Search Results for: health information

Health Information

Information is essential for you to be confident and empowered when making choices about your own health care.

Knowledge about health issues is constantly changing. Every year increases the sum of human knowledge through scientific and medical research, and consumers are empowered who are able to access and understand new information, relevant to their health care.

Warning on using the Internet

The Internet can be an invaluable source of up to date information, about medical conditions, illnesses, research findings, services and other issues of importance to you. However, the quality and reliability of health – related sites on the Internet are varied. Accuracy is not guaranteed. Further, each health consumer or patient is an individual, whose condition is unique. Not all advice on the Internet is good. Not all advice will be relevant or safe for you. A good approach to using the Internet is to make notes on the information that interests you and then discuss it with the doctor or other health professional who is treating you.

Click here to access our list of health sites

Information about the WA Health System

We have collected or developed the below resources to help newly arrived migrants, people who are unfamiliar with the WA health system, and/or those who do not have English as a first language. Not all resources are available in languages other than English, but where available we have provided links.

Covid-19 multicultural resources – A collection of Covid resources in languages other than English from both government and reputable other organisations.  Includes a video about the government’s COVIDsafe app available in 8 different languages and also a link to download a Covid information app in language.

Overview of the WA Health System  – This Government of WA, Department of Health page gives a brief overview of the WA public health system and how it is divided up (geographically) into the  metropolitan services of North Metropolitan Health Service, The South Metropolitan Health Service and The East Metropolitan Health Service plus the The Child and Adolescent Health Service and WA Country Health Service for regional and remote.  Links to each of these services are provided on the page.

Medicare eligibility and enrolling – This Australian Government page explains who is eligible for Medicare and how to enrol for a Medicare number / card.

About Medicare – This Australian Government page explains what is covered by Medicare and how to make claims (for money back or rebates)

Choosing Private Health Insurance – This page by the Commonwealth Ombudsman for Private Health Insurance explains how private health works in Australia and provides information on choosing a policy.

Your healthcare rights – This Health Consumers’ Council page explains your (legal) rights in healthcare around informed consent and the right to competent care.  Links also to more detail about mental health rights.

Going to hospital – Easy English Version – This is a Health Consumers’ Council produced brief brochure which explains (in simple English with few words and plenty of images) what to expect if you are going to hospital.  Includes what to pack and a bit about what to expect when you get home.

Going to hospital – Languages Other Than English – The above mentioned Health Consumers’ Council brochure is available in Farsi, Arabic, Urdu, Dari and Karen.

Choosing the right health service – This animated video from Health Direct (available in English, Arabic, Bengali, Chinese and Vietnamese) explains when it’s appropriate to use an online information resource, consult a telephone or online health help line, consult a pharmacist, consult your GP or go to hospital.

The role of a GP  – This animated video from Health Direct (available in English, Arabic, Bengali, Chinese and Vietnamese) explains the role of a General Practitioner (GP) or local, family doctor.  It explains what a GP can do for your and your family and how and when they will pass you over to a specialist doctor.  It explains how to find, choose and access a GP.

Paying for Healthcare – This animated video from Health Direct (available in English, Arabic, Bengali, Chinese and Vietnamese) discusses the cost of various health services and what services are covered by Medicare, the government scheme that helps Australians pay for healthcare.

Maternity Services – This animated video from Health Direct (available in English, Arabic, Bengali, Chinese and Vietnamese) looks at options for pregnancy care and where to give birth in Australia and the costs associated with the services.

Baby’s First Weeks – This animated video from Health Direct (available in English, Arabic, Bengali, Chinese and Vietnamese) looks and the services and support you can receive in the weeks post birth of a baby when living in Australia.

Mental Health – Link to the Embrace Multicultural Mental Health portal which is for both community and services providers.  For community there is a range of mental health resources in multiple languages as well as some personal stories and a list of community support organisations.

Five Questions To Ask Your Doctor – This is a Choosing Wisely provided resource, available in multiple languages, which provides five (5) questions which it is sensible to ask your doctor before opting for any test or treatment (together with a brief explanation as to why each is important).

Speaking Up and Giving Feedback – Link to the Health Consumers’ Council page of “self-advocacy” resources.  It provides key resources and links to websites to support yourself in the health system, and provide feedback to our health services.

The Health Translations Directory – A Victorian Government library of health resources which have been translated into multiple languages.  A very well stocked library which you can search via topic / condition or via language.

