Category: News

Employment opportunity | Project and Program Support Officer, full-time

Posted on January 29, 2025

Employment opportunity

To help us achieve our vision of improved health outcomes and experiences for everyone, driven by strong health consumer voices at every level of decision making in health, we are growing our small but mighty team.

Project and Program Support Officer, full-time

We are seeking a highly organised Project and Program Support Officer who loves people and being in a fast paced environment with lots of variety. The role plays a valuable part in supporting a range of projects, as well as being the first port of call for people connecting with Health Consumers’ Council.

As a pivotal role that works across the whole organisation this role is full-time and based on site.

The role offers:

  • A high degree of variety – working with diverse community members and staff at all levels in the health and social care system
  • The opportunity to be part of a consumer-first organisation with a focus on improving health equity and championing health rights
  • A welcoming and inclusive workplace where everyone is encouraged to bring all of themselves to work
  • The opportunity to be involved in a wide range of projects and to grow your areas of responsibility as your knowledge and skills develop
  • A competitive not-for-profit annual base salary with salary packaging

About you:

  • You’re looking for a role where you can apply your communication and administration skills to do work that you care about
  • You’re interested in the health system and care about people’s experiences of it
  • You’re happy to muck in and enjoy working on a range of different projects and with different teams simultaneously

Position overview

This role provides project, general and executive administration support across all areas of HCC, working under minimal supervision to ensure the effective and smooth running of our small hybrid workplace. A proactive, collaborative and hands-on approach is needed for our agile and adaptable organisation, which has the consumer experience and voice at its heart.

A typical week might see you doing a range of tasks:

  • Assisting with project tracking and coordination using our project management system
  • Assisting with planning and delivering a range of events, workshops and activities by organising attendee lists, logistics and catering and consumer payments and enquiries
  • Creating and sharing posts on social media guided by senior colleagues
  • Stepping in to help with projects and liaise with clients when required
  • Attending workshops and events when required to – this may include occasional after hours working
  • Greeting visitors to our offices, responding to our reception phone calls, and responding to emails through our main inbox
  • Managing the training room and equipment register
  • Scheduling meetings, preparing agendas and recording minutes
  • Managing stakeholder contact details through our Customer Relationship Management (CRM) system
  • General office admin including organising travel and accommodation
  • Generating simple reports and analysis from existing systems including data entry
  • Providing executive support to the Executive Director, including managing diary requests

See the job description for a full outline of responsibilities for the role.

Selection criteria

Essential

  1. A minimum of 2 years’ experience in a similar role working across multiple business functions, including project administration
  2. Well-developed interpersonal and verbal skills, with a demonstrated understanding of the sensitivity and empathy needed when communicating with vulnerable community members
  3. Well-developed written communication skills, with the ability to write clearly and concisely for internal and external use
  4. Excellent organisational skills, with high attention to detail and the ability to manage and prioritise deadlines and own workload with limited supervision
  5. Demonstrated ability to use initiative and solve problems within own area of responsibility
  6. Ability to plan and manage large meetings and events eg Annual General Meeting or similar
  7. Be adept, or be able to quickly become adept in, a range of office software programs including Microsoft Office 365 Suite, project management software, and accounting software

 Desirable

  1. A demonstrated interest in the aims and purpose of HCC, for example, experience as a health consumer representative or volunteering in a similar advocacy organisation
  2. Experience creating engaging content for social media and website use, and experience using Mailchimp.
  3. An understanding of the community services and not for profit sector
  4. Ability to develop and maintain productive relationships with diverse internal and external stakeholders, and navigate difficult conversations when required

To apply for the position

Send a cover letter of no more than two pages addressing the selection criteria, along with a current resume outlining your work experience, skills and any relevant education or training to Fiona Leece our recruitment partner at jobs@capitalhr.com.au clearly stating which role you’re applying for.

Please submit your application no later than 8am on Monday 10 February. 

However, note that applications will be considered as received and we reserve the right to appoint to the role before the closing date.

Applications that do not address the criteria may not be considered.

If you require any adjustments to submit your application or wish to have a confidential discussion about the role, please contact Kim Moore, Office and Executive Support Manager on (08) 9221 3422 or email Fiona Leece our recruitment partner at jobs@capitalhr.com.au.

