Search Results for: health information

Connecting and communicating consumer perspectives on cancer care in WA

 

Has cancer affected your life – currently or in the past? A desire to connect with others who have similar lived experiences is the drive behind the upcoming community conversation welcoming consumers affected by cancer in WA. Health consumers’, carers, family, and community are invited to join “Connecting and communicating consumer perspectives on cancer care in WA“.

Be part of the conversation to discuss progress on the 2020-25 WA Cancer Plan. Discuss opportunities for future consumer and community connections.

Date and time

About this event

The WA Cancer Plan guides cancer care in WA: find out about progress on the 2020-25 plan and discuss opportunities for future consumer and community connections

Health Consumers’ Council (HCC) WA and the Consumer and Community Involvement Program (CCIP) are hosting this community conversation for people with experience of cancer – either for themselves, or for a loved one.

In this session, consumer representative Susannah Morris, the HCC WA consumer representative in cancer involved in work relating to the development and now implementation of the WA State Cancer Plan, will give an update on work so far as background for the conversation. Cancer care is delivered in the states and so state plans provide important context that guides care and affects consumer experiences and outcomes. Unlike some other jurisdictions, WA does not have a readily identifiable network of cancer consumers: we are fragmented between our cancer types and our treating locations and so this community conversation provides a space for us to come together.

This will be an opportunity for attendees to discuss their interest in people with experience of cancer in WA connecting with each other in order to influence the scope, design and delivery of health services and health research in relation to cancer and survivorship.

(NB This information session is being hosted independently by HCC and the CCIP to provide an opportunity for people with experience of cancer to connect with each other and learn about work relating to cancer care and services in WA. This is not a Department of Health event.)

This conversation will be held online, via Zoom – details will be sent out in the week before the session.

 

About the organisers

We are (Health Consumers’ Council WA) an independent charity that exists to support and promote consumer, carer and community perspectives in the WA health system.

The Consumer and Community Involvement Program (CCI Program) is an activity of the Western Australian Health Translation Network (WAHTN). The CCI Program (CCIP) supports consumers, community members and researchers to work in partnership to make decisions about health research priorities, policy and practice with the aim of improving health outcomes and ensuring community involvement becomes standard practice.

BACKGROUND: Cancer Care and the WA Cancer Plan, launched 2020

The WA Cancer Plan was released in February 2020 setting out the next five years of strategy in relation to cancer services. This work was undertaken by the WA Department of Health, and the Health Consumers’ Council supported the project through running a community survey and developing consumer videos reflecting consumer patient journey experiences. A summary of survey results is available here. The launch event featured a moving and articulate presentation from Advisory Group member Susannah Morris, who ensured the consumer voice was at the heart of the plan as much as possible.

(An abridged version of Susannah’s speech is in Health Matters (pages 10-11: March 2020 issue) on the Health Consumers’ Council (WA) website, titled “A new plan for cancer
care in WA“)

REGISTER FOR THE COMMUNITY CONVERSATION HERE:

https://bit.ly/WA-Cancer-Plan-Community-Conversation-Consumer-Perspectives

(LinkedIn: for Dr Susannah Morris)

What the HCC Engagement team have been up to in Djilba (August-September) 2022

It’s been a busy few weeks for our team – here’s a selection of some of the meetings and events we’ve been part of…

