Search Results for: health information

Rights & Responsibilities in Healthcare and Going to Hospital

health-rights-photo

Health Consumers’ Council provides this free, interactive information session to communities. The session increases awareness and knowledge about patient/carer rights and responsibilities in healthcare and going to hospital. The sorts of topics discussed are:

  • Is it okay to ask questions when you see a doctor?
  • Is it okay to ask for an interpreter?
  • What can you do if something goes wrong when you see a doctor?
  • How do you get test results?
  • What do you need to prepare and know when going to the hospital, while at the hospital, and when going home from the hospital

This session has been designed for people from diverse cultural backgrounds who may not have been in Australia for very long and for whom English is a second language.

If your community would like to book a session, please complete an expression of interest from available here or send an email to Nadeen@hconc.org.au

Know your healthcare rights

Your Healthcare Rights in Western Australia

TL;DR: In WA you have rights to access, safety, respect, partnership, information, privacy and feedback. If something goes wrong, you should receive open disclosure — an apology, explanation and next steps. You can access and correct your medical records. Mental health consumers, including people under involuntary treatment, have specific rights and independent advocacy support.

What are my healthcare rights?

Everyone receiving healthcare in Australia is protected by the Australian Charter of Healthcare Rights , which sets out seven key principles:

  • Access: Receive healthcare that meets your needs.
  • Safety: Safe, high-quality care that meets national standards.
  • Respect: Be treated with dignity, culture and beliefs respected.
  • Partnership: Be involved in decisions about your care.
  • Information: Clear, understandable information about your health and treatment options.
  • Privacy: Your personal and medical information is protected.
  • Feedback: You can compliment, raise concerns or make a complaint.

Learn more on Healthy WA – Patient rights and responsibilities.

What happens when things go wrong? (open disclosure)

What is open disclosure?

Open disclosure happens when something goes wrong with your care. You have the right to:

  • Receive an acknowledgement and an apology or expression of regret.
  • Get a clear explanation of what occurred and the possible consequences.
  • Ask questions and discuss how it will be managed and prevented in future.

See our full guide: Open Disclosure – When Things Go Wrong in Healthcare .

Do I have patient responsibilities?

What responsibilities do I have as a patient?

To help maintain safe, respectful care, WA Health asks that patients and families:

  • Provide accurate and complete health information.
  • Attend appointments or cancel with reasonable notice.
  • Discuss any concerns about your treatment plan.
  • Treat healthcare staff and other patients with respect.
  • Provide constructive feedback to help improve services.

How do I get my medical records? (or change them)

You can request your records from WA public health services through the Freedom of Information (FOI) process or directly from your healthcare provider.

You also have rights under the Privacy Act to access and correct your personal health information.

Our detailed guide: How to Access Your Medical Records .

What’s consent and guardianship?

If you can make your own healthcare decisions, you give consent directly. If you lose capacity, WA law provides a hierarchy of decision-makers and options such as an Enduring Power of Guardianship (EPG) or a guardian appointed by the State Administrative Tribunal (SAT).

For more information, visit the Office of the Public Advocate (OPA) to find guides and forms for EPG and guardianship.

What about mental health and involuntary treatment?

People receiving mental health care have rights to information, participation and communication.

Those under involuntary treatment have specific legal protections under the Mental Health Act 2014 (WA).

You can access independent advocacy through the Mental Health Advocacy Service (MHAS), or find resources at the Mental Health Commission.

Need help now?

Supporting Cultural Diversity in Healthcare

diverse-human-forms

Western Australia enjoys one of the most culturally diverse populations in Australia. To assist healthcare workers and providers to deliver services that are equitable, Health Consumers’ Council has developed this workshop to enable health workers to provide culturally inclusive services that support patient-centred care.

The workshop will provide participants with the opportunity to:

  • Recognise potential barriers people may have in accessing health services
  • Increase understanding of cultural competency
    • Awareness of own culture and attitude towards cultural difference
    • Knowledge and sensitivity of different cultural practices
    • Ability to use cross-cultural skills
  • Develop strategies to deliver a culturally competent service

Workshop duration – 3 hours

For more information and to book upcoming workshops, click here.

