Category: Uncategorized

High Specialist Fees: The Grattan Institute Report has identified some interesting solutions.

HCCWA welcomes the recent report “Special Treatment: Improving Australians’ access to specialist care” from the Grattan Institute into the cost of specialist appointments.

“The cost of specialist care is a problem for many people, across all areas of health.” according to Clare Mullen, the Health Consumers’ Council WA’s Executive Director in regards to the Grattan Institute‘s report about expensive specialist doctor fees.

“It’s really tough for people to have to make the choice between going on to a public wait list and with no information about how long they might be on that wait list, or trying to find the money to pay for care privately if they do have private health,” she stated in her interview with Nadia Mitsopoulos on ABC News Perth Mornings.

Our Health Advocate Team, who are on the front line of our specialised one-on-one advocacy service, know this all too well; we hear regularly about the prohibitive cost of specialists from people across WA. As Clare Mullen points out in this interview; the emotional and vulnerable nature of healthcare decisions make it crucial for consumers to have trustworthy information. “It’s important that consumers are given access to the information that they can trust to make informed decisions and let’s make healthcare a bit fairer for everyone.”

Health Consumers’ Council WA offer the ONLY free individual health advocacy service in Australia.

Listen to the interview starting at 51:45 here.

Our hybrid health system means that consumers can find themselves caught between choosing to attend an appointment with a private practitioner or waiting for an outpatient appointment in the public system. The lack of transparency around waiting times for public appointments does see people choose to see a private practitioner, but as this report highlights, the cost of these appointments can be well outside the reach of many consumers with one extreme example of an appointment that left a consumer with an out of pocket cost of over $600.

Ideally the health system would have sufficient staff and funding to mean that the toss up between high costs and long waits would not occur .  We are encouraged by the recommendations of the report to identify and train specialists in the fields that are most in need, and also to invest in public clinics in areas where they are most needed.

It is also interesting to note that the report has identified that the current system makes it challenging for GPs to receive advice from specialists about managing specific patients, which therefore leads to a larger than required number of referrals being made to those specialists. The report recommends a secondary consultation system which would reduce referrals to specialists and reduce patient expense and stress at navigating the complexities of the health system. It also has the undeniable benefit of reducing pressure on the specialist system, freeing up time for more patients to be seen. It is these kinds of radically different approaches to the provision of health services that we need to ensure our health system can evolve to manage a growing and aging . Before the state election in March this year the WA Labor government promised a pilot program called “GP Ask” to trial a secondary consultation model, and we look forward to the results of this pilot.

The report refers to the Commonwealth Government’s Medical Costs Finder website which provides some helpful information about how much people can expect to pay for certain procedures. Sadly, very few doctors have voluntarily provided their fees for this website, but the Government has committed to using Medicare data to upgrade the website to give a more accurate picture of the costs a patient can anticipate if undertaking their care in the private system.

The Grattan Institute goes further though and suggests that the government legislate to claw back some extreme fees charged by practitioners. We would be interested to see how this might look and we continue to monitor this situation with great interest.

Bronwyn Ife  |  Systemic Advocacy and Engagement Lead
For media enquiries: 0488 701 839

2025-26 Budget “The No Surprises Budget”

The State Budget was handed down on 19 June and HCCWA was pleased to be invited to the industry budget briefing and lock in.

Reading the budget documents, it was great to see all health-related election commitments being funded, as these included some important infrastructure promises and some interesting and innovative programs. We are looking forward to the implementation of the GP ASK program, which should reduce unnecessary referrals to specialists, which in turn reduces waiting times for patients. We are also interested to see the WA Virtual Emergency Department expanded and serving more community members. Great preventative programs such as funding for Ngala and the Australian Breastfeeding Association are also welcomed.