Why we choose to keep our office open on the Australia Day public holiday

Posted on January 24, 2025

Clare and Tania at a the Perth march for a voice to parliment

A simple act of empathy, support, and perspective

Australia Day holds varied meanings for Australians. However, for many Aboriginal and Torres Strait Islander peoples, it symbolises colonisation, loss, and intergenerational trauma. At Health Consumers’ Council (HCC), we believe it is vital to acknowledge this history, understand its impact, and support First Nations peoples not just on January 26 but every day.

Standing in solidarity with Aboriginal communities

As advocates for all healthcare consumers in Western Australia, we recognise the importance of listening to, and amplifying, the voices of Aboriginal peoples. For many, January 26 is a day of mourning and reflection, highlighting ongoing challenges such as significant health disparities.

On the Australia day public holiday (27 January) our office will be open

At HCC, choosing to give staff the opportunity to work on the Australia Day public holiday is an act of solidarity. This is something we have done for a couple of years now and it has been welcomed by staff. We believe there is much to celebrate about Australia, but we recognise the colonial history of the current date, and so don’t see it as a day for celebration. Our team members have the option to work on this day and take another day off instead, or to take the day off if that’s their preference.

Encouraging dialogue, empathy, and micro-activism

By sharing our decision to work on Australia Day we hope to spark reflection and conversation within organisations and communities. By reconsidering the significance of January 26, we aim to promote inclusion, equity, and a deeper understanding of its impact on Aboriginal and Torres Strait Islander peoples.

This is one of the steps we take to acknowledge the truth of our nation’s history and to play our part in fostering a more inclusive future.

This reflects our broader commitment to addressing health inequities and standing with Aboriginal communities as they continue their work to address the harm of colonisation that is still experienced by many people today.

We also work throughout the year to address health inequities experienced by other groups and you can find out more about that work on our website.

Acknowledging some key dates in Australia’s history

  • 65,000+ years ago: First peoples from Southeast Asia arrived in Australia, forming the world’s oldest continuous civilization.
  • 1606: Dutch explorers became the first Europeans to land in Australia.
  • 1788: Captain Arthur Phillip raised the British flag at what he named as Sydney Cove on January 26.
  • 1818: NSW celebrated January 26 as a public holiday to mark the 30th anniversary of the Sydney Cove landing.
  • 1901: The six colonies united to form the Commonwealth of Australia.
  • 1938: Aboriginal protests on January 26 highlighted the trauma of colonisation, calling it “A Day of Mourning.”
  • 1988: Protests during the Bicentenary included 40,000 people marching for land rights and against dispossession.
  • 1994: January 26 was officially declared a public holiday across all states and territories.

Consider joining us for our workshop Acknowledging Country.

Acknowledging Country

An Acknowledgement of Country is an important start to most meetings and professional gatherings and is an opportunity to express your and your organisations respect for Aboriginal people, Country and Culture.

This workshop is designed to help you start to think about what an Acknowledgement of Country means, the difference between and Acknowledgement and a Welcome to Country, when you should be doing an Acknowledgement and how to personalise and make your own Acknowledgement meaningful and respectful.

You will leave the workshop with some tangible tools to develop your Acknowledgement, have the opportunity to ask questions, to develop your own personalised Acknowledgement and some tips for delivering it with confidence and respect.

All profits from these workshops go directly to supporting Aboriginal health consumers in WA in various ways including but not limited to, funding training opportunities for Aboriginal health consumers and occasionally Aboriginal workers, funding Aboriginal consumer payments to ensure Aboriginal perspectives are heard where they may not be. Please contact Tania to discuss this further.

See more workshops we offer below, or register for our next Acknowledging Country workshop now.


 

Addressing inequities in WA Healthcare: building a fairer system for all

Posted on January 17, 2025

Clare Mullen speaks about the Healthcare Consumers' Council

Addressing inequities in WA Healthcare: building a fairer system for all

Adjusting the picture

The issue of public hospital TV fees in WA has sparked widespread debate, with discussions featured on ABC, 6PR, and SkyNews. On Wednesday, I was invited on to 6PR’s Perth Live with Oliver Peterson to share the Health Consumers’ Council of WA’s (HCCWA) perspective on healthcare equity in Western Australia, and the cost of watching free-to-air TV in public hospitals around WA.