  • Meeting with the WA Council of Social Services to discuss work happening on partnership in relation to the WA Sustainable Health Review (SHR)
  • Meeting with Helping Minds to discuss shared interests
  • Promoting consumer perspectives as part of the East Metropolitan Health Service Obesity Prevention Strategy Implementation Committee
  • Meeting with East Metropolitan Health Service to discuss ways of getting consumer input to inform plans for a weight management clinic
  • Promoting consumer perspectives as part of the East Metropolitan Health Service Weight Management Clinic model of care project reference group
  • Hosting a community conversation about the WA consultation on Assisted Reproductive Technology and Surrogacy Acts to inform HCC’s submission on this topic
  • Meeting with the consumer organisations in other states and territories to discuss how we can have more of a state consumer voice on national issues – such as primary care reform
  • Meeting with the Department of Health to discuss our new contract arrangements (which will kick in from 1 January 2023)
  • Meeting with the Department of Health to understand the state position on Long COVID
  • Attending the launch of the Consumers of Mental Health WA launch of their new individual advocacy service for people with psycho-social disability
  • Call with Cancer Council WA about running consumer focus groups
  • Taking part in cultural responsiveness training
  • Hosting two consumer forums – funded by the WA Department of Health – on the experience of multicultural men and multicultural people living regionally in relation to cancer care and information
  • Taking part in the Care Opinion national advisory group
  • Meeting with the team at the National Justice Project about the next steps with the Aboriginal Patient Advocacy Training
  • Promoting consumer perspectives at the Emergency Access Reform Program Control Group
  • Delivering our first fully virtual consumer representative training workshop
  • Meeting with the Department of Health to discuss the work on SHR Recommendation 23 in relation to clinical and consumer leadership
  • Meeting with the WA Primary Health Alliance to support consumer involvement in the development of a model of care for chronic heart failure
  • Meeting with the WA Country Health Service to help them access consumer-facing materials about engaging with health services
  • Meeting with the Department of Health about sexual health and blood borne viruses
  • Meeting with Consumer and Community Involvement Program (CCIP) and a consumer leader to discuss opportunities to connect consumers, carers and community members with lived experience of cancer – planning a community conversation in October
  • Meeting with the Department of Health to discuss communities of practice
  • Taking part in an online forum on COVID Antivirals
  • Attending the launch of the refreshed Live Lighter campaign
  • Promoting consumer perspectives in a meeting with the WA Enrolled Nurses Cooperative hosted by Community Skills WA
  • Hosting a community conversation about the reality of “living with COVID” with Professor Grant Waterer
  • Meeting with the Department of Health about their plans to involve consumers in the development of a WA Safety and Quality strategy.
  • Meeting with Community Legal WA and the WA Financial Counsellors Association to discuss shared interests and possible collaboration opportunities
  • Meeting with People With disability WA to discuss the Empowering Health Consumers With Disability training we are running together
  • Attending Clinical Services Redesign Methodology training with other people involved in the Emergency Access Reform program across WA Health
  • Meeting with Asthma Australia to discuss shared interests
  • Hosting a cultural sensitivity training with a private hospital
  • Hosting an online workshop on Acknowledging Country (find out more about these workshops and sign up at https://www.eventbrite.com.au/e/acknowledging-country-tickets-414587019937
  • Presenting – alongside two consumers – on the lived experience of overweight and obesity to 3rd year medical students at Curtin University
  • Meeting with the Department of Health and the WA Primary Health Alliance about the work on the WELL Collaborative (WELL = Weight Education and Lifestyle Leadership)
  • Talking on the ABC Perth morning show about the implications for consumers of the one-off public holidays on 22 September

This is only part of the work HCC does. At the same time, our Advocacy team have been responding to individual consumer enquiries every day providing both “in the moment” support, and also longer term support and advice to consumers who’s enquiries require involvement over a longer period of time.

 

Engagement Officer, L4 – full-time

Can you help us build a social movement in health?

At Health Consumers’ Council, we believe in people power. Through our engagement and partnerships work, we are building a social movement in health – where the people who use health and healthcare services, and the people who work in them, can work together to identify priorities for improvement and make positive and lasting change.

We’re looking for a can-do person to join our team and help us extend our reach to more people in the community who use health and social care services, as well as reaching more of the people who work in them.

Health Consumers’ Council WA

The Health Consumers’ Council of WA (HCC) is an independent community-based organisation which was established in 1994, representing the consumer’s voice in health policy, planning, research, and service delivery. We stand for equitable, person-centred, quality healthcare for all West Australians.

Three people sitting at a desk looking towards the front of the room. In the background is an Aboriginal flag and a Torres Strait Islander Flag, and a whiteboard with post-it notes

About the Role

This role is based in the Engagement team and is for an initial period of up to 2 years with the possibility of extension. As well as managing your own projects and activities, you will also provide support to other members of the Engagement team including the Aboriginal Engagement Coordinator, the Cultural Diversity Engagement Coordinator, the Marketing and Communications Coordinator and the Deputy Director.

This is a full-time role based between our offices in Mount Lawley and your home. For the right person, we may consider part-time options, but ideally we’re looking for someone who can be available to work 5 days/week.

What We Offer

  •  A friendly and supportive team that’s making a tangible difference in the community
  • A competitive not-for-profit annual base salary – Level 4 Social Community Home care and Disability Award ($39.26/hour + super)
  • Salary sacrifices up to $15,900 per annum
  • An engaging and flexible working environment
  • The opportunity to work on a wide range of projects and to learn practical skills on the job.

What you’ll be doing

This is a mixed role with lots of variety so you’ll get the chance to work on a range of projects and activities within the Engagement team’s portfolio including:

  • Delivering training and presentations to a range of groups including consumers, carers, community members, people with lived experience and staff working in government, health care and social care
  • Planning, organising and delivering events and workshops – including virtual, face-to-face and hybrid (both virtual and face-to-face)
  • Analysing feedback from events and workshops and creating reports to share this information with a range of stakeholders
  • General engagement project coordination including
  • preparing, monitoring and reporting on project plans
  • liaising with project stakeholders to ensure tasks and deliverables are achieved in line with project plans
  • monitoring and reporting on project budgets
  • responding to enquiries from a wide range of stakeholders about engagement and partnership practices and programs, including providing advice
  • creating and distributing engaging content for a range of platforms including social media, website, email, MS Teams and publications
  • helping to recruit and support volunteers to support HCC’s activities.