Other health items included:

  • Improvements to nurse to patient ratios
  • Expanding the pharmacist scope of practice to allow greater choice for consumers for access to care for some uncomplicated health conditions
  • Additional beds in the Time to Think program, accommodating hospital patients who are waiting for an aged care placement
  • Funding to develop the Perth Biomedical manufacturing hub to help grow the local medical research industry
  • Funding for the first Dementia Action Plan
  • Funding for a Medical Respite Centre for continuing care people experiencing homelessness who need access to the hospital system.

Spending on healthcare for people in regional areas is vital and we welcome the increases to the Patient Assisted Travel Scheme, as well as infrastructure investment in health services in Bunbury, Albany, Geraldton, Kalbarri and Kalgoorlie. Expansion of renal dialysis in Halls Creek and Fitzroy Crossing is also a great step in providing crucial health care close to where people live.

While spending on infrastructure is crucial, there is a wider picture in the health system that needs to be examined. We were hoping to see investment in radically different models of care, as recommended by the Sustainable Health Review. Community Connector and Social Prescribing models are proving to be hugely important at providing services to community members where they live and in keeping people well, connected, and out of hospital. While Silver Chain programs are funded in this budget, there is nothing for new and innovative community connector programs that will be essential in the future of our health system.

While we welcome many cost of living initiatives, such as free public transport to school, we were disappointed that there was nothing in the budget to help WA health consumers and their carers with the high cost of parking at hospitals. Our hospitals are free, but accessing them is not free, we’ve heard from people who have had to take out pay day loans to cover the cost of hospital parking. Subsidising hospital parking would be an excellent initiative to assist people with the escalating cost of living and provide relief for people who are experiencing the acute stress of a sick, hospitalised family member.


Bronwyn Ife  |  Systemic Advocacy and Engagement Lead
For media enquiries: 0488 701 839

Evelyn Le’s literature review to identify the barriers that are faced by LGBTQIA+SB people in accessing healthcare in Western Australia: intern from the McCusker Centre for Citzenship at UWA

At HCCWA we regularly host interns from the McCusker Centre for Citzenship at UWA because we believe in helping to educate future leaders, as well as having the opportunity to get input on projects we’re keen to make happen and wouldn’t otherwise be able to Students who choose the McCusker Internship as an elective in for one semester are placed with an organisation where they undertake 100 hours of supervised project work.

Evelyn Le joined us in semester one. She is undertaking a major in Biomedical Science (Pharmacology) with a minor in French, so her time spent at HCCWA was a new opportunity for her to think about a different type of work and a different way of undertaking research.

Evelyn undertook a literature review to identify the barriers that are faced by LGBTQIA+SB people in accessing healthcare in Western Australia, and further to identify what resources exist to assist members of the LGBTQIA+SB community to navigate the health system and be aware of their health rights. We developed this project brief after our Executive Director was invited to attend the Youth Pride Network Queeries event last year and heard from participants how challenging many people in the LGBTQIA+SB community found it to find welcoming safe healthcare.

Evelyn presented her findings to all staff at the end of her internship, and included:

  • That the LGBTQIA+SB community have higher rates of some mental illnesses than other people
  • That often young members of the LGBTQIA+SB community find themselves having to educate their medical practitioners
  • That gender diverse people find healthcare particularly challenging when being faced with health procedures that they associate with a different gender – such as cervical screening tests.
  • That young gender diverse people feel unsupported by healthcare workers if they do not address them using their preferred name, pronouns and gender.
  • That there is a strong intersectionality issue around young LGTBQIA+SB people who are living in rural areas being able to access safe and supportive healthcare.

These findings helped Evelyn to identify gaps in resources for LGBTQIA+SB people in accessing care. She found that while there are ample resources around for LGBTQIA+SB that relate to their specific health needs, there are not very many resources around their health rights and where to seek support for those rights. We’re looking to use Evelyn’s great research and advice to ensure that all community members are well informed of their health rights.

Our next steps are to reach out to LGBTQIA+SB peak bodies and explore how HCC can support their efforts to advocate for more inclusive accessible healthcare for the community.

