Search Results for: health information

5. How to access your medical records

 

Click here for a Template for Records Requests Click here for a Freedom of Information Letter template

 

WA Private Health services

  • If the service is private (GP, psychiatrist, specialist clinic, private hospital), your information will be kept and released in accordance with the Privacy Act 1988.
  • You can apply for your records via a Privacy Act form, which most hospitals will have available on their website.
  • The alternative is to email, call or mail, writing a letter requesting the records, including the service name, the dates, the specific documents you would like (clinical notes, test results, referrals, reports, discharge summaries, admission forms).
  • You will need to submit one or two forms of ID which may need to be certified (driver’s licence, passport, Medicare card, pension card, bank card). Certification may be done by the privacy officers.
  • The Privacy Act does not apply to deceased persons, and evidence that the applicant is the executor of the deceased person’s will is required.

 

WA Public Health Services

  • If the service is public (public hospital, community mental health service)
  • Your information will be kept and released in accordance with the Freedom of Information Act 1992.
  • All public health services will have a Freedom of Information office which deals exclusively with these requests. Most public services will have a FOI form, or you can use a letter template available on our website to request your records. The alternative is to call or email your request.
  • You will need to include the service name, the dates, the specific documents you would like (clinical notes, test results, referrals, reports, discharge summaries, admission forms), and one or two forms of ID which may need to be certified.

 

How can I get incorrect personal information changed?

First, contact the service to discuss whether it will correct that information without the need for you to make a formal FOI or Privacy Amendment application.
If you need to make a formal request to the service, it will need to:

  • Be in writing
  • Give enough details to identify the relevant document
  • Point to what information you believe is inaccurate, and explain why, with evidence, and
  • Say how you want the information changed

Having records deleted or edited is quite rare, but having a note inserted which details your experience and truth allows for your voice to be heard in the context of your experience and your medical records.  Records are rarely changed because they reflect one professionals opinion at that one place in time, and to dispute this successfully requires a lot of irrefutable evidence. 

The option of including a note in your file instead of having your records amended is often an empowering experience.  You are able to write it (usually keep it to 1-2 pages), and you are able to request that it be placed permanently in your file.  

Example of Note in Records

 

FAQs


Is there a charge/financial cost to access my medical records?

There may be an administrative charge with either private or public process, however you are able to ask that this be waived if it will be a financial stress.  You can also request the records be sent electronically to save on printing charges.  Most personal applications for records will be free though. 


Will I get my complete records?

You may, and you may not. It depends on what you requested in your application, and it also depends on the content of your records.  If there is a high volume of records, the officers may ask you to narrow down your time or requested documents. Records older than 7 years may be inaccessible.  We often experience reduced records/higher levels of redaction for consumers with mental health concerns on their records. 


Will my information be redacted/blacked out so I am unable to read it?

Any personal information pertaining to a third party will likely be redacted. This includes names and contact information, and details about third parties.  This includes their comments, personal details and references to third parties by yourself and health professionals.  The names of health professionals may also be redacted.  If they are and you are wanting your records specifically for the names of the health professionals involved in your care, you can call the FOI/Privacy department and ask for the names specifically.  


My records are from a mental health ward or service. Will I get them?

You may, and you may not. Each service has a duty to ensure that the release of records will not cause harm, and so they may refuse, or may only release the records to a third party with a health qualification/person in the hospital (GP, therapist, social worker).

Often, any records from Princess Margaret Hospital (accessed through Perth Children’s Hospital) will require the records to be given to a health professional or explained to you at PCH with a healthcare worker/social worker.  

The hospital may call you to assess if they feel it will be safe to release the records to you, particularly if they contain reference to any difficult or distressing material or experiences. 

Some hospitals may refuse to release records if you are currently an inpatient with them or with another service. 


The Department have refused access to my records. What can I do?

Contact the Office of the Australian Information Commissioner FOI: https://www.oic.wa.gov.au/en-au/FTP014

You can also contact the FOI/Privacy department to ask why the request was refused, and to assess if there is anything further that you can do which may change the decision prior to an official appeal. 


Working with consumer representatives

There are a range of ways you might want to involve and partner with consumers, carers, family and community members in your work. This information may help you when considering involving consumer, carer, community or family representatives in a working group or committee, or similar structure.

Some things to consider when recruiting and working with consumer representatives:

  • We recommend having at least two consumer representatives in most cases. This provides the representatives with some support and also enables you to seek a bit of diversity of perspectives. It may also help address some of the power imbalance which exists between people in different roles on the group.
  • Consider if there are any groups that might have a perspective you’re interested in that may not come forward for this type of role – this can include people from culturally and linguistically diverse backgrounds, Aboriginal people, people with disability and people experiencing disadvantage, including homelessness – if your representatives don’t have these perspectives, you could consider how else you’ll find out what is important to these groups. (You can chat with us if these are groups you’re looking for input from.)
  • Depending on the make-up of the rest of the group, and the level of experience of the consumer rep, you may want to consider the group and power dynamics in the working group. If this person will be the only consumer voice at the table, you could consider whether you, or the group Chair, might be able to reach out to the person in advance of the meeting. You might also want to follow up after the meeting to see if they have any questions or comments that they didn’t feel able to raise in the meetings.
  • Be clear about what you’re hoping and expecting from the role and the person. For example:
    • How long and how often are meetings?
    • Are there lots of papers for them to read? Is it possible they might need these to be printed out and sent as hard copy?
    • Is the venue for the meetings easy to access? Is there plenty of parking? Or easy access to public transport? (We’d suggest always including information about these when confirming meeting arrangements.)
    • Are they expected to liaise with other consumers or community members to inform the input they provide to this group? How will they be supported to do this?
      • For example, we can circulate information about surveys and other consultations through our networks if that’s appropriate?
      • Bear in mind that many consumers have other commitments including family, work, and their own or their family’s health – they may not have time to do much extra work outside of meetings.
    • Have you confirmed whether you will be offering them a consumer participation payment?

