23rd International Forum which clearly demonstrated that consumers were put first in healthcare for this event. The Institute for Healthcare Improvement (IHI) and BMJ have made a strong commitment to partnering with consumers via the program objectives and are providing five complimentary registrations for CHF nominated consumer representatives to attend the forum. Please note that travel and accommodation costs will not be covered for this event.

The five consumers will have the option of chairing one session each on the main programme, bringing in their own experience to the question and answer section. In addition to these roles for CHF nominated consumers, there are other ways in which consumers are involved. There will be a main programme panel session presented and chaired by consumers on Wednesday 12 September. Three consumers will also be adjudicating the opening keynote debate on Monday 10 September – a consumer ‘shark’ in the shark tank session. A consumer will also be co-hosting the quiz as part of the Night Forum.

Safer Care Victoria are also supporting a cohort of consumers to attend the event. Consumers will be identified with a ribbon on their badges and have a reserved space in the exhibition area for them to meet each other and for delegates to interact with them. The CHF nominated consumers will have the opportunity to join this network.

The five consumers will also need to write an article for CHF’s newsletter, Health Voices. These articles will feature in the first issue for 2019, which will focus on quality, safety and health literacy.

The programme will examine how supporting connections between consumers, frontline staff and management leads to a culture of collaboration where everyone in a workforce is empowered to make a difference. The Forum will also explore how through the use of effective communication, ideas can be translated into global improvements in patient care. The two-day conference will feature four keynote presentations and over 50 international speakers delivering more than 40 sessions divided across 5 streams. There will also be a full Exhibition Hall, poster displays, breakfast and lunchtime sessions and many opportunities for networking, including an evening networking event.

The aim of the Forum is for delegates to:
• Learn how to achieve organisational and cultural transformation from industry leaders
• Share experiences with like-minded colleagues from across the world to get a different perspective on the challenges and opportunities facing organisations
• Take home practical tips and innovations to make a real difference to patient care
• Discuss key global concerns in quality improvement and work on creating solutions
• Embrace fresh ideas
• Accelerate progress in patient care
• Recognise individual accomplishments
• Discover new pioneers and leaders
• Build human global networks

Key topics for discussion are:
• How can we meaningfully co-produce services with patients/consumers?
• How can we improve access to services for populations living in remote areas?
• How can we best support staff to deliver highest quality care in a pressured environment?
• What does it take to create large scale system transformation in an organisation?
• What can we learn from other industries that would help us improve patient safety?

Programme highlights include:
• Skills based training workshops with internationally renowned experts in quality improvement
• Keynotes from influential figures in the quality improvement landscape as well as perspectives from other industries
• Over 40 sessions with presenters from across the world
• More than 50 international speakers

Full programme available here

CHF invites expressions of interest by midnight AEST on Sunday 26 August 2018. Interested consumer representatives will need to fill out the attached EOI form and return it to Ghislaine Martin via email at g.martin@chf.org.au. Please email Ghislaine or ring on 02 6273 5444 should you have any queries.

Expressions of interest close at midnight AEST 26 August 2018

NPS MedicineWise – Antibiotics Expert Working Group – closes 2 Sep

NPS MedicineWise delivers three programs to general practitioners, consumers and other health professionals each year to deliver relevant, timely and useful information regarding medicines and medical tests. NPS MedicineWise is establishing the Antibiotics Expert Working Group to provide advice to inform the design and development of the NPS MedicineWise Antibiotics visiting program.

The Antibiotics Expert Working Group will be active in the design phase of the program. The program design phase is a total period of 1 month (12 September 2018 to 13 October 2018) where the issues and barriers associated with antibiotics will be explored and activities or educational resources for health professionals and consumers are selected and designed.

During this phase the Group will be asked to provide their expert advice to assist the team to:
• better understand the issues, barriers and enablers of the program from the perspective of health professionals and/or consumers
• effectively translate and synthesise evidence, guidelines and clinical opinion into guidance on clinical best practice
• ensure key messages (i.e. the focus of the program) are relevant and appropriate for the audience/s
• advise on opportunities to share, partner or leverage activities.

The work of this EWG will consist of full day face to face workshop in Sydney on Wednesday 12th September 2018. In addition to this key meeting there will be occasional email correspondence throughout the design phase. Members may also be separately invited by NPS MedicineWise to review resources.

Please note that travel costs and sitting fees will apply for this work.

CHF invites expressions of interest from consumer representatives by midnight AEST on Sunday 2 September 2018. Interested consumer representatives will need to:

  • Complete a CHF nomination form available online at https://chf.org.au/representation/forms/consumer-representative-nomination-form
  • Attach a letter of endorsement from a supporting health consumer organisation and/or provide sound demonstration of your links with a consumer base. This information ensures that consumer representatives are accountable to consumers. Please note that the health consumer group need not be a CHF member. This process ensures consumer representatives are placed with the confidence of consumers and have in place a consultative base enabling reps to draw from and report to consumers.
  • Attach a short CV in pdf format

Please contact Ghislaine Martin on 02 6273 5444 or via email at g.martin@chf.org.au should you have any queries.

Expressions of interest close at midnight AEST on Sunday 2 September 2018