Health Consumers Council Welcomes New WA Ministerial Health Team

For Immediate Release

Health Consumers’ Council WA welcomes Premier Cook’s announcement today of the team of ministers who will be leading the health and well-being portfolios in the new term of government.

Clare Mullen, Executive Director of Health Consumers’ Council, said “On behalf of health consumers, patients, families and people with lived experience we congratulate the Honourable Meredith Hammat MLA on her appointment as Minister for Health and Mental Health. We are encouraged that this portfolio is being led by someone who had the opportunity to hear directly from the community about their priorities for health in her role on the Sustainable Health Review Panel.”

In the run up to the election, HCC outlined our ambitions for the community in relation to health:

  • increased investment in primary care
  • increased investment in preventative health measures
  • a continued focus on improving the efficiency and capacity of the hospital system
  • improved access to health care in the community.

We are delighted that these priorities have been recognised with the allocation of ministerial portfolios and extend our congratulation to the other Ministers with specific health responsibilities:

  • Minister John Carey MLA, Minister for Health Infrastructure
  • Minister Sabine Winton MLA, Minister for Preventative Health
  • Minister Simone McGurk MLA, Minister for Aged Care and Seniors
  • Minister Stephen Dawson MLC, Minister for Medical Research
  • Minister Paul Papalia MLA, Minister for Emergency Services

We are further please to see that in addition to the new health portfolios that Ministers have also been assigned regional portfolios which we hope will enable a positive focus on more place-based care and community-led health initiatives.

We look forward to working with the whole ministerial team and Premier Cook in the coming weeks and months to discuss how they might deliver a fairer more inclusive health service that meets the needs of all Western Australians. HCC has a proud history of ensuring that health consumers, patients, carers, and people with lived experience are active partners in planning and delivering health and healthcare improvements for all West Australians deserve, and we will continue our advocacy to ensure that they are involved at every level of decision-making in health.

**Ends.**

For further comment, please contact Clare Mullen, Executive Director, 0488 701 839, clare.mullen@hconc.org.au

Consumers in the media

As WA’s peak body for health consumers, we are often approached for comment by news outlets. Here’s a snapshot of some recent coverage:

Job – Development Manager, closing date 2 December 8am

Development Manager, part-time (3 days), fixed term for 12 months initially

SCHADS Level 6-7 depending on experience, $53.84-$58.23 plus super

We are seeking someone with a knack for attracting resources and generating revenue to join our team and help us enable more people in the WA community to have their voices heard in health.

This new role aligns with our refreshed strategic priority of diversifying and increasing our revenue, so that we can extend our impact. Reporting to the Executive Director, you have the opportunity to make your mark by helping us raise additional funds from Government grants, philanthropic bodies and by helping to shape our social enterprising activities.

The role offers:

  • The opportunity to contribute to strategic and operational development, helping to identify priorities and opportunities for growth
  • The opportunity to be part of a consumer-first organisation with a focus on improving health equity and championing health rights
  • A welcoming and inclusive workplace where everyone is encouraged to bring all of themselves to work
  • A competitive not-for-profit salary with salary packaging
  • Flexible working with the opportunity to work from home regularly when settled in to the role
  • Additional leave entitlements

About you:

  • You’re looking for a role where you can apply your fundraising, development and social entrepreneurial skills to advance social justice
  • You’re interested in the health system and care about people’s experiences of it
  • You’re comfortable pitching a compelling case for significant funding to senior decision makers – and just as happy to roll your sleeves up and tidy up after an event along with your colleagues

Position overview

The Development Manager leads our organisation’s income generation strategy, securing sustainable funding through diverse revenue streams including grants, individual giving, corporate partnerships, and social enterprise activities, to support achievement of HCC’s strategic and operational objectives, purpose and vision.