What you’ll need to succeed in this role:

  • Excellent literacy and writing skills and strong communication and interpersonal skills
  • Experience in a people-facing role such as customer service or stakeholder engagement and a love of connecting with people
  • Experience in organising meetings, workshops or events
  • Collaborative working style with an ability and willingness to muck in with other team activities as required
  • Be able to work autonomously and within deadlines, including managing a number of projects at the same time
  • Proactive, reliable and flexible attitude and comfortable working in a fast-paced adaptive environment
  • Highly proficient general office IT skills for day to day office activities including the ability to quickly learn to become very comfortable using MS Word, MS Teams and MS Powerpoint – and using MS Excel for organising and sorting data – and comfortable learning new IT skills quickly and with minimal input as required

If you’ve had experience of stakeholder engagement or working with volunteers that would be great. And if you have other skills and experience that you think makes you a great fit for this role, please tell about those too!

Diversity and inclusion

At Health Consumers’ Council we know that strength comes from diverse perspectives being at the table. If you require any adjustments to submit your application, we invite you to get in touch with Clare Mullen via email clare.mullen@hconc.org.au or call reception on 08 9221 3422.

Please read the attached position description for more details – please refer to the criteria in your application.

To apply for this role, please send us an email (to info@hconc.org.au) and a copy of your resume and tell us:

  • What is it about your professional or life experience that makes you a good fit for this role? (Please make it clear how these relate to the tasks and criteria in the position description in your response.)
  • Why do you want this position?
  • How do you see yourself helping Health Consumers’ Council to deliver on our plans?
  • What do you look for in a working environment that can help you thrive?

Next Steps

To be considered for this opportunity please email applications to info@hconc.org.au by no later than 9am on Tuesday 27 September 2022.

Emergency Access Reform

In May 2022 the Premier of WA launched a package of reforms to improve emergency care in WA. This included setting up a Ministerial Taskforce on this issue, led by the Minister for Health. (Read more about that announcement here: https://www.mediastatements.wa.gov.au/Pages/McGowan/2022/05/New-252-million-dollar-reform-package-to-improve-WA-emergency-care.aspx)

HCC has been funded by the WA Department of Health to establish a consumer/carer/community/lived experience network of people with an interest in relevant areas to this program.

Click here to sign up to this consumer, carer, community, lived experience network to receive regular updates about this work, including opportunities to be involved

Clare Mullen, HCC’s Deputy Director is a member of the Program Control Group.

Areas of focus

This program is very wide-reaching. It’s about how people arrive at, move through, and move out of a hospital setting. It is looking at a range of options including identifying clinically appropriate alternative treatment options as people enter the health service – meaning people who don’t need emergency treatment don’t have to wait unnecessarily in an ED waiting room, or in an ambulance outside the hospital. It could also include supporting timely discharge from hospital to other appropriate services when someone no longer needs specialist medical treatment.

It covers how someone might end up at an Emergency Department (ED), how they move from the ED to a ward (or leave the ED to go home), and how they get discharged from the hospital eventually.

The focus on people leaving hospital is to make sure that people aren’t staying in hospital any longer than they need to BUT that if people need additional support or care, that this is in place before they leave the hospital.

There are particular groups of people whose experience is the initial focus for this work:

  • people living in residential aged care facilities who need healthcare
    • often people in this situation come to ED by ambulance, but may not need Emergency care. The program will be looking at how to make sure people get the care they need in the right part of the system for them.
  • older people who may have come to the hospital from their own home, but who will be discharged into an aged care facility because they need more support than can be provided for them at home
    • sometimes people may have discussed this possibility with their family already, but in many cases that’s not the case – so how can people and their families get the support they need, and make sure that they are able to be transferred out of hospital when they no longer need hospital-level care – but do need some kind of care
  • people with disability who may need additional support to be able to return to their home after a hospital stay

Health services are looking at a range of options – including virtual emergency medicine and other alternatives to emergency departments – to try to make sure that the people who really need the intense level of healthcare that is provided in an emergency department can access that care promptly.

HCC is particularly keen to ensure that patient experience measures are included as key indicators alongside some of the measures the track the way someone makes their way through the system and how quickly that happens. We’re also pushing for mechanisms to be put in place to track how any new approaches to providing care are impacting on health outcomes and patient safety.