The strong public response to the issue of free TV services reveals that many West Australians believe that everyone should be able to access basic amenities, such as free-to-air TV, in public hospitals. HCCWA works to amplify the voices of people who use healthcare providers in WA, or those caring for someone else who does. And let’s face it, that’s pretty much all Western Australians.

Changing the channel – it’s more than a call for free TV in our hospitals

Healthcare equity is a complex issue, and community feedback reflects a range of perspectives. Patients can pay up to $14 per day or $54 weekly for access to basic television services which are outsourced by hospitals to external providers. These costs can disproportionately affect long-term patients especially elderly people, and people on low-incomes.

Some argue against taxpayer funding of ‘patient entertainment’, while others share heartbreaking stories of loved ones unable to afford basic comforts during their recovery. As I shared with the ABC earlier this week:

Being in hospital can be overwhelming. Patients face the stress of medical procedures, waiting for results, and being away from home—all while feeling unwell. Mental health is critical to physical recovery, and free access to TV provides a soothing escape. In a state as wealthy as WA, we can surely find ways to ensure everyone can enjoy small comforts like summer sport while they heal.”

At HCCWA, we believe everyone should have the same access to the seemingly small things which can have a big impact on someone’s wellbeing.

Turning up the volume on fairness

This debate highlights deeper systemic challenges in our healthcare system. When basic amenities like television become a financial burden for those already struggling, and other out-of-pocket healthcare costs, it raises important questions about equity in healthcare. As financial pressures on West Australians increase, should a person’s ability to have a good experience in hospital depend on their bank balance? We don’t think so. So we’re adding this to the list of things we’re looking at to see what can be done about it.

Broader advocacy for healthcare equity

While TV access for people on low incomes might seem like an insignificant issue, it’s just one aspect of healthcare equity and access to healthcare in Western Australia. As we approach both state and federal elections, we’ll be putting forward a patient and health consumer lens on critical issues like access to bulk billing GPs, mental health treatment affordability, affordability of ambulance services, and community-based care options. We’ll also be commenting on maternity care, women’s health, suicide prevention, and the health impacts of racism on First Nations peoples and other communities and other health disparities in Western Australia.

A great health system – for all

We know many West Aussies have a great experience in WA health services. We’re here to speak up for the people who don’t and advocate for health policy reforms. We’ll continue to advocate for fair access for all by amplifying people’s experiences where they are struggling with our healthcare system. Whether we’re talking about keeping your mind occupied in hospital or broader systemic issues, our commitment remains the same: championing fairness, equity, safety, and empowered consumers in healthcare.

Join the conversation

We’re about building a healthcare system that treats everyone with dignity, regardless of their financial situation. We believe that no one should face additional barriers to access, comfort and wellbeing simply because they’re doing it tough financially.

Join us in our community-led mission to shape our healthcare system so that it meets the needs of all Western Australians. Sign up for our newsletter, follow us on Facebook, Instagram or LinkedIn or check out the resources on our website. Together, we can create a healthcare system that’s fair for all.

 

 

 

 

 

Join our team – Individual Advocate part-time job, closing date – 8am Monday 1 July 2024

Posted on June 20, 2024

To help us achieve our vision of improved health outcomes and experiences for everyone, driven by strong health consumer voices at every level of decision making in health, we are growing our small but mighty team.

Advocate, part-time, fixed term for 12 months with the possibility of extension

We are seeking a skilled and passionate health advocate to join our individual advocacy team on a part-time (three days a week), fixed-term contract for 12 months. There is a possibility this role could be extended, subject to funding.

It can be difficult for consumers and patients to navigate the Western Australian health system, or to give feedback if they are unhappy with any aspect of their healthcare experience. This role supports health consumers in having their voice heard within the WA health system, while assisting individuals to navigate the health system and assert their rights, and provides assistance through the complaints process when needed.

The role offers:

  • The ability to make an impact in individuals’ health journeys, and their experiences of the WA health system
  • The opportunity to be a part of a workplace that is driven by championing consumer health rights
  • A welcoming, inclusive and supportive workplace, where everyone is encouraged to bring all of themselves
  • Externally facilitated team supervision
  • A competitive not-for-profit annual base salary with salary packaging
  • Flexible working arrangements including the opportunity to work from home sometimes
  • Additional leave entitlements

About you:

  • You’re looking for a role where you can apply your skills in advocacy and health rights to work that you care about
  • You’re interested in the health system and care about people’s experiences of it
  • You’re comfortable responding to people “where they are”, including when people are expressing distress about their experiences.