A typical week might see you doing a range of activities:

  • Working with the leadership team to develop an impact reporting system for key initiatives
  • Identifying grant opportunities from published sources
  • Relationship building meetings with key decision makers
  • Writing large and small grant submissions
  • Developing a business model for a new social enterprise initiative including income projections and investment requirements

Click here to see the job description for a full outline of responsibilities for the role.

Selection criteria

Essential

  • 5+ years of experience in fundraising or income generation, preferably in the healthcare or charity sector
  • Proven track record of securing diverse funding streams including philanthropic grants, project funding, and social enterprising activities
  • Experience in grant writing and managing donor relationships
  • Knowledge of contemporary approaches to outcome and impact measurement
  • Strong financial acumen and budget management skills
  • Entrepreneurial mindset and experience
  • Excellent communication and interpersonal skills
  • Project management experience
  • Sound knowledge of the operational requirements of a growing NGO working in a volatile, uncertain, complex and ambiguous context
  • Able to manage multiple projects and influence people without formal authority
  • Willing and able to work flexibly in a small team and “muck in” as required
  • Comfortable working in an agile environment and willing to work collaboratively within and external to HCC

Desirable

  • Sound knowledge of the theory and practice of contemporary approaches to organisational and system change, including stakeholder engagement

Diversity and inclusion

At Health Consumers’ Council we know that strength comes from diverse perspectives being at the table. We particularly encourage applications from Aboriginal and Torres Strait Islander people, people from culturally diverse backgrounds and identities, people with disability and LGBTIQA+ community members.

To apply for the position

Send a cover letter of no more than two pages addressing the selection criteria, along with a current resume outlining your work experience, skills and any relevant education or training to Fiona Leece our recruitment partner at jobs@capitalhr.com.au clearly stating which role you’re applying for. Applications that do not address the criteria may not be considered.

  • The closing date for applications is 8am on Monday 2 December 2024

If you require any adjustments to submit your application or wish to have a confidential discussion about the role, please contact Clare Mullen, Executive Director on (08) 9221 3422 (Ext 2) or email Fiona Leece our recruitment partner at jobs@capitalhr.com.au

To see other jobs we’re advertising click here

 

Stepping forward with confidence into 2023

Suzanna Robertson, executivedirector of Health Consumers' Council, head and shoulders pictured to the left of a branded banner with logo and tagline that reads "Health Consumers' Council, working together to address barriers in healthcare".

December 6, 2022

 

HCC Executive Director – 2022 Annual General Meeting (AGM) Address

delivered 6 December 2022

It’s a privilege to have joined HCC in April this year (2022).  HCC is an organisation with a strong voice built on experience, knowledge, and a proven commitment to really listening.

We are expert at creating space and conditions for people to be share experience and perspectives.  We identify and act on opportunities to emphasise what we hear and learn, to influence decisions by government and health services, and create conditions for positive change.

We gained 14 new members in 2021/22, growing the HCC community of people involved in creating positive change to nearly 250, with more individuals and organisations joining each month.

In the coming year, we want to do more of what we know makes a difference to people’s lives. However, we operate in an environment where government funding to the community services sector has not kept up with wages growth and cost of operation increases.  This is a hard ask. As such, we are making concerted efforts to grow and diversify our funding sources:

  • Providing consumer engagement expertise through projects and consultancy paid on a for-service basis.
  • Application to government proposing funding for expanded advocacy to reach more people who have prover health outcomes – we’re hopeful but competing with many other challenges for a finite bucket of money.
  • Expanding our consulting to new markets like aged care and disability services that are seeking to engage with consumers effectively and authentically.
  • Continuing to refine the information we collect and report to demonstrate our value and impact, which is challenging when our value is so clearly linked to relationships more than transactions and therefore much harder to measure and count. But we’re committed to keep trying.

When I started here, a statement in HCC’s strategic plan struck a chord – “learning as we go.”