We are always happy to chat through early ideas to help you develop your plan. If you’d like to talk through your plans for involving and partnering with consumers, please reach out to Kieran Bindahneem in the Engagement Team – kieran.bindahneem@hconc.org.au

Our team has worked with the Department of Health, the WA Primary Health Alliance and the Mental Health Commission and have an understanding of working within the parameters of different organisations.

Advertise for a consumer, carer, family, lived experience or community representative

If you have an representative opportunity you’d like us to promote to our networks, please complete this document and submit it to info@hconc.org.au

 

3. How to make a complaint directly to a hospital

There are several ways you can have your complaint heard and responded to by the hospital.

A full list of hospitals and their feedback department contacts is at the bottom of this page. 

You may find these resources useful in your complaint efforts: 

Example of a consumer-written complaint Sample Complaint Letter How to complain to a hospital information sheet Complaint letter template

 

1. Care Opinion: https://www.careopinion.org.au

This is a moderated platform run by an independent non profit organisation that takes your feedback directly to the hospital. Typically you will receive a response from the hospital within 72 hours of it being posted. The team moderate it before posting it so it is not immediately displayed. As all stories are moderated before publishing, please consider this when writing. For example,  critical stories will not be published with names included, they will be edited out. Some stories may not be published but you will be able to discuss this with Care Opinion. You can see their Moderation Policy here.

The Care Opinion website allows you to post your story, positive or negative, anonymously. The health service is identified but you remain anonymous. This story is published to the website where you, and everyone else can track its progress from your story being read, responded to, and a change made if necessary. The feedback is read by the highest level of health service management, so it is one of the most effective ways to make your voice count.
You can also email them at info@careopinion.org.au

We have advocated for this platform, also used in the United Kingdom and Ireland, because its transparency really changes the game. See this page for more information.

 

2. The consumer liaison/patient feedback service

Each hospital in Western Australia has a feedback department. These departments are made up of staff within the hospital who can help facilitate patient and family services within the hospital, as well as take down, investigate and respond to complaints about the hospitals service. There is a full list of these departments on this link or at the end of this document: https://www.healthywa.wa.gov.au/Articles/U_Z/WA-Health-patient-consumer-liaison-contacts


The rural hospitals complaints are managed via https://www.wacountry.health.wa.gov.au/About-us/Contact-us/Provide-feedback; a list of the regions and their contact details is available on this website.
You can email, call, submit online or post a complaint to these departments, and you have the right to be heard and to have your concerns and complaints recorded and responded to.
If you call, make sure to ask for a copy of the complaint in writing, and request a response in writing as well. If you would like a meeting with the health professional/s who were involved, you can also request this.  You can either phone or write to the individual hospital or health service. See their details below. 

 

3. If you are unhappy with the response from either option, you can escalate to AHPRA or HaDSCO:

AHPRA:
https://www.ahpra.gov.au/Notifications.aspx
AHPRA is the overarching body for all health professionals in Australia. They handle registrations and concerns/notifications regarding specific health practitioners. AHPRA is not able to get an apology or recognition from the medical professional, but they are able to investigate and put conditions on a professional’s practice, suspend or terminate their registration, and implement other disciplinary actions.
They work from a public safety perspective and engage directly with the practitioner.

HADSCO:
https://www.hadsco.wa.gov.au/Make-a-Complaint
HaDSCO is the overarching body for all health and disability service complaints in WA. They can investigate and provide explanations, apologies, changes in policy, refunds, access to services, education for the medical professionals and conciliation. HaDSCO will also communicate with AHPRA if required, and they operate with services in general.
Please include as much information as you have with the forms; you can write in a separate document and send that with the form if there is not enough room.
Also include the communication you have had previously with the health service, as HaDSCO will likely require you to have already submitted a complaint to the service previously.

The following options are listed as outcomes for HaDSCO processes, however it is not guaranteed that any or all of the selected outcomes will be achieved. 

  • Explanation
  • Access to service
  • Apology
  • Adequate service
  • Change in policy or procedure
  • Counselling/other support
  • Refund/waiver of fees
  • Disciplinary action
  • Conciliation
  • Training/education for service provider
  • The option for ‘other’ – in which you can write your own.

If at any point you require advocacy assistance with your complaint and its resolution, you can contact us, the Health Consumers Council, for advice on 08 9221 3422 (extension 1), or via advocacy@hconc.org.au

To learn more about complaints in the public system, you can download the Complaints Management Policy here.

 

Public Western Australian Health Feedback Services 

North Metropolitan Health Service

North Metropolitan Health Service, Mental Health

Title: Stakeholder Liaison Officer
Address: Reply Paid 83619 Private Bag No 1, PO Claremont WA 6910
Phone: (08) 9242 9612
Email: feedback.NMHSMH@health.wa.gov.au or complaints.NMHS-MH@health.wa.gov.au

Joondalup Health Campus

Title: Consumer Liaison Service
Address: Clinical Governance Unit, Joondalup Health Campus, Shenton Ave, Joondalup WA 6027, or PO Box 242, Joondalup WA 6919
Phone: (08) 9400 9672
Email: consumerliaison.jhc@ramsayhealth.com.au
Website: Joondalup Health Campus (external site)


King Edward Memorial Hospital

Title: Customer Service Unit
Address: 1st Floor, Executive Corridor, A Block, KEMH
374 Bagot Road, Subiaco WA 6008
Phone: (08) 6458 1444
Email: kemhcsu@health.wa.gov.au
Website: King Edward Memorial Hospital (external site)


Osborne Park Hospital

Title: Consumer Liaison and Admin Officer
Address: Osborne Park Hospital, Osborne Place, Stirling WA 6021
Phone: (08) 9346 8009
Email: OPHCAC@health.wa.gov.au
Website: Osborne Park Hospital (external site)