Health Professional Award

This category is for demonstrating excellence in patient care. The Award recognises health professionals who demonstrate ongoing commitment to improving health outcomes and the patient experience.

Highly Commended – Sonya Schultz

Thanks to Sonya’s work, Breast Screen WA provides an interpreter onsite as well as utilise telephone interpreter services as and when necessary. She also attends community functions realising that the best way to engage and educate community members is by meeting with them and encouraging them to access the service. Sonya’s activities have vastly improved the level of service to Culturally and Linguistically Diverse women and provided them with information in ways they can understand. Her actions may well have saved the lives of women who otherwise would have remained ignorant of breast cancer and the need for screening as a preventative measure.

And the Winner is – Ted Dowling

Ted’s passion for Aboriginal health has led him to identify key areas of need in the WA Health hospital system and lead the implementation of two highly successful Aboriginal cardiac health programs: Kworpading Koort and Heart Health. As part of an effort to provide patient-centred care, Ted places great importance on improving engagement with rural and remote Aboriginal communities. With the Cardiology Team, Ted visits these communities to provide cardiac rehabilitation education sessions and clinical care to patients who would otherwise not receive it.

Also Nominated

Dr Tim Pavy

A consumer nominee wrote: “Dr. Pavy has shown great interest in an area of medicine which has been so neglected. Chronic Pelvic Pain/ Pudendal Neuralgia is very difficult to treat. Most doctors are unaware of this condition which leaves patients suffering endlessly and some have taken their own lives. Dr. Pavy established the first and only pelvic pain clinic in WA and had a waiting list of 2 years when first initiated. He has taken on a ‘sleeping giant’ and has helped me and other women to get pain to a tolerable level.”

Dr Glenn Lewis

A consumer nominated Dr Lewis who went above and beyond for her and her family after the birth of her child.

International Health Rights

Consumers International

The Rights of Patients – Prescription for healthy consumers
All patients have the right to:

  1. appropriate and accessible health care
  2. freedom from discrimination
  3. information and education
  4. choose a doctor or other health worker
  5. choose a health care establishment
  6. informed consent about treatment
  7. participate in their own health care
  8. respect, privacy, confidentiality and dignity
  9. complain
  10. redress in the event of injury.

District Health Advisory Councils

A District Health Advisory Councils (DHAC) is a group of people (health consumers, carers, community members and service providers) who actively seek to improve health service planning, access, safety and quality. The composition of these Advisory Councils aim to reflect a cross-section of community health interests. Health service providers and agency representatives should comprise no more than 30% of the total number of members. Advisory Councils provide the opportunity for continuously improving consumer and community participation at the local, district and State levels.For more information about WA Country Health Services, visit: www.wacountry.health.wa.gov.au

The Aims of the DHACs are:

  • Provide effective community and consumer participation.
  • Improve safety, quality and access using consumer and carer input.
  • Provide a voice for the community and consumers to WA country HEalth Service (WACHS). the minister for Health, Director General of Health, Chief Executive Officer of WACHS and other senior WACHS staff about country health needs, priorities and services.
  • Influence consumer, community, WACHS and inter-agency links at the local district, regional and State levels.
  • Establish a two-way information exchange by:
  • Consumers and community members informing health service providers of priortiy health issues and offering solutions;
  • Service providers giving consumers and the community evidence of priority health needs and suitable service delivery models to improve access, safety and quality.

HCCWA’s Diversity Dialogues Forum 2026

Older people from multicultural communities and their access to, and experience of, healthcare

Older people from culturally and linguistically diverse communities can face significant barriers when accessing healthcare in Western Australia. These barriers extend beyond language differences and include difficulties navigating the health system, digital exclusion, transport, cultural understanding, trust, trauma, and limited awareness of available services.