Position Overview

This role sits within the individual advocacy team, and although the role functions quite independently, it is well supported by the Senior Advocates and the Advocacy Manager, as well as all other team members. In this role, most of the contact with consumers will be either on the telephone or through e-mail, however, attendance at appointments in the community with consumers is another important facet of this role.

A typical week might see you doing a range of tasks including:

  • Contacting consumers from the advocacy waitlist or being the first point of contact with consumers seeking support
  • Building advocacy plans with consumers within HCC’s scope and referring consumers to external agencies for issues that fall outside of HCC’s support
  • Attending consumer appointments in hospitals, GP practices or at community mental health sites
  • Liaising with hospital staff to advocate for consumers in relation to current health needs or retrospective complaints
  • Writing letters of complaints addressed to health service providers, in conjunction with consumers
  • Writing case notes within our Customer Relation Management system
  • Attending team meetings and supervision

See the Advocate job description for a full outline of responsibilities for the role.

HCC strongly encourage applications from Aboriginal and Torres Strait Islander peoples, people with disability, people from diverse cultural and linguistic backgrounds and LGBTIQ+ people.

Selection criteria

Essential

  1. Previous experiencing providing individual advocacy and an understanding of the value of individual advocacy for consumers experiencing issues within the health system and the levers available to achieve advocacy outcomes
  2. Highly developed communication and interpersonal skills to be able to confidently advocate, negotiate, influence, mediate, de-escalate, and develop effective workplace relationships with consumers and other stakeholders
  3. An understanding of the social determinants of health, systemic barriers and complex trauma when working with people experiencing vulnerability and disadvantage, and the ability to operate with a trauma informed lens
  4. Ability to work autonomously with strong organisational skills to manage competing priorities simultaneously, in order to meet deadlines
  5. Highly developed analysis and report writing and computer skills
  6. Good working knowledge of the WA health system, community service organisations and referral pathways

Desirable

  1. Tertiary qualification in social or behavioural science (e.g., social work, psychology, sociology), or previous advocacy experience or lived experience in navigating the health system
  2. Understanding of the Mental Health Act 2014

To apply for the position

Send a cover letter of no more than two pages addressing the essential selection criteria, along with a current resume outlining your work experience, skills and any relevant education or training to Tara Roopra our recruitment partner at recruitment@talenting.com.au clearly stating which role you’re applying for. Applications that do not address the criteria may not be considered.

  • The closing date for applications is 8am on Monday 1 July 2024.

If you require any adjustments to submit your application or wish to have a confidential discussion about the role, please contact Sam Smith, Advocacy Manager on (08) 9221 3422 (Ext 1) or email Tara Roopra our recruitment partner at recruitment@talenting.com.au

Click here to download the information on this page as a document.

To see other jobs we’re advertising, click here

COVID health protections in hospitals – return to masks

Posted on November 17, 2023

Health Consumers’ Council welcomes today’s announcement by the WA Department of Health that WA public hospitals will be strengthening health protections in light of an increase in COVID-19 infections.

We know that COVID has remained a concern for medically vulnerable people and the community at large. And with regular media reports of rising infection numbers, and evidence about the impact of Long COVID still emerging, many in the community may be concerned about whether we’re doing enough to manage the risk of serious illness or widespread infection.

HCC will be hosting a Community Conversation for health consumers where attendees will hear directly from Dr Andy Robertson, WA Health’s Chief Health Officer, and get the facts on the latest wave on Tuesday 12 December at 1pm.

Children's building blocks with UPDATE COVID19 spelled out - and title of the event

It shouldn’t be this hard to be heard…

Posted on July 19, 2023

By Clare Mullen, Executive Director

It was heartbreaking to hear about the experiences of the the family of baby Ashlee, who died in 2019. We were asked to speak about this on the ABC Drive show this week after the Coroner found that Ashlee’s death was preventable.

Ashlee’s dad spoke about how difficult it was to have their voice heard in the health system. He described how they had to resort to getting lawyers involved just to get answers, and to get an acknowledgement that something had gone wrong.