Such simple words, yet so frequently they strike fear into the hearts of policymakers and funders.  So, then nothing is implemented until it’s fully proven, and with governance frameworks and project schedules clearly aligned and articulated.  Creativity, innovation, and consumer voice stifled by bureaucratic process, leading to “faux design” rather than co- design.

I feel like there’s a change afoot. The commitments of key reforms like SHR, of which my predecessor Pip Brennan was a driving force of consumer voice, recognise that what’s gone before isn’t working and it’s time for something new.

Doing new and different things requires a commitment to trying, learning, refining, doing, and learning, trying, and doing some more.  At HCC we are small enough to be agile, responsive, and innovative while robust enough to be credible, reliable, and respected.  These are the qualities that will see HCC step forward with confidence into 2023.

 

 

 

Suzanna Robertson | Executive Director, December 2022

 

2022 Response to WA Abortion Reform Consultation

Link to a PDF copy of our response is here:

2022 Response to WA Abortion Reform Consultation

Re: Request for Submission and Sharing of the Abortion Reform Consultation Process

Health Consumers’ Council thanks you (Dr Robertson) for reaching out to us and requesting our engagement with this consultation on Abortion Legislation in WA. We agree that these laws are long overdue for revision and reform and we have shared the consultation with our networks.

The Health Consumers’ Council of WA unequivocally stands for the rights of all people to access free, decriminalised, safe, timely and compassionate abortion care as part of essential healthcare and support the removal of access to abortion from the Criminal Code.

Earlier in the year, we added our signature to the Australia position statement on the Roe v Wade decision in the US published by Children by Choice, and welcomed the WA Minister for Health speaking on reproductive rights and equitable access to abortion for women and people with uteruses across WA, and we have been welcoming of the safe access zone legislation.

We know that accessing free, high quality, comprehensive abortion care in WA is difficult for many people. Factors including someone’s suburb or town, finances, the availability of clear, accessible, and culturally appropriate health information, and the lack of public services all impact on someone’s ability to access the care they need. We also know from MSI Australia that First Nations’ peoples, trans and gender diverse peoples, members of migrant and refugee communities, people on temporary visas, and people with disabilities can face additional barriers to abortion care that are further impacted by age, economic status, stigma, and discrimination. We affirm everyone’s individual right to choose what is best for them. Access to abortion is not a moral or religious debate, it is a healthcare right that centers on choice, respect, and self-determination.

Health Consumers’ Council knows from our engagement with the WA community that all stated options in question 9 have been and continue to be barriers to accessing abortion, particularly for people who may be marginalised, who are young, who are Aboriginal, who are Culturally & Linguistically Diverse and who are part of the LGBTQIA+ community. We anticipate that even with the proposed amendments, there will continue to be barriers until more is done to address timely access to clinical assessments, medical practitioner’s conscientious objections, health literacy/accessibility of relevant, plain-language information, financial impact for anyone not able to access bulk-billed abortion services, rights around age & access, lack of service provision throughout the state and especially lack of remote/rural services. We also recognise and stand with current abortion providers who recognise the stated barriers for service provision as stated in question 12.

Health Consumers’ Council would also like to respond to and note some nuances around the remaining submission questions:

Question Thirteen – While we agree that the need for mandatory counselling should be removed for this essential healthcare service, we s also agree that every person should still be able to easily access timely, cost-effective counselling and support around abortion if they choose.

Questions Fourteen & Fifteen – In order to increase equitable access to safe abortion, we believe that, in the same way any other form of healthcare treatment or procedure is approved, only one medical practitioner should be needed for a person to access an abortion. We also believe that if a medical practitioner should conscientiously object, they should be required to refer on in a timely manner to someone confirmed to affirm abortion, with tight processes around this stated publicly. For example, a clear and publicly available procedure that people seeking abortion can easily access and follow confidently when advocating for their rights. We believe that abortion care is healthcare and as such, access to abortion is a healthcare right. Health practitioners should do everything in their power to advocate and uphold the choices of their patients wanting to access abortion, whether they agree morally or not.