Sir Charles Gardiner Hospital

Title: Patient Liaison Service
Address: Sir Charles Gairdner Hospital, Hospital Ave, Nedlands WA 6910
Phone: (08) 6457 2867
Email: SCGHPatientLiaisonService@health.wa.gov.au
Website: Sir Charles Gairdner Hospital (external site)


Graylands Hospital

Title: Consumer Liaison Service

Tel: (08) 6159 6600
Postal address: Private Bag 1, Claremont, WA 6910

Email: feedback.NMHSMH@health.wa.gov.au or MHPHDS.CLS@health.wa.gov.au


 


South Metropolitan Health Service

South Metro Health Service

Address: 14 Barry Marshall Parade, MURDOCH WA 6150
Street address: Locked Bag 100, PALMYRA DC WA 6961
Ph: (08) 6152 2222


Fiona Stanley Hospital

Title: Patient and Family Liaison
Address: Fiona Stanley Hospital, Locked Bag 100 Palmyra DC, WA, 6961
Phone: (08) 6152 4013
Email: FSHfeedback@health.wa.gov.au
Website: Fiona Stanley Hospital (external site)


Fremantle Hospital and Health Service

Title: Patient Liaison
Address: Fremantle Hospital, PO Box 480, Fremantle WA 6959
Phone: (08) 9431 2787
Email: FHfeedback@health.wa.gov.au
Website: Fremantle Hospital and Health Service (external site)


Rockingham Hospital

Title: Consumer Liaison Officer/Freedom of Information Coordinator, Education Safety Quality and Risk Unit
Address: Rockingham Peel Group, PO Box 2033, Rockingham WA 6967
Phone: (08) 9599 4323 or (08) 9599 4632
Email: rpgconsumerliaison@health.wa.gov.au
Website: Rockingham Peel Group (external site)


Peel Health Campus

Title: Executive Director
Address: 110 Lakes Road, Mandurah WA 6210
Phone: (08) 9531 8000
Email: enquiries.phc@ramsayhealth.com.au
Website: Peel Health Campus (external site)


 


East Metropolitan Health Service


East Metro Health Service

Area office:
10 Murray Street
Perth WA 6000

Postal address:
GPO box X2213
Perth WA 6847

Telephone: (08) 9224 2244
Fax: (08) 9224 3511
Email: EMHS.GeneralEnquiries@health.wa.gov.au


Armadale Kalamunda Group (Armadale Hospital and Kalamunda Hospital)

Title: Corporate Officer
Address: Armadale Health Service, 3056 Albany Highway, Armadale WA 6112, or PO Box 460, Armadale WA 6992
Phone: (08) 9391 1153
Email: AKG_ConsumerLiaison@health.wa.gov.au
Websites: Armadale Health Service (external site)
East Metropolitan Health Service (external site)


Royal Perth Bentley Group (Royal Perth Hospital and Bentley Hospital)

Title: Consumer Engagement Unit
Address: Royal Perth Hospital, Level 3, South Block, Perth WA 6847, or Box X2213 GPO Perth WA 6847
Address: Bentley Hospital, G Block, Mills Street, Bentley WA 6102, or PO Box 158, Bentley WA 6982
Phone: (08) 9224 1637
Email: RPBG.feedback@health.wa.gov.au
Websites: Royal Perth Hospital (external site) and Bentley Health Service (external site)


St John of God Midland Public Hospital

Title: Consumer Liaison and Release of Information Officer
Address: 1 Clayton Street, Midland WA 6056
Phone: (08) 9462 5240
Email: info.midland@sjog.org.au
Website: St John of God Midland Public Hospital (external site)


 


Child and Adolescent Health Feedback Service

Perth Children’s Hospital

Title: Child and Family Engagement Services
Address: Perth Children’s Hospital, Locked Bag 2010, Nedlands WA 6909
Telephone: (08) 6456 0032
Email: cahs.feedback@health.wa.gov.au
Website: Perth Children’s Hospital (external site)


Country/Rural Feedback Services

WA Country Health Metro Office (they can link you to appropriate rural service)

189 Wellington Street, Perth WA 6000
PO Box 6680, East Perth Business Centre WA 6892
Telephone: +61 8 9223 8500
Facsimile: +61 8 9223 8599
Toll Free: 1800 629 028

Email: WACHS.SafetyQualityPerformance@health.wa.gov.au.

OR


PATS - Patient Assisted Travel Scheme

Kimberly

Bec Smith
Regional Director Kimberley
WA Country Health Service

Unit 1 & 2, 29 Coghlan Street
Broome WA 6725

Postal address: Locked Bag 4011
Broome WA 6725

Phone: (08)9195 2450
Fax: (08) 9192 5819
Email: KHS.Execsecretary@health.wa.gov.au


Pilbra

Regional Director

Margi Faulkner

Postal address: PMB 12, South Hedland WA 6722

Telephone: +61 8 9174 1600
Facsimile: +61 8 9173 3893
Email: WACHS-Pilbara.ExecutiveServices@health.wa.gov.au


Mid West

Acting Regional Director

Rachele Ferrari
Shenton Street
Geraldton WA 6530

Postal address: PO Box 22, Geraldton WA 6531

Telephone: +61 8 9956 2209
Facsimile: +61 8 9956 2421
Email: CES.WACHS-Midwest@health.wa.gov.au


Goldfields

Rgional Director

Peter Tredinnick
The Palms
68 Piccadilly Street
Kalgoorlie WA 6430

Postal address: PO Box 716, Kalgoorlie WA 6430

Telephone: +61 8 9080 5710
Facsimile: +61 8 9080 5724
Email: WACHS-GoldfieldsExec@health.wa.gov.au