To better understand these experiences, Health Consumers’ Council WA (HCCWA) convened a Diversity Dialogues forum bringing together community leaders, healthcare professionals, researchers, service providers and consumers. Participants shared lived experience, professional insights and practical examples of the challenges older people encounter when seeking healthcare and aged care.

Across diverse communities, participants consistently identified common issues. These included difficulties accessing information and services, limited cultural responsiveness within healthcare settings, challenges using digital systems such as MyGov and My Aged Care, and the importance of building trust through long-term community relationships.

The discussion also highlighted practical solutions already being implemented across Western Australia. Community-led navigation services, culturally responsive education, Care Finder programs and stronger partnerships between community organisations and health services were identified as important approaches to improving access and health outcomes.

The findings reinforce the importance of involving multicultural communities in the planning, design and delivery of healthcare services. They also demonstrate that improving equitable access requires both system-level change and ongoing collaboration with the communities most affected.

About Diversity Dialogues

Diversity Dialogues is an ongoing initiative of Health Consumers’ Council WA that brings together consumers, community organisations, healthcare providers and policymakers to explore issues affecting culturally and linguistically diverse communities.

The forums provide an opportunity to share lived experience, identify barriers to healthcare, and develop practical recommendations that can improve health services across Western Australia.

Key Findings

Read the in-depth report here.

1. Healthcare systems are often difficult to navigate

Participants described healthcare and aged care systems that can be difficult to understand, particularly for people who migrated to Australia later in life or who have limited English proficiency.

Common barriers included:

  • complex forms and eligibility processes
  • difficulty using MyGov and My Aged Care
  • limited awareness of available services
  • uncertainty about how to access support

Many participants emphasised that services may exist, but understanding how to access them remains a significant challenge.

2. Language and communication remain significant barriers

Participants discussed how language barriers affect every stage of healthcare.

Challenges included:

  • limited English proficiency
  • low literacy in any language
  • complex medical terminology
  • translated information that does not reflect cultural context
  • interpreter availability and quality

Some participants also described concerns about privacy when interpreters come from small local communities.

These communication barriers may contribute to misunderstanding, delayed care and reduced confidence in healthcare services.

3. Trust is essential for good healthcare

Many participants explained that trust strongly influences whether people seek healthcare.

Past experiences of conflict, displacement, trauma or negative interactions with institutions can influence how some older people engage with Australian healthcare services.

Participants noted that trust often develops through long-term relationships with healthcare professionals and trusted community organisations rather than through single appointments.

4. Cultural understanding influences healthcare experiences

Participants shared examples where cultural practices or expectations had been misunderstood within healthcare settings.

Examples included:

  • differing expectations about family involvement in care
  • culturally appropriate food during hospital stays
  • differing understandings of ageing and illness
  • differing expectations about consultation length

Participants suggested that greater cultural understanding could improve communication, person-centred care and consumer experience.

5. Digital exclusion is becoming a healthcare barrier

As healthcare increasingly relies on digital systems, many older consumers experience additional barriers.

Participants highlighted difficulties using:

  • MyGov
  • My Aged Care
  • online appointment systems
  • SMS verification
  • email-based communication

Without practical support, digital systems may unintentionally reduce access for older people with limited digital literacy.

6. Social isolation increases health risks

Participants described social isolation as an important contributor to poorer health outcomes.

Examples included:

  • delayed assistance following falls
  • reduced access to appointments
  • fewer opportunities to receive health information
  • increased loneliness

Community organisations highlighted the importance of regular outreach and trusted relationships to reduce isolation.

Community-led solutions

The forum highlighted several initiatives already improving access for multicultural communities across Western Australia.

These included:

  • Care Finder services
  • community health navigation
  • digital literacy programs
  • culturally responsive community education
  • seniors’ support programs
  • intergenerational community initiatives

Participants emphasised that community-led approaches help build trust and support people to navigate complex healthcare systems.

Recommendations

The discussions identified several opportunities to improve healthcare access for older people from multicultural communities.