Opportunities for consumers to be involved in this work

We held a community conversation in February 2023 on this topic with the Department of Health team so that consumer, carer, community and lived experience representatives could find out more about the work that is planned as part of this program.

We heard from Dr Shelley Campos, Clinical Lead for the program, and Hannah Moss, Program Manager.

Picture of Shelley Campos, Clinical Lead, Emergency Access Reform program and Hannah Moss, Program Manager

For more information about this project, email kieran.bindahneem@hconc.org.au

[Last updated 05/04/23]

ID: stethoscope on a desk

Aboriginal Patient Advocacy Training

Health Consumers’ Council has partnered with the National Justice Project and The Aboriginal Health Council of WA to develop some training for organisations and workers who work with Aboriginal people, and Aboriginal community, to help support their clients and family, friends and community who are dealing with the health system.

The inequity and injustice that can confront Aboriginal people in our health system can lead to poorer health outcomes and health advocacy plays a big part in addressing these issues.

This training will help people gain a better understanding of the barriers and enablers for Aboriginal people in our health services and systems, a deeper understanding of health rights and the important role of health advocacy.

The training that we have developed focuses on:

  • Increase your understanding the barriers that can prevent Aboriginal people accessing equitable care
  • Developing a better understanding of the health system
  • Gaining a deeper understanding of health rights
  • Developing health advocacy skills so that you can better support Aboriginal clients
  • Learning about various complaints mechanisms and avenues for people
  • Self Care and Vicarious Trauma

If you would like to register your interest for future sessions, please contact Tania Harris, Aboriginal Engagement Coordinator, on tania.harris@hconc.org.au or 9221 3422.

Resources

Handouts – Mental Health Rights

Frequent issues and questions

FAQs for Urgent Health Issues
FAQs for Urgent Mental Health Issues

 


How can I track my hospital appointments and referrals?

You can call Outpatient Direct on 1300 855 275

Or download the ‘Manage My Care’ app here: https://www.healthywa.wa.gov.au/Articles/J_M/Manage-my-care.  The app allows you to track your referrals and their status, see your upcoming appointments and their details, and allows you to change, accept or decline.  You can add family members to the app as well!  This app and number are for public hospitals only.

 

Alternatively, if your appointment or referral is for a private clinic, hospital or specialist, you can call the service directly and enquire about the status of your referral or the date and time of your appointments.


How can I request a refund or waiver of fees?

The easiest way to request a refund is to contact the service provider directly in writing or by calling the service, making sure you include the invoice number, amount and reason you would like a refund or waiver.  Sometimes it may take some time for an outcome to be reached, and you can request that the account be put on hold until the outcome is decided.

Pathology clinics and St John of God Ambulance have dedicated billing and accounts phone lines that you can search.  Sometimes bills may be reduced or a payment plan offered, and sometimes the request may be declined.  Often services will ask if the consumer has a concession card or other financial stress that will make it difficult or impossible to pay.  Feel free to use the following template in your request for a refund:

Refund Request Template Letter

1. Example of refund request

2. Example of refund request


How can I get support in appointments?

Sometimes appointments with health service providers can be daunting, and it can be difficult to keep track of the conversation while remembering to ask your questions or gain clarification. In these situations, there are several support options available to you:

  1. You are able to bring a support person to your appointment (family member, friend, support worker).  This is often the best way of feeling supported in your appointments, as you have moral and emotional support, as well as a second pair of eyes and ears to take in what is being discussed.
  2. You can write down a list of your questions beforehand, and take it in with you to your appointment.
  3. You can request a written report of your appointment from the health practitioner which details the key points covered.
  4. You can ask that a sentence or piece of information be repeated if you are unsure of its meaning.
  5. You can take notes while in your appointment, so that you can keep a record of the things discussed.

If you are having a procedure done in an appointment and you would like support, you can request a chaplain or extra support person to sit with you and provide emotional support during your procedure.  If this is something you may need, you can also call ahead of your appointment to request someone be available during your appointment.

Pain and Stimulant medication FAQs

Please click on the button below to download a list of FAQs and relevant information.

FAQ list and responses for Schedule 8 medications

How do I get a second or further opinion?

It is your right as a patient in the healthcare system (physical health, and voluntary or involuntary mental health) to have a second opinion regarding your care.  You may want a second opinion because you’re unsure about your doctor’s diagnosis, medical advice or treatment plan. You might want to consult a doctor with more experience in your condition. Or you might just be looking for a better doctor-patient relationship. Not every doctor will be the right fit for every patient.

You can request a second opinion from your nurse or doctor while you are in hospital, and they may seek out a second doctor, or you may contact a doctor you know and trust who may be able to complete the second opinion.