Sadly, the experience of trying to get answers from the health system, or an acknowledgement or an apology from health services after something has gone wrong, can often be a distressing experience – adding more pain to an already terrible situation.

Let’s be clear – this experience, and other incidents like it, should not happen. 

We want no family to go through this situation.

That’s why we advocate for a patient safety culture in our hospitals. A big part of that is listening to families and patients when they raise concerns.

We know people believe that safe care is care where they feel heard by the treating team.

We believe that part of that safety culture would see consumer perspectives being taken on board at every level of decision making that impacts on patient – from bed level to Board level. We believe this is critical to making sure that decisions that affect safety and quality – such as resourcing and staffing levels – in hospitals are made with consumer perspectives front and centre.

Use Aishwarya’s CARE Call to speak to a senior staff member

Thanks to the advocacy of another family who also experienced a tragic death in a hospital, people in WA public hospitals have another way to have their voice heard in the health system.

If you are concerned about a loved one’s condition when they’re in hospital, and you feel you’re not being heard when you speak to staff, you can An image of a heart with wings, next to the title Aishwarya's CARE Call. A speech bubble with "Are you worried?". We need to know.use Aishwarya’s CARE Call.

This is a number in the hospital where you can speak to a senior staff member who will listen and action your concerns there and then.

If things go wrong

Where something has gone wrong in health in WA, and if you’re having trouble getting answers, Health Consumers’ Council can help by walking alongside you. We can help you to get information about what happened so you can decide what action you might want to take. That could be asking to meet with the hospital team, submitting a complaint, accessing your health records, etc. Our team can advise on writing letters, or accompany you to appointments if you would like.

We also have information on our website to help you navigate the process of making a complaint if that’s what you want to do.

Health Consumers’ Council is an independent charity that was set up to provide a way for consumer, patient, carer, and family voices to be heard at every level of the health system. We were set up almost 30 years ago by people who wanted there to be an independent body that speaks up for consumers in health. We offer an independent advocacy service that can walk alongside consumers, patients, and families who are seeking answers and redress when things go wrong in health.

Unfortunately, limited resources mean we’re not able to be available to everyone that could benefit from our support.

WA needs more “in the moment” advocacy

Ideally, people would be able to access individual advocacy support where and when it’s needed. We’d like to see independent advocates available on site in our hospitals. We would rather be able to help people assert their rights in the moment, to avoid things going wrong.

As Ashlee’s family commented – you should haven’t to resort to lawyers to get your voice heard in health.

Health consumers’ feedback on digital health “Future for healthcare in Australia…” workshop

Posted on October 13, 2022

 

HCC’s Consumer representatives give feedback on ACHSM pre-congress workshop

Over 100 ppl — mostly health service providers — but certainly including at least 12 HCC consumer representatives, attended a pre-ACHSM* congress workshop, “The future of healthcare in Australia: designed for consumers, enabled by digital, and accessible for all” held at Perth Convention and Exhibition Centre 21-23 September 2022. Following the event, we asked our HCC consumer representatives who attend the pre-congress workshop for feedback. Read further to find out what they said.

* 2022 Australasian College of Health Service Management – ACHSM, held at Perth Convention and Exhibition Centre 21-23 September 2022.

The session was entitled “Future for healthcare in Australia: designed for consumers enabled by digital access for all’. The main presentation gave an overview of the Deloitte, Curtin Uni and CHF white paper entitled ‘Australia’s health reimagined. The journey to a connected and confident consumer.” 

Noted by one consumer: the very title of the session …designed FOR, not designed WITH!

In this white paper it shows where the opinions of stakeholders lie about where the health system currently sits, as well as priorities for change.

The three “horizons” – ‘connected’, ‘empowered’ and ‘confident’ consumers – are envisaged to exist as a progressive step approach to a reimagined health system which ‘supports all Australians to live their best, healthiest lives.’ The white paper describes a number of transitions that will reorientate the health system to focus on the needs of individuals.

Following the review of this report’s findings, the audience was asked to participate in a series of Menti polls (Mentimeter is an online, interactive, live polling tool used to ask questions at events, and provides the audience’s responses on screen). Polling activities looked at views on the current state of healthcare and its use of digital health in terms of three horizons, connected, empowered and confident consumers.