Wheatbelt

Acting Regional Director

Russell Colyer-Cockburn
Shop 4, 78 Wellington St
Northam WA 6401

Postal address: PO Box 690, Northam WA 6401

Telephone: +61 8 9621 0700
Facsimile: +61 8 9621 0701


South West

Kerry Winsor
Regional Director South West
5th Floor Bunbury Tower
61 Victoria Street
Bunbury WA 6230

Phone: (08) 9781 2350
Fax: (08) 9781 2385
Emailkerry.winsor@health.wa.gov.au


Great Southern

Regional Director

Geraldine M Ennis PSM
WA Country Health Service – Great Southern

84 Collie Street
Albany WA 6330

Postal address: PO Box 252, Albany WA 6331

Telephone: +61 8 9892 2672
Facsimile: +61 8 9842 2643
Email: gs.ces@health.wa.gov.au 



Private Metropolitan Feedback Services

Saint John of God (all hospitals)


Saint John of God (all hospitals)

St John of God Health Care
Level 1, 556 Wellington Street
Perth WA 6000
Tel: (08) 6116 0000
Fax: (08) 6116 0800
Email: info@sjog.org.au

St John Of God (ALL HOSPITALS)  or https://www.sjog.org.au/about-us/contact-us

List of Locations  Feedback Form for SJOG Hospitals


Hollywood Hospital

Hollywood Private Hospital
Locked Bag 2002
NEDLANDS WA 6909

Phone: 08 9346 6000

Fax: 08 9389 8470

Email: enquiry.hph@ramsayhealth.com.au

Feedback Form for Hollywood Hospital


Other private hospitals

All other private hospitals:

Click here for link


 

Individual Advocacy

What is individual advocacy at Health Consumers’ Council?

  • Our individual advocacy service is available to any person with an issue in the WA Health System.
  • We provide independent advocacy to support the healthcare rights of individuals by working alongside and/or speaking, acting or writing on behalf of the advocacy client.
  • You don’t have to be a member of our organisation to access advocacy.

What does an individual advocate do?

  • Supports you when you have a problem/issue in the health system by providing information, guidance and representation that aims to resolve the problem.
  • Works with you when believe you have been treated unfairly or are looking for a solution to a specific problem or issue.
  • Speaks, acts, and writes on your behalf to promote, protect and defend your rights, opinions and concerns.
  • Remains empathetic and accountable to you. The advocate is on your side.

The advocate will

  • Listen to you and get an understanding of the issue.
  • Talk to you about your options and help you to make your own choices.
  • Provide you with information about services, supports and resources.
  • Encourage and support you to speak up for your rights and opinions.

The advocate will not

  • Provide legal or financial advice or assessments.
  • Investigate complaints and require services or individuals take action.
  • Manage or coordinate services (such as finding you a house or applying for a service or benefit).
  • Provide you with personal care or support workers.
  • Provide mediation or counselling.
  • Make decisions for you.

 

HELPFUL NUMBERS for contact to support your mental health if you need to talk with someone today.

Involuntary mental health consumers

Mental Health Advocacy Service (MHAS) – 1800 999 057(Mon-Fri 8.30am-4.30pm)

Emergency relief services

WA Connect – find emergency relief services or call 1800 979 777 from 9am-5pm Mon-Fri

Crisis lines

• Crisis Care 1800 199 008 (24/7)

• Entrypoint  1800 124 684 (Mon-Fri 9am-7pm; Sat 9am-5pm)

• MHERL (Mental Health Emergency Response Line) 24/7

  • Metro 1300 555 788
  • Peel 1800 676 822
  • Regional 1800 552 002

• Lifeline 24/7

• 1800 Respect (24/7) – 1800 737 732

• Women’s Domestic Violence Helpline (24/7) – 1800 007 339

• Men’s Domestic Violence Helpline (WA) – 1800 000 599

• For translation and interpreting services, call TIS 13 14 50


To contact an advocate, call (08) 9221 3422 (extension 1) or email advocacy@hconc.org.au 
 
If we can’t help you, we will tell you why and refer you
to another service if possible.
Sometimes, despite our best efforts, issues may remain unresolved and we may stop providing our services. If this happens we will explain to you why.

 

Recordings

Here are links to recordings talks and Q&A sessions.

Fireside Chats

Our Fireside Chat series gives you the chance to hear from medical experts and have your questions about COVID-19 answered.

Director of Clinical Services, Royal Perth Bentley Group, Area Director of Clinical Services, East Metropolitan Health Service and Professor of Medicine, University of Western Australia, Professor Grant Waterer and Manager

After very positive feedback from our first chat with Prof. Waterer, we asked him back to provide another clinical update including information on antivirals to treat COVID-19, second generation vaccines long COVID and the latest on testing for COVID-19.

Recorded on Monday 12 September  2022.

Click here to view the recording of Prof. Waterer.

 

Perth Children’s Hospital clinicians:

  • Dr Andrew Martin – Head of Department for Perth Children’s Hospital (PCH) General Paediatrics

  • Chris Blyth – Paediatric Infectious Diseases Physician at PCH and former Co-Chair of the Australian Technical Advisory Group on Immunisation

  • Dr Michael Baker – Head of Department for PCH Emergency Department

  • Dr Nick Gottardo – leading clinician in Haematology and Oncology

Top Perth Children’s Hospital discuss COVID and kids in the context of the current (Omicron) outbreak and take consumer questions on the topic.  Discussion includes current picture, vaccination, when to get help or present to the Emergency Department, COVID Care at Home and the Specialist Paediatric and Adolescent Remote Care (SPARC) service for very vulnerable children and COVID and immunocompromised children.

Click here to view the COVID and kids recording.

Director of Clinical Services, Royal Perth Bentley Group, Area Director of Clinical Services, East Metropolitan Health Service and Professor of Medicine, University of Western Australia, Professor Grant Waterer and Manager – Social Support, COVID Care Assistance Team (COVID CAT), Department of Health, Selena West.  