Questions Sixteen & Seventeen – We support increasing the gestational age to 24 weeks, while also noting the nuances and community concern for issues like eugenics and Disabled People’s right to life. We believe that increases in gestational limits are much needed. Less than 1% of abortions occur at later pregnancy gestations, they are experienced people who face complex situations, and they need to have kind and compassionate care (MSI, 2022). As viability of a pre-term foetus is often debated, and no universal consensus has been reached, this can be an ethical consideration of many people in Australia. However, access to abortion is not equitable, and therefore extensions on gestational limits are vital to uphold the right to choose and access health care. If the pregnant person chooses an abortion at any stage, there should be no involvement from anyone besides the pregnant person and their healthcare provider/s, with appropriate consultations around specific, high-risk procedures. We strongly support the repeal of the Ministerial ‘Ethics’ Panel on abortion, and we advocate for clear processes to be implemented and publicly available for the proposed second medical practitioner consultation for late term abortion.

Question Eighteen – We believe that there should be no requirement for Ministerial approval for a health service to perform abortions, provided the health services are equipped to do so safely. Further, we believe that any suitably equipped health service receiving public funding should be required to provide timely, legal, high-quality, free, and safe access to abortions at any stage, for anyone living or residing in Western Australia. We also note that repealing the Ministerial involvement via approval and panels will hopefully increase the availability of free abortions and the prevalence of services providing this vital healthcare, and urge the WA Government to invest more into making abortion accessible in every way.

Health Consumers’ Council provide individual advocacy to consumers of healthcare across WA and will continue to advocate individually and systemically for equitable access to all healthcare, including access to timely, safe, free, and legal abortion, for everyone living in WA, especially those who have been marginalised. We will continue to advocate with community for improved access to information and access to reproductive rights, contraception, culturally competent care, and gender and sexuality affirming care.

The Health Consumers’ Council welcomes the opportunity to assist further in consulting with community and providing advice to policy makers to enable much needed change to abortion laws in WA.

 

 

 

We acknowledge Aboriginal and Torres Strait Islander peoples and communities as the Traditional Custodians of the land we work on, specifically the Wadjuk people of the Noongar nation, and pay our respects to Elders past, present, and emerging. We recognise that sovereignty was never ceded and commit to continuing advocacy for anti-racism in the health sector.

 

The time is now!

Last week I was lucky to be able to travel to Melbourne and participate as a consumer/Lived Experience representative in a couple of conferences.

The prompt for my trip was to attend the International Congress on Obesity (ICO) – I was part of a group of Lived Experience advocates, including some of the team from the national Weight Issues Network. This is a large conference – around 1,000 people from all over the world – that takes place every two years. This was the first year that people with lived experience were explicitly included.

As I was going to be in Melbourne anyway, I also went along to the Wild Health Digital Health summit. I was alerted to that by regular posts from someone I’m connected with on LinkedIn.

It was a massive week of learning, reflection, observation, and ideas sparking. It’ll take a while for me to make sense of everything – but here are some initial cross-cutting reflections from the two events. Some of these are reiterations of things I’ve known, others are new.

I think it’s time for a revolution in how we think about consumer, carer and lived experience input.

  • Having a consumer/lived experience perspective in the room changes the nature of the discussion
  • Speaking up when I’m the only, or one of very few, people with a consumer/lived experience perspective requires extra energy from me – I need to prepare for that and factor in recharge time
  • We need to move away from the idea that it’s ok to only have a handful of people with consumer/carer/lived experience perspectives in a room when there are hundreds of other people with professional/learned experience perspectives
  • There must be consumer perspectives at every table where decisions that impact us are being made – this includes at the highest levels of government: for example, when health service funding models are being conceived and developed
  • This mean organisations need to step up their level of investment in building capacity of people with consumer/carer/lived experience perspectives to also become “learned experience” experts – particularly in technical areas – while retaining a consumer/carer/lived experience lens.