These include:

  • Increase cultural responsiveness across health and aged care services.
  • Improve representation of culturally and linguistically diverse consumers in health service planning and decision-making.
  • Expand community-led navigation and Care Finder services.
  • Improve access to face-to-face assistance with digital health systems.
  • Increase awareness of available health and aged care services through trusted community organisations.
  • Strengthen partnerships between health services and multicultural communities.
  • Ensure culturally appropriate food, communication and care are recognised as components of quality healthcare.
  • Continue investing in community-led mental health education and culturally appropriate support.

What this means for Western Australia

The experiences shared during this forum demonstrate that improving healthcare access for older people from multicultural communities requires more than translation services alone.

Participants described the importance of trust, culturally responsive care, accessible information, community leadership and meaningful partnerships.

Many of the barriers identified are interconnected. Addressing them will require collaboration between consumers, community organisations, healthcare providers and government.

By listening to lived experience and working alongside multicultural communities, Western Australia has an opportunity to create a more equitable, accessible and person-centred health system.

It is also worthwhile considering that improvements to help older people from multicultural communities would benefit everyone in WA, for example trust, accessible information and meaningful partnerships make healthcare fair for all.

Acknowledgements

Health Consumers’ Council WA thanks the forum panellists, participants and community organisations who generously shared their knowledge, lived experience and practical insights.

The experiences documented in this report reflect the views shared during the forum and are intended to inform ongoing discussion, collaboration and continuous improvement across Western Australia’s health system.

About Health Consumers’ Council WA

Health Consumers’ Council WA is the independent peak body representing health consumers across Western Australia. HCCWA works alongside consumers, carers, communities, clinicians and policymakers to improve access, equity, safety and person-centred care across the health system.

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Engagement Lead (Multicultural Focus)

Empower diverse voices to shape a more equitable health system for all in Western Australia

  • Position Title: Engagement Lead (Multicultural Focus)
  • Position description: Engagement Lead (Multicultural Focus)
  • Location: Mount Lawley, WA
  • Work Type: Part-Time (3 days a week)/Permanent
  • Level: SCHADS L6
  • Salary: $55.72-$58.19/hour + Superannuation
  • Applications close: Monday 29 June 2026 at 9am
  • Not For Profit (NFP)
 

About us

Health Consumers’ Council WA (HCCWA) is an independent, community-based organisation established in 1994. We exist to ensure that consumer voices are heard, respected and embedded across all levels of the health system.

We work to amplify lived experience in health policy, planning, research and service delivery by:

  • Supporting individuals to navigate the health system and ensure their health rights are met through individual advocacy
  • Supporting community members to have their voices heard at every level of decision making in health in partnership with health services and Government
  • Championing equitable, person-centred, high-quality healthcare for all Western Australians

Our work is grounded in our values of equity, compassion, collaboration, courage, care and integrity.

About you

You are an organised and strategic professional who excels at enhancing the way organisations operate. You combine a forward-thinking, big-picture perspective with hands-on execution, and are deeply committed to meaningful, purpose-led work.

  • Demonstrated experience in community or consumer engagement, with a strong focus on culturally and linguistically diverse communities and inclusive, equity-centred practice
  • Skilled in designing and facilitating engagement activities and translating lived experience in clear insights, reports and practical recommendations
  • Proven ability to build and maintain trusted relationships with communities, stakeholders and partners
  • Highly organised and collaborative, with strong project management skills and the ability to manage competing priorities and deliver outcomes in a complex environment

About the position

The role leads engagement with multicultural communities to ensure their experiences, perspectives and priorities inform health policy, service design, planning, delivery, evaluation and broader system reform in WA.

This position works across fee-for-service and core-funded engagement projects, leading or contributing to engagement design, facilitation, consultation, training, reporting and relationship development. The role applies trauma-informed, culturally responsive and equity-centred practice to create safe and meaningful opportunities for multicultural consumers, carers and community members to participate.

The role contributes to HCCWA’s understanding of systemic issues, policies and reform priorities relevant to culturally and linguistically diverse health contexts, and helps translate consumer experience into practical insights, reports, advice and recommendations.