Professor Waterer provides a clinical update on COVID-19, as well as sharing his best tips on preparing for living with COVID, in the home and in the community. This will include advice on how to care for yourself, your family, or someone you care for, if you get COVID-19. 

Ms West provides an overview of COVIDCAT, the public health service designed to address the needs of people in the WA community who require additional support should they get COVID-19 or are required to isolate due to being a close contact.  Overview includes how service can help, who can access it, and how.

Recorded on Tuesday 8 March 2022.

Click here to view the recording of Prof. Waterer.

Click here to view the recording of Ms West.

 

Assistant Director General, Clinical Strategy and Planning, Dr Robyn Lawrence

Dr Robyn Lawrence gives an overview of WA COVID Care at Home.  She also answers consumer questions on the new remote monitoring service for high risk COVID positive patients in their homes.

Recorded on 18 February 2022.

Click here to view the recording.

 

Incident Commander at the State Health Incident Coordination Centre, Dr Tudor Codreanu

Dr Tudor Codreanu, Incident Commander at the State Health Incident Coordination Centre at Department of Health, discussed WA’s readiness for the next stage of living with Covid-19. Dr Codreanu works alongside the Chief Health Officer and public health team in the State Health Incident Control Centre, providing advice and support around WA’s response to COVID-19. This session explored the next stage of living with COVID-19, WA’s readiness, how the system has or is preparing, how consumers can prepare, vaccination, variants, modelling and everything in between.

Recorded on 14 December 2021.

The recording of this session will be available soon. 

 

Co-Chair of the Australian Technical Advisory Group on Immunisation, Dr Chris Blyth

Dr Chris Blyth, clinical academic at Telethon Kids Institute and Co-Chair of the Australian Technical Advisory Group on Immunisation (ATAGI), Australia’s peak immunisation advisory group to Government answered consumer questions on the vaccine(s).  Dr Blyth was able to talk to some of the main side effects of concern and clearly explain some of ATAGI’s key considerations when deciding who is eligible for which vaccine and vaccine strategy.

Recorded on 5 August 2021.

Click here to view the recording.

 

Chief Health Officer, Andy Robertson

After a break from our Fireside Chats, we’re bringing the Q&A session back to talk to Chief Health Officer, Andy Robertson. WA’s hard borders are softening – now what?

Recorded on 18 December 2021.

Click here to view the recording.

 

Pathwest Chief Executive, Joe Boyle

For our sixth Fireside Chat we were joined by the Chief Executive of Pathwest, Joe Boyle.

We discussed COVID testing processes in WA and the role testing plays in ongoing vigilance in avoiding community spread.

Recorded on 27 August 2020

 

Click here to view the recording.

 

Director General of WA Health, Dr David Russell-Weisz

This was the second time the Director General of WA Health joined us for a Fireside chat, this time on Thursday 23rd July.

We discussed “COVID-19: What’s next for Western Australians”.

Recorded on 23 July 2020.

Click here to view the recording of this webinar (45m35s)

 

Aboriginal Health with Wendy Casey

This 45 minute session addressed questions about how the WA health system has prioritised responding rapidly to the risks posed to, and the needs of, Aboriginal communities in Western Australia during COVID-19. You can find some of the work reflected on this webpage. Also discussed was the Journey of Health and Wellbeing Video developed in partnership with WA Health, Danny Ford and Tim Muirhead as part of the cultural competency training work, Mary G’s Telehealth video, and the Aboriginal Health and Wellbeing Framework

Recorded on 25 June 2020.

Click here to view the recording of this webinar (41m30s)

 

Staying Well in a Pandemic, Dr Denise Sullivan

The third in our series of Fireside Chats was held on Thursday 11th June with Dr Denise Sullivan. It tackled your questions about how to minimise the risk of infection, how the impact of the pandemic is being tracked and preparation for recovery. It also explored what it’s been like for Public Health staff during this unprecedented time.

Recorded on 11 June 2020.

Click here to view the recording of this webinar (44m35s)

 

WA Health Assistant Director General, James Williamson

The second in our series of Fireside Chats was with James Williamson, WA Health Assistant Director General, Clinical Excellence Division. Health Consumers’ Council Executive Director Pip Brennan put your COVID-19 research-related questions to James Williamson in this informal, virtual event.

Recorded on 28 May 2020.

Click here to watch the video (58 minutes)

 

Director General of WA Health, Dr David Russell-Weisz

The first Fireside Chat was with the Director General of WA Health, Dr David Russell-Weisz.

Recorded on 14 May 2020.

Click here for the video replay of the event (55 minutes)

 

Other recordings

Audio Recording: Implementing Care Opinion in the health and social care sectors – lessons from Scotland 2021

Audio Recording – AGM Panel Discussion – Roger Cook, Zak Kirkup, Rachel Siewert 2020

How consumers shaped the Healthy Weight Action Plan and what’s next

Consumer and carer Involvement in COVID-19 Research

Engaging consumers, carers and community in primary care

Engaging Consumers Carers and Community  in Advance Care Planning

Choosing Wisely – reducing unnecessary tests and treatments

 

 

Consumer Updates and Conversations

The implementation of the Sustainable Health Review is expected to be a ten-year process. The commitment to new approaches to support citizen and community partnership should open many doors for consumer, carer and community representatives to be involved. In order to support us to be effective, this page aims to provide up to date information about the Sustainable Health Review.

There was a Consumer Briefing Session on the Sustainable Health Review conducted on 19th October 2020 by Nicole O’Keefe and Nicole Bennett from the WA Department of Health here or click the video link below:

You can also access copies of the slides here from the presentations here:

26th October 2020 Community Conversations and Feedback

After the 19th October session, we ran a further session which was a chance for consumers to reflect on all the information provided at the 19th October session and give their feedback on what were some of their ideas.