Speaking truth to power

In many of the discussions I was in last week, I very much felt a responsibility to speak consumer and lived experience perspectives into the room.

There is currently no democratic forum in Australia where consumers, carers, and community members can hold our elected representatives to account for the state of our health and social care system.

We are required to talk to our State representatives on State-funded issues and our Federal representatives on Commonwealth-funded issues. I believe this is a massive contributor to the ongoing tolerance of a highly fragmented health and social care system. It is essential that consumer and lived experience perspectives are spoken into every discussion that impacts our health and social wellbeing – so that people can move away from “meh, what are you going to do?” to “right, what are we going to do?!”.

Time to “professionalise” the consumer/lived experience voice?

I am hugely privileged in that I have a paid job in consumer/lived experience systemic advocacy and engagement. This means I have time to connect with a wide range of people with diverse consumer, carer and lived experience perspectives, and I also have time to read (some of!) the tsunami of government and academic papers that are churned out relentlessly about how to improve our health and wellbeing, as well as the systems that support them. Reading these with a consumer lens can result in quite a different interpretation than some other lenses.

But at a very rough calculation, I’m probably one of approximately 200 people[1] across Australia who have that privilege. Compare this with 642,000 health practitioners working in their registered professions[2] in 2020 and a further 588,000 people[3] working in welfare roles. And that doesn’t take into account people working in health and social care policy/government roles.

So even if everyone of those 200 people in paid systemic advocacy roles are superstars (which I’m sure many of them are), there is no way they can be in every high level policy/agenda setting discussion where a consumer/lived experience perspective is required!

As an example: one of the speakers at the Wild Digital Health Summit commented how positive it was that there were now 32 Chief Nursing and Midwifery Information Officers across Australia. It occurred to me,

…what might it be like if we had 32 Chief Consumer Information Officers across Australia?

Building consumer leadership capacity and technical knowledge – while staying grounded in lived experience

When I was at the Wild Health Summit, I was very aware of my lack of technical knowledge of the subject. (At one point, the fabulous Heather Grain was introduced on a panel as being an expert in “fire” – which I thought was interesting, but not that relevant. I have subsequently learned that they said FHIR which stands for Fast Healthcare Interoperability Resources!)

So I’m left thinking – how do we ensure that there are enough people with both a strongly grounded consumer/lived experience focus and the technical knowledge to be able to add real value in some of these more technical discussions?

I wouldn’t start from here…

Another area that I think urgently needs more people with a grounded consumer/lived experience lens and technical expertise is that of health and social care system funding models.

At both the Wild Health Summit and the ICO event, the consequences of our current funding models for health and social care came up. Both the fee for service/Medicare funded primary care system, and the activity-based funding model in hospital services, incentivise clinicians and healthcare organisations to “do more things”.

How can we have a system that is focused on prevention of ill-health, and promotion of health and well-being, when we’re incentivising the system to deliver more healthcare?

The time is now

At a recent consumer/lived experience representative network event in WA, we discussed the need for a consumer/lived experience/community-led summit on health and social care.

If we as a community don’t take the lead on outlining our requirements for a system that truly focuses on the health and wellbeing of the people in the community, we will see the consequences of a health and social care system that is designed to meet the many and varied vested interests of people and organisations who are tasked with delivering that care, rather than the people who experience it.

Now that I’m back to my day job, I’m going to be thinking about how I can play my part in building this social movement for change.

Clare Mullen, October 2022

[1] Based on 6 states and 1 territory with a peak health consumer body, plus 3 other organisations, with an average workforce of 5 people focused on systemic advocacy; plus a Council of Social Services in each state and territory; plus national consumer/lived experience bodies

[2] https://www.aihw.gov.au/reports/workforce/health-workforce

[3] https://www.aihw.gov.au/reports/australias-welfare/welfare-workforce

[4] https://www.ipaa.org.au/latest-abs-public-sector-employment-figures-now-available/