The position contributes to the Engagement Team’s purpose to seek out, listen to and elevate the voices of consumers, carers and communities to drive systemic change.

A typical week might see you

  • Building relationships with multicultural communities, community leaders and partner organisations to strengthen engagement and trust
  • Planning and facilitating workshops, consultations and listening sessions to capture diverse consumer experiences
  • Designing inclusive engagement approaches and supporting participation through interpreters, accessible materials and culturally responsive methods
  • Analysing feedback and lived experience insights and translating them into clear reports, recommendations and advocacy outputs
  • Coordinating projects, managing timelines and delivering high-quality engagement activities across multiple priorities
  • Collaborating with internal teams and stakeholders to identify systemic issues and contribute to meaningful health system change

The role offers you

  • The opportunity to be a part of a workplace that is driven by championing West Aussie consumer health rights
  • A welcoming, inclusive and supportive workplace, where everyone is encouraged to bring all of themselves
  • A competitive not-for-profit annual base salary with salary packaging
  • Flexible working arrangements including the opportunity to work from home occasionally

Please see our website www.hconc.org.au/about-us/employment/ for the job description for a full outline of responsibilities for the role.

Diversity and inclusion

At Health Consumers’ Council WA we know that strength comes from diverse perspectives being at the table. We particularly encourage applications from Aboriginal and Torres Strait Islander people, people from culturally diverse backgrounds and identities, people with disability and LGBTIQA+ community members.

Selection Criteria

Essential

  1. 3+ years’ experience in community engagement, consumer engagement, community development, health promotion, advocacy, social research or a related field, including work with culturally and linguistically diverse communities.
  2. Strong understanding of culturally responsive, inclusive, trauma-informed and equity-centred engagement practice.
  3. Demonstrated ability to build and maintain trusted relationships with multicultural communities, community organisations and other stakeholders.
  4. Strong facilitation skills, including experience facilitating small, medium and large groups in person, online and in hybrid settings.
  5. Experience designing, coordinating and evaluating engagement activities such as consultations, workshops, forums, listening sessions, training or co-design activities.
  6. Experience gathering, analysing and synthesising qualitative data, lived experience insights or community feedback and presenting findings in accessibly ways for difference audiences.
  7. Ability to contribute to systemic advocacy by identifying themes, issues and opportunities for change from consumer and community experiences.
  8. Strong written communication skills, including the ability to prepare reports, summaries, briefings, submissions, presentation or other high-quality written materials.
  9. Ability to manage multiple priorities and projects, meet deadlines and work with a high degree of autonomy.
  10. Collaborative working style with an ability and willingness to support team priorities and contribute to a positive team culture.
  11. Confident using Microsoft Office and confidence using or learning digital systems such as project management, event, email and marketing and CRM platforms.

Desirable

  • Strong understanding of the WA health system and current issues affecting health consumers.
  • Existing connections with multicultural communities, bicultural workers, multicultural organisations or relevant networks in WA.
  • Experience working with interpreters, translated material and/or multilingual health information.
  • Experience contributing to fee-for-service work, grants, service agreements, proposals or business development.
  • Experience in co-design, deliberative engagement, training, health literacy or capacity building.
  • Relevant tertiary qualification or equivalent experience in community development, public health, social work, social policy, health promotion, communications, research or a related discipline.
  • Interest in digital literacy and ability to identify and pursue opportunities or organisational improvement.

How to apply

Provide a cover letter of no more than two (2) pages addressing the selection criteria points 1, 2, 3 & 6, along with a current resume outlining your work experience, skills and any relevant education or training to Tania Harris, our Engagement & Systemic Advocacy Manager at jobs@hconc.org.au clearly stating which role you’re applying for. Applications that do not address the selection criteria may not be considered.

Applications close Monday, 29 June 2026 at 8am

If you require any adjustments to submit your application or wish to have a confidential discussion about the role, please contact Tania Harris, Engagement and Advocacy Manager on (08) 6109 6709

WA Winter Readiness Insights

Clare Mullen | Executive Director

 Winter is coming here!