Click here to read the report

Click here to read the PowerPoint report

Updates on specific recommendations

Recommendation 2a: Halt the rise in obesity in WA by July 2024 and have the highest percentage of population with a healthy weight of all states in Australia by July 2029

In this short (11m) video, we give a brief overview of what we know about the plans in regards to this recommendation as of early August 2021. You can find out more about Health Consumers’ Council’s work in this area at https://www.hconc.org.au/partners-in-change-healthy-weight/ We are also adding more videos to our You Tube playlist – click here to view

Community and connection – how peak bodies pivoted during COVID-19

When COVID-19 hit the headlines early in 2020, there were big concerns around how people would be able to maintain strong connections with their peers and communities, while self-isolating, working from home, and spending more time on their own.

It was fascinating to see how organisations around WA pivoted their activities to make sure people could still connect and get the support they needed. We take a look at how that unfolded for several key consumer organisations, and the lessons learned about community during a global crisis.

People With disabilities WA

People With disabilities WA have always done a lot of work through phone and email so the biggest shift was ensuring that these things could still happen while staff have been working from home. We were aiming for as little disruption for consumers as possible and the biggest issue was that some of our group meetings for projects had to move from face-to-face to an online Zoom or other format.

What we found was that for most of the people with disabilities that were part of these groups, doing a meeting via Zoom was a lot easier and made them more able to attend and participate. This was the same for some of our individual advocacy work where people with physical disabilities in particular and disabilities which made it difficult to access transport were much more comfortable using tele or videoconferencing. However, for others with different disabilities, Zoom meetings were and are more difficult.

We found that there was a very little change in the amount of interaction and communication that we have been getting from consumers. Certainly there has been no decrease in the need for advocacy whether things were COVID related or not.

For our individual advocates and our project staff we will be continuing to use Zoom and Microsoft Teams as a way to connect with each other and with people coming to us for support. Our staff are seeking more flexible arrangements with their work, and our technology and understanding of technology has increased to allow that flexibility to happen both for our staff, and the way we interact with consumers. These are absolutely things that we need to keep in place and will be keeping in place into the future.

 

Consumers of Mental Health WA

Consumers of Mental Health WA (CoMHWA) created and maintained a central hub of resources for consumers and provided education and upskilling to peer support workers working through these changing times.

They increased their social media presence and encouraged ongoing engagement with members through online means. To support this, they recorded video messages from staff and produced resources for how to use online video conferencing.

CoMHWA provided a continuity of support through transition to phone and online meetings where appropriate. They ensured phone and in-person support resources were mailed to members, to ensure that members without technology or internet access where still able to reach needed supports.

CoMHWA found many people responded positively to these changes, stating that the information being made available was useful and a welcome distraction. Importantly, they noted it was great to still be able to connect with others.

However, some consumers found the technology difficult to navigate or did not have access to technology. Others found it hard to engage with others effectively in this way, with one consumer saying it was “harder to stay focused in online meetings due to the lack of active engagement activities and interaction”.

On the whole, many consumers want the provision of education and groups to continue online as the accessibility and flexibility is more suitable to their needs, with one consumer saying “thank you so much for this series, it has been very helpful”.

While reliance on technology solely reduces access for some of the population, peer support can be useful to assist people to overcome some technology barriers.

Engaging via video conferencing increases accessibility for some of the population, and a key factor to successful engagement is regular, short sessions.

Online delivery of webinars/meetings/groups will continue as an option to allow access as CoMHWA works towards a ‘new normal’. The lessons learnt from this period will be used to ensure the broadest access and distribution of information, resources and supports.

 

Carers WA

When Carers WA had to cancel their face-to-face services, they relied on phone, Skype, email and Zoom to stay connected with their community.

While there was a good response to this change, many were keen for specific services, such as social support groups, education and training sessions, to resume in a physical format.

On an organisational level, Carers WA learned that while working from home is technically possible for some roles, it didn’t work as well for others. However, the organisation plans to consider more flexible working for the future, maybe mixing office and home working where practical.

Looking to the future, Carers WA note that many of their services are provided remotely as the norm so these will continue. While they don’t plan any significant changes in service delivery, they will have more scope to hold meetings with others service providers or interstate people and organisation online through Zoom.

 

Health Consumers’ Council

 

Our biggest priority over the last few months has been to mitigate the risks to our staff and community, while maintaining a focus on connection. Like many around the country we took our work online, connecting with our own team, consumers and WA Health through Zoom, Microsoft Teams, Scopia, and other online platforms.

As everyone began to adapt to a new way of doing things, our engagement team began to upskill in hosting engaging, interactive online events, and we hosted introductory sessions to help consumer navigate Zoom.

We heard that opportunities for health consumer, carer, community and family representatives to connect with each other, with the health system and with organisations like us became even more important, as many in-person opportunities were postpone or cancelled. We quickly convened a COVID-19 community of interest, so that our executive director Pip Brennan could contact a ready source of consumers and carers for surveys, feedback, consumer opportunities and online forums.

Our fortnightly online drop-in sessions brought a lot a value to the community, providing the space for an informal, online get together with anyone involved or interested in consumer, carer, or community representation. In particular, they gave us a chance to involve people in rural areas who may not otherwise have been able to make it to a consumer event in Perth. Overall, we had about 120 participants across the five fortnightly sessions.

We listened to what we were hearing from consumers and their questions around COVID-19 and got involved in more online events. Our fortnightly Fireside Chats with WA health experts allow for interactive Q&As with the likes of the Director General David Russell-Weisz, and Assistant General of Clinical Health Excellence, James Williamson.

We continued to work closely with health consumer peaks across Australia, partnering with Health Issues Centre for a series of online forums exploring COVID-19 and Australia’s recovery from the pandemic. These workshops were attended by several hundred people and featured guests like Victoria’s Chief Health Officer, Professor Brett Sutton and Deputy Chief Public Health Officer and Executive Director Health Protection and Licensing Services, Dr Chris Lease.

