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Communication and kindness: Using my voice as a consumer and carer

By Deb Letica, consumer representative

Life is an interesting journey that unfolds before us, sometimes leading us to opportunities that we never considered.

I have mostly enjoyed a good quality of health so far. It was not until I had some health issues such as Graves’ Disease, over prescribed thyroid medication, emergency appendicitis and discovering my much-loved younger brother had a rare genetic neurogenetic disease called a leukodystrophy that I became passionate about health.

My lived experience motivated me to become involved in the health sector, starting out as a member of the Consumer Advisory Council at my local hospital.

I attended Health Consumers’ Council consumer training to understand how the health system works and why my voice as a consumer/carer was important. I learnt how to use my experience to have a strong voice for systemic improvement in the health system.

From those small beginnings I have grown in confidence and contribute in a systemic way at a state level with the Department of Health (DoH), South Metropolitan Health Service (SMHS), and WA Primary Health Alliance (WAPHA), and on a national level in training health professionals.

I’ve learnt how the systems operate, the rigorous safety and quality standards, the NSQHC Standards, accreditation of our hospitals, and the importance of training our health professionals of the future. On a personal level I’ve learned how to better navigate the sector, how to advocate on my own behalf and on the behalf of people I care about.

Integrated care is important to me. I think that many vulnerable people fall through the gaps when they are the ones that can teach us so much more. Even when we are diagnosed with a chronic health issue trying to navigate the two systems when you’re not feeling too well can be overwhelming. In fact, it was a complete surprise to me to discover that integrated care wasn’t the norm!

Communication is one area that needs improving when it comes to consumer engagement. Consumers/carers just want CARE (Communicate, Access, Respect, Experience) for a good patient experience. The key to enabling this to happen is kindness. Kindness enables conversations to happen about things that matter to us, what’s important to us. Put us at the centre of the care team and please all communicate with each other!

Kindness doesn’t cost anything, but it can make a profound difference to others. It gives consumers and carers the confidence to ask questions, increase their understanding and health literacy, and it makes them partners in the planning of their care.

Kindness is life changing – it builds trust which then builds collaboration and partnerships. Kindness builds teams which then increases patient safety. It breaks down barriers and changes mindsets.

Kindness is the enabler for everything that matters to each of us.

I strongly encourage everyone to become involved in the health sector as a consumer/carer rep.  It’s important to give back to our community, to make the world a better place for us all.

Deb Letica is in a hopsital room, holding a file and speaking to another woman

Photo of Deb Letica by SMHS

*This article was originally published in Health Matters 

Patient Experience Week 2018

Patient Experience Week is a global event to celebrate the people who impact on the patient experience every day. It is held in the last week of April each year. This is our third year of running Patient Experience Week, and we are mixing things up a little. Instead of holding all the events in April, we held three events in April and will hold a fourth in November. We want to ensure that Patient Experience is not just a day, but a movement!

The uniting theme is kindness. Our 2018 Patient Experience logo references fabric. Fabrics come in all kinds of textures and colours, thicknesses and patterns. Some are traditional, others are contemporary. Some are as delicate as gauze while others are hard wearing and durable. Weaving is an integral part of fabric and we see our society as being woven together through our engagement with each other. Each engagement provides an opportunity to weave our fabric more strongly and more beautifully and to create a society where the warp and the weft continue to hold each other together.

APRIL PATIENT EXPERIENCE WEEK WRAP-UP –

See also our special Patient Experience edition of Week Health Matters

…and stay tuned for videos, audios and photos courtesy of our kind volunteers, Hope and Robert Klienfelder. We will post them once they are edited and good to go.

Beyond the Stethoscope

Friday April 27th, 7-9am

HCC partnered with Child and Adolescent Health Service and the WA Primary Health Alliance to host a Patient Experience Week Breakfast. This event brought together clinicians, health professionals, consumers, carers and community to hear from Lucy Mayes, the author of Beyond the Stethoscope.

Gathering of Kindness

Friday April 27th, 9.30-1.30

HCC and Child and Adolescent Health Service celebrated Patient Experience Week with a mini-Gathering of Kindness. Dr Catherine Crock from the Hush Foundation, and co-founder of the Gathering of Kindness attended via video-conference.  Lucy Mayes, Patient Opinion’s Michael Greco, and World Kindness Day’s Michael Lloyd Wright convened a through provoking panel discussion on what could we do to create a kinder health system.

Health Consumers Council Excellence Awards

Friday April 27th 2-4pm

We closed out the day with the announcement of our Health Consumer Excllence Awards.