If you are seen by a health professional in an outpatient setting, you can ask your GP to provide you with another referral for a second opinion if you disagree or are unsure of the recommended treatment plan.  If you disagree with your GP’s assessment or plan, you can see another GP in the same clinic or in a separate one.

You can request a second opinion at any time you are unhappy with a specialist or health professionals opinion or plan.  However, there may be consequences in requesting a second opinion in the public system, as often there are not enough resources to provide further opinions.


What does 'out of catchment' mean?

Out of catchment means that your address is outside of a health service’s geographical boundaries.  This usually means that the hospital or public health service is unable to see or treat you, and will refer you to the hospital or service that provides to your catchment area.

Perth Hospital Catchment Areas


How do I get a referral to a specialist?

To get a referral to a specialist, you will need to see your GP to discuss the reason you would like to see a specialist.  It may also be helpful to have a particular specialist in mind that you can ask your GP to refer you to.  Some specialists may see you without a referral, but you will be out of pocket the full amount, without medicare or health insurance rebates.

Further information on referrals


How do I request a new health provider?

You ask! You can always ask your GP for a new referral, or you can request your care be taken over by someone else.  This request can be in writing or verbal, and should be respected as long as there is capacity for this to happen.  For example, if you wanted a new GP or psychologist within the same practice, you could ask that you be transferred or you can book your next appointment with the professional of your choosing.  It becomes a little harder in the public health system, and especially limited in rural and remote areas where there is often a severe lack of healthcare options.  If you would like to discuss this further, please call us on 9221 3422 (ext. 1) or email us at advocacy@hconc.org.au.


How can I review decisions made about my schedule 8 medications?

Schedule 8 medications are mainly pain medication and stimulant medications, and are usually seen as addictive, therefore distribution and prescription is monitored and restricted.  If there has been suspected misuse/dependence of schedule 8 medication by a health professional, it may be reported to the Medicines and Poisons Regulation Branch, and your name placed on the Drugs of Dependence record.  Your GP or another health professional is able to lodge an appeal to any notification made against you.

Medicines and Poisons Regulation Branch

Information on Drugs of Dependence Record Appeal Process


Why is my doctor no longer able to prescribe my ADHD/Pain medication?

See the above drop-down for further information on appealing a notification on your record with the Medicines and Poisons Regulation Branch.

There are restrictions on the supply of certain pain and stimulant medications. These restrictions apply if you:

  • have a specified medical condition such as psychosis or bipolar disorder
  • are receiving medication to treat any substance use issues or concerns
  • have a notation or record with the Drugs of Dependence record
  • are not having your pain managed by a pain specialist
  • and other restrictions

Your specialist needs to apply to the Department of Health for permission before prescribing the medication. Additionally you may be required to perform urine drug screens. Your consent is required for the specialist to send the information to the Department of Health.

This does not preclude you from accessing the most appropriate stimulant medication.

It is best to discuss the matter with your specialist. They can get in touch with the Department who will assist them to get the best possible outcome.

Further information on schedule 8 medication and prescription

What are my rights as an involuntary patient?

The Health Consumers’ Council is unable to provide advocacy for consumers who are involuntary, or being held or treated on forms.  This includes CTOs (Community Treatment Orders).

The Mental Health Advocacy Service provide this service to consumers who are under 18 years old (any status), who are living in mental health supportive accommodation (private psychiatric hostel) or if you are being held for assessment or on any forms.

Your rights as an involuntary consumer include the following:

  • Right to information about your rights
  • Right to ask questions and be fully informed about any treatment offered to you
  • Right to receive a further opinion about treatment
  • Right to have your involuntary status reviewed by the Mental Health Tribunal
  • Right to be represented at a hearing before the Mental Health Tribunal
  • Right to freedom of lawful communication
  • Right to a medical examination after being admitted to a hospital
  • Right to access your medical records
  • Right to keep your personal possessions securely while you are a patient in a hospital
  • Right to an interview with a psychiatrist
  • Right to confidentiality
  • Right to nominate a nominated person
  • Right to have a treatment, support and discharge plan and be involved in the making of the plan, if you are an involuntary patient
  • Right to make a complaint to the mental health service and/or the Health and Disability Services Complaints Office if you are unsatisfied
  • Right to seek legal advice
  • Right to access the Mental Health Advocacy Service
  • If you are of Aboriginal or Torres Strait Islander descent, to the extent practicable and appropriate to have treatment provided in collaboration with an Aboriginal Torres Strait Islander mental health worker and significant members of your community including elders and traditional healers

For further information:

Mental Health Advocacy Service

Mental Health Commission Resources

List of Mental Health Act Forms

Further Opinions for Involuntary Consumers


4. How to make a complaint to a GP or clinic

There are two ways you can have your complaint heard and responded to by the health service.