Throughout it all we used social media and email to keep in regular contact with our community, not just about our own engagement activities but with reliable COVID-19 updates, consumer opportunities, and other ways to stay connected with community during challenging times.

This sense of connection and being able to reach a wider audience has been something we will carry with us as we establish new ways of working in the wake of COVID-19. We’re committed to finding a good balance between in-person and online events that removes as many barriers as possible for those wishing to attend, and will continue to look at ways to make our engagement activities more accessible to all.

 

Befriend

*Befriend is a West Australian community development organisation sparking inclusive, connected communities. They operate community building and consulting services, developing the capabilities of local residents and community organisations to nurture connection and belonging for all people – and have a unique perspective on community connection.

Some of the most adverse effects of COVID-19 on West Australians were the social effects. Physical distancing precipitated social disconnection from each other, at a time when we needed our relationships more than ever. As an organisation that fundamentally exists to nurture connection, we invested to pivot and scale our operations in response to the rapidly elevated community need for social connectedness.

Our community builders pivoted our work in supporting inclusive social networks from place-based to digital, supporting local residents to host online social gatherings that offered a relevant alternative to help people stay socially connected. Our consultants acted in an advisory capacity to support a number of community organisations and local government authorities with designing contemporary service models that would support social and community connectedness within the constraints of physical distancing. For the Befriend Team, it was not a matter of ensuring continued support; it was a time to step up to the call of our purpose.

It was affirming to have so many other people realising what we’ve known all along, what we advocate for at the heart of our work at Befriend – that connection and community are at the heart of community wellbeing, and are essential in sustaining a thriving society. Services can only do so much; it is the strength of our relationships with each other in community that are fundamental to our collective wellbeing.

It’s been a time for community members to realise the value and importance of all members of society – of our elders, of people with diverse abilities, of people from culturally and linguistically diverse backgrounds.

It’s been a time to learn about and reflect on the power of technology in sustaining our connectedness, and to work on our relationship with technology, finding new and different ways to use it whilst managing the ways that it can constrain our connectedness and wellbeing.

As we move beyond the turbulence of recent months, one of our primary objectives at Befriend is to capitalise on the increased awareness of the importance of social connectedness and the increased motivation for community contribution, furthering our community building work to mobilise and support more citizens to become active in nurturing connected communities.

 

*This article was originally published in Health Matters 

Feedback and complaints – How and why you should share your experiences

Feedback is a good way of gaining information on areas of strength and areas that need to be improved. In healthcare, feedback can be a key way to improve patient safety and ensure ongoing quality improvement.

Whether your experience was good or bad, sharing your feedback could help raise awareness and lead to improvements.

But we know giving feedback or making a complaint isn’t always easy. In late 2019 we were commissioned by the Department of Health to support them in seeking consumer input about the process of making a complaint and giving feedback. Many people commented on how difficult it can be to find out how to give feedback or make a complaint.

Many people also responded that a prominent reason for not giving feedback was simply that they were not asked, saying there was an opportunity to increase ways to give feedback “in the moment”. People noted that in hospitality, you are asked for feedback at various stages in the process, and that this gave people an opportunity to address any issues when they arise. Ways of making it simpler to give feedback were discussed, including looking at how to use technology to encourage feedback from a wide range of people – for example, kiosks where people can quickly note 😊 or ☹ could help a service get a quick idea of how it’s doing, as well as making it easier for consumers for whom English may not be a first language to give feedback. We really encourage consumers to give feedback even when it’s not asked for, because feedback is the backbone of safety and quality improvements.

You can also keep an eye out for feedback forms that you may be given if you go to hospital (they may be in a folder near the bed) and speak to the person providing your care about how you can give feedback. By taking a look at our self-advocacy resources you can prepare for your doctor’s visit or hospital stay, which may help you feel more confident to ask questions and provide feedback.

You can give feedback verbally, in writing, by speaking directly to health service staff, to consumer or patient liaison staff, to Aboriginal Liaison Officers, or if given a follow up call after discharge from hospital. Many people commented that making a complaint, or sharing some positive feedback can feel like an extra thing to do after you’ve finished at a health service. One way that many people felt was a relatively easy way to give feedback was via Care Opinion Australia (previously known as Patient Opinion – see below).

While many people highlighted barriers to giving feedback that were discussed in these sessions, in the workshop with Aboriginal people, many people described how their experience of racism in the health system impacted on the likelihood and way they give feedback or make a complaint. We heard strongly there is much that needs to be done to ensure feedback mechanisms are accessible and culturally safe for Aboriginal people and will continue to advocate for this.

Many people spoke of how valuable it can be for people to have access to independent support to make complaints to health services. Health Consumers’ Council provides an individual advocacy service, as do a number of organisations like People With disability WA and Carers WA, but we know there are more people who could benefit from this support than are able to access it currently. Again, increasing access to advocacy support is something we will continue to argue for.

We’ve gathered some resources to help guide you on where and how you can give feedback. You can also call us on 9221 3422 or 1800 620 780 (country freecall) for advice on the best way to make a complaint, or for support in making a complaint.

Care Opinion Australia

Care Opinion Australia, previously known as Patient Opinion Australia, is an independent online platform for people to provide feedback on services.

At www.careopinion.org.au anyone can share their stories about their experience of care. The site covers health and aged care, and community services in Australia, giving service users, their families and carers the opportunity to publish their personal experiences, good or bad, of the care system.

Care Opinion works so well because it gives you a public, but anonymous, way to voice your experience about the services you use. The right people at the service or provider will see your experience and have the chance to respond.

Care Opinion is safe, confidential and independent of services and authorities. Additionally, reading the stories that other people share on Care Opinion may help you choose the best care providers.