Overall, many of our consumers suspected that that the room was not very consumer focused in its perspective.

One consumer said that when voting on priority focusses, the important dimensions to focus on that will accelerate the health system toward achieving its visions (e.g., consumers moving along the “horizon” from “connected” through to “empowered”), the dimensions relating to consumers came in as priorities 5, 8, 12 and 13. Priorities 1-4 were system funding, system integration, enabler workforce, and enabler data interoperability.

The priority responses from the room were all about the providers and the system doing things to reform itself – not starting from where consumers are and what they need.

There was a lot of academic and high-level commercial ‘report’ jargon thrown around the room, said another consumer, which is not very consumer-friendly regarding simple language or a ‘give it to me straight, doc’ approach.

One of our consumer representatives said he was “very surprised that the title suggested workshop for consumers but [that consumers] were very outnumbered by others [e.g., health service providers]”.

However, more than a couple HCC consumer representatives found the workshop to be positive and most worthwhile with a good spread of consumers in the room and plenty of opportunity to get the consumer perspective heard and captured, especially using Menti. A couple consumers mentioned Menti being useful:

“…the electronic way [using Menti] of gathering comments, opinions and insights (via phones) is an efficient way of conducting the workshop, especially when only 1.5 hours is allocated.”

The strong consumer feedback will help shape the next phase of the work.

Of interest, the point was made that health providers and clinicians are also service users and so they should look at what they would want to receive for themselves and their loved ones.

Another consumer seconded that point of view, saying “A moot point was that we are all consumers at one time or other.”

It is worth highlighting concerns of another health consumer in attendance:

“… about the comments made [regarding] ‘we are all consumers of health services’ by the group. I think it is really important for not only health service providers but also health workers and those in leadership positions across the system, to understand that being a consumer of health services means different things for different people. While I agree that we all should receive the same access to digital health tools, there needs to be a recognition of the complexity of need for consumers with complex health issues compared to those who perhaps step in and out of the health system periodically throughout their lives – and digital solutions need to address this and respond to it. People with chronic health conditions…often have contact with the health system on a weekly basis and require a more intensive, complex, and sophisticated relationship with the system, to meet their needs. I don’t believe this level of complexity is necessarily understood or appreciated by people who don’t have lived experience of chronic disease and multiple comorbidities. I think to say, ‘we are all consumers of health services’ is being blind to the varied complexities of consumer experiences and it is essential to have people living with complex chronic disease who are reliant on the health system constantly, in leadership positions in health, to ensure this is understood and provided for in digital health strategy.”

Some pointed out that if the health system did not hurry up and adopt more digital health resources then digital disruption would mean consumers met their needs elsewhere as private companies enter the field and websites such as https://www.patientslikeme.com/ are set up.

(This was echoed by another consumer who attended an event in August 2022 – read the blog here: “A wild reflection from digital health summit”.)

More quotes, and feedback:

There have been many similar strategies in the past and many of our consumers remain unconvinced that we need another one at this point. For example, many of our people specifically mentioned the National Australian Digital Health Strategy and that it involved “extensive community consultation across the country”.

…it is frustrating to see a restart, rather than building on what has been done previously.

I fear that there are many efforts to improve the health provision in the community but is it still being addressed in silos.

I would love to see a co-design committee developed to move ahead with what priorities can be worked on in this space.

There is no “one size fits all” and there are many things that need to be improved within WA Health. How can we move forward with realistic and achievable outcomes is my question?

As an aside – one health consumer recommends the 2017 Documentary “Daughters of Destiny” on Netflix and is convinced that starting health literacy awareness in early education is absolutely necessary.

[Noteworthy: October is Health Literacy Month.]

One consumer noted that “we [the attending workshop participants] were not told how the survey of approximately 1,800 people was administered nor the characteristics of the respondents.” She said, “This raises concerns about representativeness and possible bias if it was largely administered digitally as this may result in an overstatement of willingness and desire to adopt digital health resources.”
(~ Since the session she discovered it was indeed an online survey)

“A central focus on health outcomes was not explicit and evident in the presentation, and that is always a concern,” one consumer shared. “It must be the starting and end point, with the strategy articulating a pathway for delivering improvement.