Tuesday 13th November 2018 – Achieving Equity in the Patient Journey 

On Tuesday 13th November 2018, World Kindness Day,  we held a special event with a focus on achieving equity in the patient journey for people from new and emerging communities and those for whom English is not a first (or second, or third) language.

Patient Experience Week 2018

World Kindness Day, November 13

Patient Experience Week is a global event to celebrate the people who impact on the patient experience every day. It is held in the last week of April each year. This is our third year of running Patient Experience Week, and we are mixing things up a little. HCC, in partnership with WA Primary Health Alliance, Ethnic Communities Council of WA and Multicultural Services Centre, held a special World Kindness Day event on 13th November. It is part of HCC’s Patient Experience Week events for 2018.

This partnership World Kindness Day event aims to promote a culture of kindness as a vehicle to deliver a more equitable healthcare. Kindness plays a huge role in improving the patient experience, thus improving health outcomes. This event focuses on Culturally and Linguistically Diverse (CALD)  members of our community who experience many barriers in accessing health services.

Health service providers and health consumers need to have a shared understanding of what kindness means in healthcare. The act of kindness can look different to people of non-English speaking backgrounds. Health service providers from the public, private and non-government sector including interested community members are invited to the event.

April 2018 Events Summary

The uniting theme across all our Patient Experience Week 2018 events is kindness. Our 2018 Patient Experience logo references fabric. Fabrics come in all kinds of textures and colours, thicknesses and patterns. Some are traditional, others are contemporary. Some are as delicate as gauze while others are hard wearing and durable. Weaving is an integral part of fabric and we see our society as being woven together through our engagement with each other. Each engagement provides an opportunity to weave our fabric more strongly and more beautifully and to create a society where the warp and the weft continue to hold each other together.

Beyond the Stethoscope

Friday April 27th 2018, 7-9am

HCC partnered with Child and Adolescent Health Service and the WA Primary Health Alliance to host a Patient Experience Week Breakfast. This event brought together clinicians, health professionals, consumers, carers and community to hear from Lucy Mayes, the author of Beyond the Stethoscope.

Gathering of Kindness

Friday April 27th 2018, 9.30-1.30

HCC and Child and Adolescent Health Service celebrated Patient Experience Week with a mini-Gathering of Kindness. Dr Catherine Crock from the Hush Foundation, and co-founder of the Gathering of Kindness attended via video-conference.  Lucy Mayes, Patient Opinion’s Michael Greco, and World Kindness Day’s Michael Lloyd Wright convened a through provoking panel discussion on what could we do to create a kinder health system.

 

Health Consumers Council Excellence Awards

Friday April 27th 2018, 2-4pm

We closed out the day with the announcement of our Health Consumer Excellence Awards.

 

Compassionate Care Nominations

Dr Adam Nuttall | AHG Super Clinic Midland

Dr Adam Nuttall is a knowledgeable and compassionate GP. One consumer who shared their experience when nominating said “In 2014, Dr Nuttall saved the life of my daughter, by diagnosing her with a massive Rosette-forming glioneuroma tumour of the fourth ventricle, when no other health professional had the ability nor the knowledge to do so. We believe that Rebecca would not be alive today, if it weren’t for Dr Nuttall’s diagnosis, advice and follow up.” The nominator said that as well as being highly skilled, he is also compassionate and understanding.

Tina Tuira-Waldon | Te Urupu IMPI Inc

Tina is of NZ Maori descent and wishes to acknowledge the custodians of the land, the Wadjuk-Noonga peoples.

Tina said “I have been the support person for those seeking help and those that are grieving due to suicide. Whether it’s supporting them to the hospital or service provider for medical attention or counselling sessions. At least there is someone that they can count on to ensure their health and wellbeing is looked after, even if they can’t understand it themselves. It’s a ‘guiding hand’ at least.

“I have had to use Intervention skills when someone is thinking of suicide. But I keep going, encouraging people that life is worth living even if they feel it isn’t. I say ‘take one moment at a time, and one day at a time, it will get easier for you as time goes by’”.

Dr Judith Thompson | Bodylogic Physiotherapy

Judith is a Specialist Continence and Women’s Health Physiotherapist (as awarded by the Australian College of Physiotherapists in 2008) and is a lecturer on the post graduate Continence and Women’s Health physiotherapy course at Curtin University. Judith specialises in the treatment of bladder and bowel incontinence in men and women, bladder, uterine and bowel prolapse problems, as well as pre and post-natal disorders, and pelvic pain management.