If you are unable to write your story on the website, you can speak to Care Opinion in confidence on the phone by calling 1300 662 996 (mobiles may pay charges).

“A couple of years ago my daughter was admitted to hospital. Unfortunately there were some issues that arose during her stay and treatment, systemic issues that meant I didn’t really know who to address the feedback to. I had known about Patient Opinion [now called Care Opinion], that her experience would be public and that the hospital would be required to respond publicly. It seemed like a good way of raising the issues that we had, and it was. We received responses from the EDs of the services involved, which meant that the people at the top were aware of what had happened and were willing to make changes. Patient Opinion gave us the chance to tell our story, for it to be read by people who have the power to make changes and for us to feel like we were heard.”

How to make a complaint

Feedback can be a powerful way of improving the health system for yourself and others, however we recognise it can sometimes be a difficult or emotional path to travel. Health Consumers’ Council can support you through this process.

You can find resources to help you write a complaint to a hospital and apply for your medical resources on our Useful Links for Self Advocacy page.

The first step in making a complaint is to be clear about what the problem is and what exactly you are making the complaint about. This is sometimes called identifying the key issue.

You may then want to call the health service to ask about their complaint process (how you would go about making a complaint). Avoid going into details of the complaint unless you are sure the person you are speaking to is the one who receives complaints.

In some cases, we recommend making your complaint in writing. That way, someone becomes responsible for writing back to you, and your complaint is more likely to find its way to the right person or place for action. Always phone the service first to find out the name and title of the person you should write to. When submitting a complaint in writing, be firm but polite and keep your message to the point. If you do not have access to a computer, do not be put off – handwritten letters are fine.

Most, if not all, complaint agencies will allow you to have an advocate (someone who can act on your behalf) to help you put your complaint into writing if you are not confident about doing so yourself.

Health Consumers’ Council provides an advocacy service to assist health consumers in making complaints. We are an independent consumer advocate organisation and are able to support you through the process.

 

*This article was originally published in Health Matters 

Speaking Up and Giving Feedback

Speaking up or advocating is important to ensure you get the care and treatment you deserve.  You can advocate for yourself or your loved one and if you are doing so may find these resources helpful.  Alternatively, if you feel you need advocacy support around a health issue, the Health Consumers’ Council may be able to help you.

Consumer, carer, family and community representative network – previous events

Makuru/winter 2021

This session was an opportunity for people to connect and network with each other. Participants broke into four groups and discussed:

  • Sharing your lived experience story to affect system change
  • What is good quality engagement?
  • Measuring safety and quality in healthcare – including patient reported outcome measures, and patient reported experience measures
  • Consumer representation at an international level

Pip Brennan from HCC also gave an update on the Sustainable Health Review – click here to see those slides

Bunuru/autumn 2021

This session focused on digital rights and privacy consideration in relation to digital health.

Birak/summer 2020

This session focused on the Sustainable Health Review and in particular, recommendation 4. You can see the slides, and more information about HCC’s work on the Sustainable Health Review here https://www.hconc.org.au/what-we-do/policy-development/sustainable-health-review-consumer-view/

Djilba/spring 2020

The focus for this session was on consumer feedback and complaints. How to provide feedback and make complaints, and how this feedback is used by health services to improve services and outcomes. We were joined by Michael Greco from Care Opinion, and Carly Parry from Health Consumers’ Council’s Advocacy team.

Makuru/winter Tuesday 30 June 2020

In this session we heard from Ghislaine Martin from Consumers Health Forum Australia who gave an overview of the national consumer representative program.

Autumn/Bunuru Wednesday 18 March 2020

This session took place during Harmony Week. Participants shared the countries and cultures they feel connected with – this included Australia, Italy, Spain, the UK, Ireland, Sri Lanka, the US, Finland, New Zealand and China.

We were joined by Carolyn Ngan, who shared some of her experience of working with the National Safety and Quality Health Service Standards.

Carolyn is an Occupational Therapist with wide and varied experience in the health system in Western Australia. She has worked in the regions and in the metro area in areas including mental health, disability services, Aboriginal health and primary care. She works as an Assessor for the National Safety and Quality Health Service Standards for the Australian Council on Healthcare Standards where she has hands-on experience of going into health services around Australia and assessing them against the new national Standards. She also has experience of working in health services undergoing accreditation in WA.

Carolyn shared her passion about the role that consumers, carers, family and community members can play in ensuring health services and health care are safe and high quality.

In this session we explored some of the ways in which consumer, carer, family and community representatives can use the Standards to help continually improve WA health services. Notes from this session will be posted when they are available.

Summer/Birak Wednesday 4 December 2019

We gathered under the much appreciated shade of the old trees at Victoria Gardens in East Perth and reflected on the relationship between nature and health. People shared their wishes for consumer and community engagement in health for 2020 and had the opportunity to share and meet other people in consumer representative roles.

Some comments from the evaluation forms:

  • “Having the meeting outside in a beautiful shady spot amongst beautiful trees, feeling connected to community & nature at the same time….” [was most useful]
  • What will you do differently after this workshop?
    • “Suggest outdoor meetings where possible with work / clients”
    • “Utilise nature as a tool, it is such a leveller!”
    • “remember that venues don’t always have to be rooms”

Spring/Djilba 2019 Wednesday 25 September

The topic for this session was: “Engaging your community as a consumer, carer, family or community representative”. Attendees had the chance to share what they currently do to engage and communicate with the broader community, as well as taking part in a creative idea generation process to identify other opportunities.

District Health Advisory Council Chairs – August 2019

HCC staff ran a workshop for District Health Advisory Council (DHAC) leaders on engaging their communities.

Winter/Makuru 2019 – Monday 1 July 2019

This session focused on the Sustainable Health Review, and in particular the recommendation relating to new models of community and citizen partnership.

Autumn/Djeran 2019 – Wednesday 20 March 2019

This event was held in conjunction with the Health Engagement Network