Digital health is not a silver bullet and cannot be considered in isolation of the “health” ecosystem – it is an enabler along with other interdependent components that must be represented as part of a holistic solution that brings in a stronger community role and emphasis on consumer responsibility.”

“We all need the reassurance that there will be benefits of an integrated system that it is sustainable, workable, and where all [are] included [with] no one left behind…

Our regional services need aligning around Australia. Our Indigenous communities need appropriate consultation. Multicultural people need accessible info. Gender diverse, neuro divergent, and multiplicity of broad users need to be recognised and accepted as service users with their own often co existing diversity and needs. We know mental health concerns have also risen throughout Australia over past three years, not to mention our ageing population with continuing and varying need.

[Noteworthy: October is World Mental Health Month.]

If we are not delivering appropriate health care now to those in need, how do we expect anything new to be accepted, or are we going to have to supplement upcoming changes with the loss of something already existing?”

Overall, although with mixed levels, HCC consumer representatives thought the white paper is a useful contribution. However, there are several concerns that “not enough attention is paid to the digital divide either in the report or the workshop and there is a real danger it will gloss over the difficulties of access for some and rather than delivering something that is person-focused. It will assume that all consumers want and are able to access digital health and therefore replicate existing inequalities rather than break them down.”

 

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Follow our social media platforms for ongoing commentary and contributions from our consumer representatives and the HCC team.

Connecting and communicating consumer perspectives on cancer care in WA

Posted on October 11, 2022

 

Has cancer affected your life – currently or in the past? A desire to connect with others who have similar lived experiences is the drive behind the upcoming community conversation welcoming consumers affected by cancer in WA. Health consumers’, carers, family, and community are invited to join “Connecting and communicating consumer perspectives on cancer care in WA“.

Be part of the conversation to discuss progress on the 2020-25 WA Cancer Plan. Discuss opportunities for future consumer and community connections.

Date and time

About this event

The WA Cancer Plan guides cancer care in WA: find out about progress on the 2020-25 plan and discuss opportunities for future consumer and community connections

Health Consumers’ Council (HCC) WA and the Consumer and Community Involvement Program (CCIP) are hosting this community conversation for people with experience of cancer – either for themselves, or for a loved one.

In this session, consumer representative Susannah Morris, the HCC WA consumer representative in cancer involved in work relating to the development and now implementation of the WA State Cancer Plan, will give an update on work so far as background for the conversation. Cancer care is delivered in the states and so state plans provide important context that guides care and affects consumer experiences and outcomes. Unlike some other jurisdictions, WA does not have a readily identifiable network of cancer consumers: we are fragmented between our cancer types and our treating locations and so this community conversation provides a space for us to come together.

This will be an opportunity for attendees to discuss their interest in people with experience of cancer in WA connecting with each other in order to influence the scope, design and delivery of health services and health research in relation to cancer and survivorship.

(NB This information session is being hosted independently by HCC and the CCIP to provide an opportunity for people with experience of cancer to connect with each other and learn about work relating to cancer care and services in WA. This is not a Department of Health event.)

This conversation will be held online, via Zoom – details will be sent out in the week before the session.

 

About the organisers

We are (Health Consumers’ Council WA) an independent charity that exists to support and promote consumer, carer and community perspectives in the WA health system.

The Consumer and Community Involvement Program (CCI Program) is an activity of the Western Australian Health Translation Network (WAHTN). The CCI Program (CCIP) supports consumers, community members and researchers to work in partnership to make decisions about health research priorities, policy and practice with the aim of improving health outcomes and ensuring community involvement becomes standard practice.

BACKGROUND: Cancer Care and the WA Cancer Plan, launched 2020

The WA Cancer Plan was released in February 2020 setting out the next five years of strategy in relation to cancer services. This work was undertaken by the WA Department of Health, and the Health Consumers’ Council supported the project through running a community survey and developing consumer videos reflecting consumer patient journey experiences. A summary of survey results is available here. The launch event featured a moving and articulate presentation from Advisory Group member Susannah Morris, who ensured the consumer voice was at the heart of the plan as much as possible.