You may find these resources useful in your complaint efforts: 

Sample Complaint Letter How to complain about a GP or clinic information sheet How to write a complaint letter Example of consumer letter to Specialists Example of consumer complaint to GP

 

1. The first is via the Practice Manager

Every private practice and clinic should have a practice manager who oversees all complaints and communications to and from the service. You can call your clinic or GP to ask for the name and email of the practice manager. You are then able to call to speak with the practice manager, or you can write and post or email your complaint, along with a request for a written response.

 

2. The second is via the Health and Disability Service Complaints Office (HaDSCO) and/or the Australian Health Practitioners Register of Australia (AHPRA)

https://www.hadsco.wa.gov.au/Make-a-Complaint

  • HaDSCO is the overarching body for all health and disability service complaints in WA.
  • They can negotiate to provide explanations, apologies, changes in policy, refunds, access to services, education for the medical professionals and conciliation.
  • HaDSCO will also communicate with AHPRA if required, and they operate with services in general.
  • Please include as much information as you have with the forms; you can write in a separate document and send that with the form if there is not enough room.
  • Also include the communication you have had previously with the health service, as HaDSCO requires you to have already submitted a complaint to the service previously.
  • HaDSCO offer the following options as outcomes they can work towards, however there is no guarantee that any of these will definitely occur.
    • Explanation
    • Access to service
    • Apology
    • Adequate service
    • Change in policy or procedure
    • Counselling/other support
    • Refund/waiver of fees
    • Disciplinary action
    • Conciliation
    • Training/education for service provider
    • The option for ‘other’ – in which you can write your own.

https://www.ahpra.gov.au/Notifications.aspx

  • The Australian Health Practitioner Regulation Agency (AHPRA is the overarching body for all health professionals in Australia).
  • They handle registrations and concerns/notifications regarding specific health practitioners.
  • AHPRA is not able to get an apology or recognition from the medical professional, but they are able to investigate and put conditions on a professional’s practice, suspend or terminate their registration, and implement other disciplinary actions.
  • They work from a public safety perspective and engage directly with the practitioner.

If at any point you require advocacy assistance with your complaint and its resolution, you can contact us, the Health Consumers’ Council, for advice on 9221 3422 (extension 1), or via advocacy@hconc.org.au

We are not a complaints management service, but we do offer support in navigating the existing complaint systems for WA health consumers.

 

Management Committee

When the Health Consumers’ Council (HCC) adopted its new Rules to conform with the updated Incorporations Act 2015, our Board became a Management Committee. The New Act provides some differentiation between larger organisations who have Boards as opposed to smaller organisations who have Management Committees.

2023-24 Management Committee

Mallika Macleod – Chair

Mallika brings many years of not-for-profit Board experience at state and national levels as a ‘young’ professional. She believes in the importance of good governance to support an Executive Director to uphold the vision and mission. Mallika is passionate about the importance of upholding citizens’ rights, and the key role of peak advocacy bodies in this. She believes human rights, and contemporary practice must be part of the dialogue at all levels, and we must have a body that can call out those institutions that are stuck in the dark ages and do not respect the rights of health customers and patients. She is the General Manager at Tura New Music and was previously the Director of Client Services at Disability in the Arts, Disadvantage in the Arts Australia (DADAA).

Niall Naghten – Deputy Chair

Niall has been a Certified Practicing Marketer of the Australian Marketing Institute since 2018 and has over 15 years’ experience at senior levels in a variety of industries. Originally from Ireland, Niall emigrated to Australia in 2012 and most recently moved into a senior consultancy role after leading the marketing and communications function at Activ Foundation for over four years.

While working at Activ Foundation, Niall helped to establish the crisis response team and eventually served as its Chair during the COVID-19 pandemic. This role saw him completely redirect the organisation’s focus to ensure that the health needs of thousands of individuals with intellectual disability were met.

Niall is passionate about ensuring that every person has equitable access to information that they need to make decisions about their health.

Rebecca Carbone – Secretary

In November 2014, Rebecca underwent surgery to partially resect a tumor located in her Cerebellum/Brain Stem. This was followed by a massive brain hemorrhage, and she was left with Locked-in-Syndrome (LiS). Her prognosis was dire – she was assessed as unable to be rehabilitated. She had three further inoperable tumors in 2015 and focused on intensive rehabilitation. She has learned to walk, see, speak, read, and write again. In 2018, she passed a driving assessment through the Independent Living Centre and has returned to study.

Prior to the surgery Rebecca worked her way from what was essentially a personal assistant role to a Quality and Welding Inspector trained to International ASME Standard. A traditionally masculine occupation, it took hard work and determination to achieve this.