One consumer who shared their experience when nominating said “Judith goes above and beyond her job role to deliver exemplary care. She sacrifices personal time to fit me and others in need into her day. She is truly dedicated to her vocation. She has seen me through a very challenging time in my life and been a pillar of strength and shining light in a time where other health professionals were not accessible”.

Dr Andrew Leech | Queensgate Medical Centre

Dr Andrew Leech is passionate about family health and the integral role of a GP. He believes that GPs have a unique opportunity to see patients regularly, see their concerns from another perspective, and work through the impact those problems can have on each individual member of that family.

One consumer who shared their experience when nominating said Dr Leech was an amazing GP who has “time after time gone above and beyond the call of duty for our kids and family, showing such dedication to his job and patients”.

Dr Nathan Highton | Royal Perth Hospital – Emergency Department

Royal Perth Hospital Emergency Department’s Dr Nathan Highton is recognised for continuing to go above and beyond his call of duty, and making his patients and their family members or carers feel comfortable and well cared for during what can be a stressful and sometimes unsettling time.

One consumer who shared their experience when nominating said Dr Highton was a credit to the hospital. “The care, professionalism and communication skills he has are second to none.”

Kelly Holmes | Cardiac Liaison Nurse at Perth Children’s Hospital

Kelly is the Cardiac Liaison Nurse for Perth Children’s Hospital. She always makes the effort to go above and beyond for patients, and is described as empathetic, caring, understanding and amazing at her job.

Kelly said “One of my most precious gifts in this role is to provide updates throughout the surgery itself, I become the family’s eyes and ears when they cannot be with their child during the most stressful time. I see this role as extremely important and provide honest updates throughout the surgery and do not hide any information from our families. It will be myself that will inform families that all is going well but equally if all is not going well. This is enabled by the trust that is built with the family in the lead up to the surgery and preparations”.

Kalamunda Hospital Palliative Care nursing team

Kalamunda Hospital has seen focused growth in its specialist inpatient palliative care service during its 40 years of operation. In the last few years alone, the palliative care ward has gone from a four bed unit to a 20 bed unit. Clinical Nurse Specialist Cheryl Potter said the service provides comprehensive specialist medical, nursing and allied health care based on the unique needs of patients, carers and families when facing a life limiting illness.

One consumer who shared their experience when nominating said the nursing team always put the patient first. “They go above and beyond and treat every patient with respect and dignity at the worst time of their life. They showed such compassion and care.”

Joanna McIntosh | Team Leader of the Complex Care Coordination service at Armadale Health Service

Jo’s background is in physiotherapy and she has worked in several hospitals across Perth and England including Armadale Health Service, Fremantle Hospital, Rockingham General Hospital, Kettering General Hospital and Innsbrook Hospital. She is an advocate of patient-centred care who continually strives to improve care by strengthening the relationships, partnerships and collaborative care with other community-based services.

“I worked in the Armadale Health Service Emergency Department for 7 years and felt that I made a real difference to patients on their worst day. I could help improve their pain physically, support them emotionally and help them as they were either discharged home or admitted to hospital. Over the years, I realised I could make an even bigger difference to patients and followed my passion of improved communication, interaction and shared care planning with primary health services and GPs. Incorporating my values of kindness, compassion and fairness to everyone, in combination with my determination in the pursuit of excellent patient care, especially to those most vulnerable, has led me to a role I am incredibly passionate about.”

Linda Kuuse | Senior Coordinator of the Stirling Community Care Day Clubs

Linda Kuuse is the Senior Coordinator of the Stirling Community Care Day Clubs in the City of Stirling. She is praised as an outstanding mentor and leader who works together with her staff, clients and carers to deliver optimal health outcomes for the clients she sees on a daily basis, and the wider community.

“She has worked tirelessly to implement a culture change within the environment which has provided some assurance of sustainability of the programs which were previously under threat. During unsettling times, she has been a pivotal support for staff and members, using effective performance management skills to not only retain existing staff members, but to further develop staff skills to provide an enhanced model of care.”

Michelle Baines | Clinical Nurse Specialist at the Kalamunda Palliative Care Unit

Michelle has been praised for consistently showing high standards of quality and compassionate care to patients and their families. She has previously done some amazing work in the Armadale Rehabilitation and Aged Care Ward in facilitating a number of initiatives to prevent patient falls and providing education to staff.

“Michelle has recently undertaken the Clinical Nurse Specialist role up at the Kalamunda Palliative Care Unit where her professional, compassionate and caring efforts have been recognised by both consumers and staff of the community hospital. Michelle has taken her new role in her stride and identified a number of initiatives to improve the overall patient and family experience across the Palliative Care Unit. This includes communication workshops for all staff to attend covering subjects like understanding triggers and escalation, and strategies to improve communication by really putting yourself in others shoes.”