While I never watched a full episode of Game of Thrones, I’m familiar with the ominous warning that “winter is coming…”

If you’re involved in the health system as a consumer or community representative, then you’ll know that health services in the south of the state are battening down the hatches to prepare for the increase in people who get sick at this time of year.

But we know from our discussions with WA community members that people don’t want to get sick if they can help it. Getting sick during winter isn’t inevitable and we know that every time you get a group of health consumers in a room, people sharing their knowledge is powerful.

So while we couldn’t easily get almost 200 people together in a room, we’ve gathered views from 200 of you about how you stay well and if you’re stepping up your efforts as winter approaches. Here’s what you told us…

First up – you care about your health

Everyone does something to protect their health usually. With the most selected options being:

  • Wash hands
  • Get vaccinated
  • Eat as healthily as possible
  • Stay in touch with family and friends
  • Get some regular exercise

Getting regular check ups with your GP and sleeping well scored highly too.

Next – most of us are doing something extra to prep to avoid winter bugs

More than three quarters of respondents think about taking extra measures – including:

  • Getting vaccinated
  • Maintaining strong hygiene like hand-washing and using masks
  • Avoiding higher-risk environments during peak season
  • Staying home and keeping your distancewhen unwell
  • Building overall health and immunity
  • Paying attention to air quality and ventilation

Most of our respondents plan to get vaccinated if they’re eligible

More than 80% of respondents plan to get vaccinated and know where to go to get it done, with about 7% of respondents unsure. Among the people who say they’re not planning to get vaccinated, about 5 people express concern about the risks of vaccination, with another 7 people commenting on how they’ve experienced cold/flu-like illnesses after previous vaccinations.

We can all play our part in reaching the community target which gives us all the best chance of staying safe. At the time of writing we’re already over half way towards these targets – but there’s still a way to go. You can check out progress at the WA Health site here: https://access.health.wa.gov.au/immunisation

Finally, we want clear, accessible public health information in places where we already go

Many people who responded to our survey shared it would be helpful if getting vaccinated was as easy as possible. So it’s great to see the WA Government rolling out flu vax clinics across community settings including at the footy – check out this link to see the upcoming dates: https://www.wa.gov.au/government/media-statements/Cook%20Labor%20Government/-More-WA-footy-fans-to-roll-up-their-sleeves-as-flu-clinics-extended-20260521

People also said they want strong public health messaging and transparency – if you haven’t already, check out the WA Health website which has links to your nearest place to get vaccinated, as well as more information about what to expect.

Survey information

We shared a link to a MS Forms survey between 06/03/26 and 09/06/26. The link was shared with HCCWA networks via email and social media. It was also shared on Reddit in r/Perth. There were 191 respondents. Over three quarters of respondents belong to a group that is known to experience health inequities. Almost a quarter of respondents were between 35-44, and over one tenth of respondents were 75 or over.

MedicineWise Mobile App to Be Decommissioned

MedicineWise Logo

The Australian Commission on Safety and Quality in Health Care has announced the upcoming decommissioning of the MedicineWise mobile application. The app, originally launched by NPS MedicineWise in 2017 and transferred to the Commission in January 2023, has helped many consumers and health professionals manage medicines and access reliable health information.

The Commission recently completed a detailed review of the app, looking at user uptake, usefulness, maintenance requirements, safety and privacy considerations, and the availability of similar tools on the market.

The review found that while the app has been valued by some, overall usage and retention were low.

It also showed that maintaining the high standards required for safety, quality and privacy would require significant ongoing resources, especially when weighed against the small number of active users.

As a result, the Commission has decided to decommission the MedicineWise app at midday AEDT on Tuesday 10 February 2026. After this date, the app will no longer function fully on users’ devices.

The Commission has already contacted registered users with details on how to find alternative options, as well as instructions on how to download or remove any stored data before the transition.

We are sharing this update to ensure our community is aware of the change and has time to plan ahead.

If you need more information, please visit MedicineWise or email: QUMCustomerService@safetyandquality.gov.au.