Rebecca is extremely passionate about all aspects of health and wellbeing. She believes that health should be approached with a vision towards wellness as opposed to illness. Each consumer should be empowered to research and investigate methods of scientifically proven medical intervention and/or treatment so as to make an informed decision as to what will work best for their needs. She brings a very unique perspective to HCC’s Management Committee as a consumer; a woman with a disability that lives with chronic illnesses; a younger adult with an acquired brain injury that is commonly associated with the elderly; the cultural experience of as a child of Southern European migrants; and a volunteer in the health sector.

Ian Ludlow – Treasurer

Ian is a Chartered Accountant Fellow. Following eight years employed in public accounting practice, has over 25 years of experience working at senior levels in not-for-profit organisations serving the community in education, youth and adult accommodation, conference centre operations, large scale property management, insurance and risk management, and mental health services. He is currently the Business Manager for two schools in the Swan Christian Education Association.

He is involved in the community including volunteering with the Anglican Church for more than 30 years, with experience ranging from local parish, Central Diocese, National Church, governance, large scale youth work, and including company directorships of large and very large ($100M+ turnover) church entities delivering aged care. In more recent years, volunteering has included with Scouts WA as a leader supporting Cub Scout, Scout, and Venturer Scout sections in his local area.

Michael Crowley

Michael is an experienced legal practitioner and law academic in both Western Australia and New South Wales. He has over ten years’ experience teaching law at Edith Cowan University whilst maintaining a right of private practice as a barrister. As an academic, he taught and coordinated a range of law units including criminal law, advanced criminal law, terrorism and the law, security and the law, public international law, coronial law and mortuary practice, and the law of evidence. Other roles included mooting coordinator and course coordinator roles in law and forensic investigation and membership of ECU’s Security Research Institute. Research interests focused on international humanitarian law and terrorism. During this period as an academic he had extensive involvement in key international mooting competitions as moot problem writer, finals judge, arbitrator, moot executive committee member and coach. Previously in New South Wales his experience was as defense counsel in criminal law jury trials and conducting appellate work.

For some 10 years he was a lecturer in criminal law and procedure with the Law Extension Committee within the University of Sydney and a revising examiner for the Legal Practice Board of New South Wales. Before moving from New South Wales to Western Australia he was appointed visiting lecturer in law at Chongqing Technology and Business University, Chongqing, People’s Republic of China.

Meredith Waters

Meredith lives in Esperance and identifies as a carer for a family member, and an enthusiastic consumer representative for people living in rural and regional Australia. She is a member of a District Health Advisory Council and is a Board Member on the WA Country Health Service. She also runs a local radio program.

Meredith has been a board member with WACHS for the past five years as a consumer representative and has seen firsthand how much more there is to be done in the area of effective consumer representation. She is particularly interested in health in regional and rural Australia.

Kim Brewster

Kim is passionate about person-centred care, improving healthcare outcomes for all West Australians, and ensuring the consumer’s voice is heard in interactions with healthcare staff and the health system more broadly.

Kim’s background is in Anthropology and Sociology and Human Rights Law. She is an experienced researcher and policy professional, having previously worked in research and evaluation – utilising research skills to develop strategic recommendations to inform policy, marketing campaigns, and decision making at various levels from Ministers through to policy and research teams.

She has worked for a number of not-for-profit organisations over the years and currently works in the Aboriginal Community Controlled Health Sector (ACCHS) where she is a strong advocate for the ACCHS holistic Model of Care, preventative models of care, increased access to services (particularly for regional and remote communities), and local care in the community.

On a personal note, Kim has been both a consumer of health care and a carer for a family member, and has seen firsthand how difficult it can be to ensure your voice is heard within a complex and busy health system, and the need for consumers to be empowered to make informed choices.

Al Muhit

Al Muhit is the Director of Medical Technology at Child and Adolescent Health Service in WA. He grew up in a medical family and became passionate about patient-centred healthcare from a very young age. He has been involved with a number of not-for-profit organisations including Australian Doctors for Africa (ADFA), Osborne Park Rotary, and Bangladesh Australia Association of WA. Al has been instrumental in facilitating medical and imaging equipment donations to various Asian and African countries over the last decade, through these organisations. He wants to see consumers empowered by digital technologies and become active partners in the management of their healthcare.

Kirtida (Tina) Shah

Kirtida Shah is a health professional and has been a dedicated community leader for the last 12 years in Western Australia. Born in Ahmedabad, Kirtida migrated to Perth along with her family in 2005 and has since strived to promote both Gujarati and Indian culture amongst the wider Australian population. Her passions include women empowerment, awareness and education on domestic violence, engagement and promoting Indian culture, tradition and values. Kirtida was also an integral part of helping the community during the COVID-19 pandemic, leading the organisation of chartered flights to India from stranded citizens and family members. Furthermore, she arranged a taskforce in-charge of providing essential groceries for Indian students as well as individuals living in rural area.