Naomi Pettersson | King Edward Memorial Hospital for Women – Physiotherapy Department

Naomi is a physiotherapist with specialised skills and knowledge in women’s health and neonatal physiotherapy, providing expert care to help improve
quality of life for women.

One consumer who shared their experience when nominating said “Naomi is the most empathetic, kind and compassionate person I have been lucky enough to receive treatment from. From the moment I walked into her room she immediately made me feel at ease, and she has continued to make me feel comfortable at every appointment. She has made me feel like no question is too dumb, she truly listens to my suggestions, and constantly encourages me to listen to my body, reiterating that I know my own body best. I can’t thank Naomi enough for always looking at me as a whole person, for making me feel seen and heard, and for always treating me with incredible kindness and compassion”.

SJOG Endoscopy Unit

The Endoscopy Unit at St John of God Murdoch Hospital performs, on average, 240 procedures per week.

One consumer shared their experience when nominating said the team helped alleviate her stress and address her concerns before a procedure. “I received such thoughtful and compassionate care – I had full confidence in this friendly and professional team.”

RPH Haematology & Oncology

One consumer who shared their experience when nominating said “I am a cancer patient and attend appointments regularly at this department. I am an Aboriginal Elder of this area, being 60 years of age. Over the time I have attended the reception area of haematology and oncology, I have been observing the staff at reception. They are very, very committed to their work”.

Teresa Togno | Mental Health Recovery Worker at Chorus

Chorus is an organisation that offers support, mentoring, and a future for people with mental health illnesses. Teresa has been praised for going out of her way to make sure clients feel listened to, feel supported and feel safe.

“She makes sure contact details of organisations are given to clients in case they need support after hours, she attends as an advocate where needed. She turns up early for work if a client has been unwell and may need extra support or some inspirational words to get through till psychs/specialists open at 9am. Many clients see her as their first call of direction/support and she always has good things to say, very pleasant happy personality.”

Kieran English | Stroke Rehabilitation – Royal Perth Bentley Group

The Bentley Stroke Rehabilitation Unit (Ward 5) provides exceptional care for patients requiring rehabilitation following stroke or neurological injury for younger adult patients requiring rehabilitation. The nursing team work collaboratively with all multidisciplinary members, and include in their team both the patient support staff and ward clerks to provide holistic, seamless care from the point of admission to the point of discharge, facilitating often complex barriers to enable patients to return to their home in the community in some instances which would appear unachievable during the planning process.

Carli Beange | Clinical Midwife – Armadale Kalamunda Group

Carli has been recognised by patients and their families on numerous occasions for her dedicated and professional ongoing care and commitment to her clients. She has been described as caring and supportive, specifically when things didn’t go as planned and patients became distressed and anxious.

Carli’s patients often describe her as amazing and awesome, saying she goes above and beyond in her role. They say they have great respect, appreciation and admiration for her and the significant role she has played in their lives. She has been able to help women feel comfortable and confident becoming first time mothers, being the perfect balance of assertive and helping to realise realistic expectations.

Carissa Wright |  Mental Health Advocate at Our Voice 4 Change

Carissa Wright is an active mental health advocate and lived experience speaker. In addition to her speaker role with Consumers of Mental Health WA, Carissa has been involved with a range of mental health organisations, including speaking for Suicide Prevention Australia. She is also a contributing author for one of the leading mental health sites in the world.

Her expertise is sharing her experience with Borderline Personality Disorder. She is currently involved in co-designing a BPD program in Perth.

Fiona Stanley Hospital Neonatal Unit (SMHS)

The team in the Neonatal Unit at Fiona Stanley Hospital has been praised recently by consumers for their high level of care and for going above and beyond for their patients. They have been described as being supportive, kind, respectful and cooperative. One consumers said their care “had a profound effective on two new grieving parents” and another said they “gave such warmth and love to our premature twins, giving us, as parents, the strength to cope with the stress”. Consumers thanked them for their friendly smiles and kind words.

Compassionate Care Award 2017

Compassionate Care Award

This award is to acknowledge people providing direct patient care who demonstrate compassion. We are looking for compassionate individuals working in any capacity in the health service or organisation. We are also looking for compassionate teams of health care providers who demonstrate effective multi-disciplinary care.

 

And the Winner is…

Pictured from left to right: Hon. Alanna Clohesy, Fatima Edward and Karen Bradley.