(An abridged version of Susannah’s speech is in Health Matters (pages 10-11: March 2020 issue) on the Health Consumers’ Council (WA) website, titled “A new plan for cancer
care in WA“)

REGISTER FOR THE COMMUNITY CONVERSATION HERE:

https://bit.ly/WA-Cancer-Plan-Community-Conversation-Consumer-Perspectives

(LinkedIn: for Dr Susannah Morris)

My Health Record Opt Out Period

Posted on May 25, 2018

You have from 16th July until 16th October to opt out…


Did you know that by the end of 2018, an online summary of your health information “My Health Record” will be created for every Australian?

If you don’t want to have a My Health Record, you need to take action by 15th October and opt out.

There are a range of ways to support you to opt out, and these will come on line by 16th July. You can sign up on this web page for updates as they are released.

Why have a My Health Record?

In simple terms, a My Health Record connects the dots between, for example, your GP and your hospital care. Over the last several years, WA Health services have been working on linking your hospital discharge summary to a My Health Record. So when your discharge summary is created, it looks for a match with a My Health Record and if there one, it will connect the two. Your GP will then be able to see the discharge summary, and so will you. Getting a My Health Record will mean important information like this will be at your fingertips 24/7. This will result in faster and safer care for you and your family.

Do you have any allergies???

Patients often wonder why they have to keep repeating tests and explaining allergies over and over again. but currently, we have on way of easily sharing that information across our systems. A My Health Record will help with this.

Across Australia

Having a My Health Record will mean your important patient information follows you no matter where you travel in Australia.

Advanced Care Plan

You can also upload your Advanced Care Plan if you have one, on your My Health Record.

Whose records?

In our Advocacy service we often encounter people needing assistance in accessing their medical records. This will, over time, be a thing of the past, where people can maintain control over their own health information via the My Health Record. This is vital when seeking follow-up treatment, understanding our own health care and knowing what has happened to us.

What about privacy?

This is a huge consideration, and many will know that the My Health Record, which used to be called the Personally Controlled Electronic Health Record, has been in the planning stages for many years, in part because of the important considerations of protecting privacy. If you are really concerned, you can opt out.

Extra privacy protections

One of the new features of the My Health Record will be the ability to set it up so that you get a text if someone accesses your health record. This is not something our current paper based medical records provide. You will also be able to control certain aspects of it yourself.

To find out more please ensure you, your family and friends go to the government website for information and updates.

How you can help support quality healthcare for all

Posted on March 20, 2017

For some time, I have been thinking about people across the globe that access healthcare (health consumers). Unfortunately, most are not able to access the same quality of healthcare available in Australia. I wondered how we in the ‘Lucky Country’ could share our good fortune with others and help support quality healthcare for all.

 

Help support quality healthcare for all

To help support quality healthcare for all health consumers, Health Consumers’ Council will nominate each year a selected healthcare charity organisation located in Australia and overseas. We will provide those who attend our functions the opportunity to donate a gold coin go towards the nominated ‘good cause’. We hope you will support us in this endeavour to help improve healthcare for those less fortunate than ourselves.

 

Hamlin Fistula Ethiopia

In 2017 we are collecting donations for ‘Hamlin Fistula Ethiopia’. ‘Hamlin Fistula Ethiopia’ was founded in 1974 by husband and wife, Dr Reg Hamlin OBE and Dr Catherine Hamlin AC. I first came across the ‘Hamlin Fistula Ethiopia’ in the 1990s and have since read more about it, including in the book, ‘The Hospital by the River’, by Dr Catherine Hamlin. (Pictured: Catherine Hamlin Co-founder of Hamlin Fistula Ethiopia)

 

Catherine and her late husband Reg initially travelled to Ethiopia (as doctors) with the intent of staying for three years. Originally from Australia they dedicated their lives to the women of Ethiopia. Dr Catherine Hamlin turned 97 in January and she still lives in her home in the grounds of the Adis Ababa Fistula Hospital.

 

Catherine and Reg are part of my collection of heroes, people I admire for the contribution they have made to the lives of others and therefore the world. Today we constantly look at life through the media lens, making the world seem almost devoid of genuine acts of kindness. So, it is even more important to recognise genuine heroes like Catherine and Reg.

 

The Hamelin Clinic also has an office in New South Wales and I encourage you to visit their website here to learn more about this wonderful couple, their staff and women the Clinic heals.

 

Louise Ford | Consumer & Community Engagement Manager