Organ and Tissue Donation

In 2021, Health Consumers’ Council received a Community Awareness Grant from the Organ and Tissue Authority to undertake a project aimed at empowering Western Australians to increase their knowledge of the benefits of organ and tissue donation and transplantation, to encourage family discussion and know each other’s donation decisions, and to register online on the Australian Organ Donor Register.

We want West Australians to be able to make informed decisions about organ and tissue donation, and that means ensuring they can access the right resources to help them make the decision, register, and have that conversation with their family.

Our focus is on increasing awareness and encouraging conversation among Aboriginal people and people from Culturally and Linguistically Diverse backgrounds.

As part of the grant, we hosted community conversations with Aboriginal people, young Aboriginal people, people from culturally and linguistically diverse backgrounds, and young people from culturally and linguistically diverse backgrounds, to learn more about what the community already knows about organ and tissue donation, what they’d like to know, and what resources would be most beneficial for them.

You can request a copy of the insights from these community conversations by emailing info@hconc.org.au

What we learned

It quickly became clear that organ and tissue donation is a topic people in these communities want to talk about.

They told us they want to know more about the issue, and how it could impact them and their families. They want to be asked their thoughts on the topic, and how information can best be shared with their communities. They want to hear people’s stories.

Most importantly, these conversations need to be held in a way that is respectful of the donor, the donor family, culture, and personal beliefs. In particular, many of the young people we spoke to had lots of ideas about how information around organ and tissue donation can be shared with their communities.

These sessions showed us that the importance of the human connection and the stories of people who have been both donors and recipients, can’t be overestimated.

Resources

We produced a range of resources based on these community conversations, including a video, a series of graphics answering the most commonly asked questions, posters to add details of your own community conversation or event, and designs for two pull-up banner to be used at events.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

If you’d like to receive high resolution images, a copy of the video, or discuss how you can use the banner or postsers, please email info@hconc.org.au

Inquiry into organ and tissue donation in Western Australia  

In February 2023, the Standing Committee on Public Administration announced the commencement of an inquiry into organ and tissue donation.

The Committee’s inquiry would consider issues and opportunities to improve organ and tissue donation rates in Western Australia, looking at:

  • the effectiveness of the current model for organ and tissue donation in Western Australia
  • issues impacting organ and tissue donation rates in Western Australia
  • opportunities to improve organ and tissue donation rates in Western Australia
  • and any other matters considered relevant by the Committee.

Health Consumers’ Council provided a submission to the enquiry based on the yarns, stories, and experiences of the consumers we consulted with through the Community Awareness Grant we received from the Organ and Tissue Authority.

We were then asked to speak further to these learnings and Clare, Tania and Nadeen from Health Consumers’ Council appeared before the Standing Committee for a hearing in June 2023. We were joined by Caz, a double lung transplant recipient who shared her story with us during the work we did in 2021.

You can read our submission to the inquiry here and watch a recording of our hearing before the Standing Committee here.

Out of Pocket Medical Costs Finder tool

The Federal Department of Health are excited to invite you to attend the upcoming webinar about their initiative to reduce consumers’ out-of-pocket medical costs through the upcoming enhancements to the Medical Costs Finder. This is an existing website where users can discover better cost information for common non-GP medical specialist services across Australia. It is being improved and enhanced through this project.

Date: Tuesday, 17 August 2021
Time: 12:30 PM – 1:30 PM AEST (online) 10.30-11.30 AM AWST
Cost: Free

To RSVP email OOPTransparency@health.gov.au by Friday, 13 August 2021, they will then share the webinar link with you.

Background

The Medical Costs Finder website provides general guidance on the costs of common specialist services by location. It is an initiative to address costs transparency and mitigate ‘bill shock’ from unexpected out-of-pocket medical expenses, by helping consumers better understand the fees associated with services commonly provided by medical specialists earlier in their health journeys.

Currently, the website shows general information on typical costs for common services both in and out of hospital, with 1,100 specialist treatments currently listed. The Federal Department of Health are working to enhance the website so specialists will be able to add their individual fees for common medical procedures and their arrangements with different private health insurers.

The enhancements to the Medical Costs Finder will provide consumers and referring doctors with greater information and choice when deciding on a medical specialist.

The upcoming one-hour webinar will take you through the proposed enhancements to the Medical Costs Finder and allow the opportunity for you to have any questions answered. If you have any questions, please do not hesitate to contact them via email at: OOPTransparency@health.gov.au