Fatima Edward

Fatima is an Assistant in Nursing (AIN) in acute geriatrics and subacute ortho-geriatric care at Royal Perth Hospital. Fatima consistently receives positive feedback from both her patients and her colleagues. Fatima cares for a lot of patients experiencing delirium or dementia and she strives to provide these patients with a high standard of care, maintaining their dignity and rights whenever possible. Fatima has a calm and caring approach to her patients, which sets them at ease. She acknowledges the patient as an individual, and often finds out what their personal interests are, so she can better engage with them.

Fatima has been nominated for this award for demonstrating an ongoing commitment to compassionate care by consistently going above and beyond her duties. “Many nursing staff on the ward have noted that shifts often run smoothly when Fatima is on duty. She helps out wherever she can, and we are constantly impressed by her ability to seemingly be everywhere to lend a hand. Fatima ensures that patients requiring special attention are never left unattended.”

 

Finalists are…

Kim Ashton

Kim was born in Perth in 1982. He lived in Perth until he turned 20, when he decided to joined the Army. Kim spent the following 11 years with the Army travelling the world. After leaving the Army 2013 his passion for fitness and working with people led him to become a Personal Trainer. While training people he also ran his own business as a handyman and landscaper. In November 2015, he was told about a job available as a Security Officer in the Health Services. In July 2016, he began working as a Security Officer and has enjoyed every minute of it. Having the opportunity to work with a variety of people including doctors, nurses, mental health patients, every day patients, elderly people and the general public, is and will always be a pleasure.

 

Kim has been nominated for this award for going out of his way to assist a carer and her mother while visiting Sir Charles Gardiner Hospital. “His kindness moved me to tears. My mother was also equally touched at Kim’s spontaneous gesture of care, kindness and compassion. It made our day!!! It took three weeks to track down Kim so I could nominate him for this award.”

How you can help support quality healthcare for all

For some time, I have been thinking about people across the globe that access healthcare (health consumers). Unfortunately, most are not able to access the same quality of healthcare available in Australia. I wondered how we in the ‘Lucky Country’ could share our good fortune with others and help support quality healthcare for all.

 

Help support quality healthcare for all

To help support quality healthcare for all health consumers, Health Consumers’ Council will nominate each year a selected healthcare charity organisation located in Australia and overseas. We will provide those who attend our functions the opportunity to donate a gold coin go towards the nominated ‘good cause’. We hope you will support us in this endeavour to help improve healthcare for those less fortunate than ourselves.

 

Hamlin Fistula Ethiopia

In 2017 we are collecting donations for ‘Hamlin Fistula Ethiopia’. ‘Hamlin Fistula Ethiopia’ was founded in 1974 by husband and wife, Dr Reg Hamlin OBE and Dr Catherine Hamlin AC. I first came across the ‘Hamlin Fistula Ethiopia’ in the 1990s and have since read more about it, including in the book, ‘The Hospital by the River’, by Dr Catherine Hamlin. (Pictured: Catherine Hamlin Co-founder of Hamlin Fistula Ethiopia)

 

Catherine and her late husband Reg initially travelled to Ethiopia (as doctors) with the intent of staying for three years. Originally from Australia they dedicated their lives to the women of Ethiopia. Dr Catherine Hamlin turned 97 in January and she still lives in her home in the grounds of the Adis Ababa Fistula Hospital.

 

Catherine and Reg are part of my collection of heroes, people I admire for the contribution they have made to the lives of others and therefore the world. Today we constantly look at life through the media lens, making the world seem almost devoid of genuine acts of kindness. So, it is even more important to recognise genuine heroes like Catherine and Reg.

 

The Hamelin Clinic also has an office in New South Wales and I encourage you to visit their website here to learn more about this wonderful couple, their staff and women the Clinic heals.

 

Louise Ford | Consumer & Community Engagement Manager

Vision, Purpose and Values

Vision

Equitable, person-centred, quality healthcare for all West Australians.

Purpose

To increase the capacity of all people to influence the future direction of  health care and to make informed choices.

Values

Respect: valuing diversity and seeking everyone’s contribution.
Respect is the foundation we build our relationships on.
Kindness: considering other people’s world views, experiences and emotions.
Kindness and listening to validate can have far-reaching positive effects
Equity: advocating for the whole community
We challenge ourselves to look beyond stereotypes and meet people where they are
Working together: collaborating to achieve positive outcomes
We can go further and faster in partnership
Integrity: aligning actions with our values and measuring outcomes to continuously improve
We reflect on what we do and why we do it. We transparently report on our outcomes.
Empowerment: sharing knowledge and resources to support informed choice and positive change
We believe in informed choices and the importance of lived experience to drive positive change

 

 

 

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