 

If you are from a Culturally and Linguistically Diverse (CaLD) background or work with people from a CaLD background then please participate in our survey on available health literacy resources for CaLD populations.   

Click here to complete the survey

Digital Health and the Electronic Medical Record – February 2024 Update

WA has been talking about getting an Electronic Medical Record for decades but to date, this has not exactly eventuated.

The first iteration of a digital record in our state came about when the Fiona Stanley Hospital was built in 2013. A newer version of this digital medical record has been in the process of being rolled out across our vast state since 2022. This has been done in preparation for a full Electronic Medical Record.

A project of this scale will require significant investment. During 2022-2023, a Business Case was developed and has now been submitted to treasury for consideration.

In 2021, HCC worked on a Consumer Charter for an Electronic Medical Record. If our state is successful in obtaining funding for the full Electronic Medical Record, there will still be a 10-year process to get a finalised version working in all our public hospitals. That means consumers will still be able to influence the design to ensure it meets our needs, as well as clinician and health system needs.

What do consumers think?

Consumer Involvement

HCC has been funded by WA Health to establish a Consumer Reference Group to help shape the project.

We will run three webinars between now and June 2024, and our Consumer Reference Group will meet four times within that period as well. We aim to build on the work of the Consumer Charter to provide considered feedback about our concerns and hopes for the key elements of an Electronic Medical Record.

We invite you to join us for the webinars; more details will be available soon and we will post the recordings online for those who can’t make it.

Connecting Across our Whole Health System

“Interoperability” – our information able to be accessed by ALL our care team.

An Electronic Medical Record is all your health information from within public hospital walls. Consumers have said they are interested in their GP also being able to access important health information. Linking up residential and home-based aged care services has also been mentioned regularly. This is not the current focus of this program. Our role as consumer advocates is to link in with what is happening at a federal level with My Health Record. Ideally, we can help ensure the consumer ambition to have more integrated care is supported through digital innovations such as a patient portal that links up all our records.

Patient Portals

These are the public-facing part of an Electronic Medical Record – the part we will interact with. This is an area that we need to be able to influence the design of – seeing and changing appointments, being able to message the care team, etc. Continuing to link in with the federal developments of My Health Record will be a key consumer advocacy point.

Data Use, Privacy and Confidentiality

Connecting data across systems is currently very difficult. This makes it difficult for us to know if  health interventions are having the health outcomes we seek. An electronic medical record will generate data that could help us better understand the health outcomes being created through our health system. Meanwhile, My Health Record offers us the opportunity to lock down parts of our record, and know who has accessed our record, and we need to understand what might be possible in an Electronic Medical Record.

Patient Reported Outcome Measures and Patient Reported Experience Measures

Known as PROMS and PREMS and aiming to measure the patients’ views of their experiences and health, these measures are being developed in a piecemeal fashion in different areas of health and different parts of Australia (and the world). They will be part of the Electronic Medical Record and we need to be part of the conversation about what measures are used or developed.

Care Pathways – Sandwich or Biscuit?

Care pathways are informed by a number of factors, including evidence from clinical practice, research, and service improvement projects. These are a description of the best evidence informed care that consumers can expect. They are not meant to de-personalise care, rather care pathways are “guard rails” to support safe and high-quality care. These too will be encoded into the My Health Record and will require a coming together across WA’s public health system to agree on these. For example, if you are receiving diabetic care and experience low blood sugar in one part of the health system, you may be offered a sandwich. If you are in another part of the health system you may be offered a biscuit. How these are harmonised and developed across the state requires consumer input.

 

Pip Brennan, Consumer Consultant, February 2024

 

Health Service Consulting

Health Consumers’ Council is an independent charity that also operates as a non-profit social enterprise. Delivering paid projects is one of the ways that we fund our work with consumers, community members, and people with lived experience. Engaging HCC to work with your organisation will also help us to achieve our shared goal of person-centred equitable high-quality care for all.

Our consulting services support consumer-focused organisations with the design and development of innovative, contemporary approaches to consumer and community partnerships and involvement. With a people-first approach and a consumer/lived experience lens at the heart of everything we do, our work helps health organisations and staff feel more confident to work with consumers in a meaningful way.

We invite you to discuss your project and any associated fees with our team. We work hard to keep our overheads low so we can offer you value for money. When you work with HCC, you have the added value of knowing any revenue we generate is used to benefit the WA community.

Supporting health services to involve consumers and community

Health consumers play a vital role in ensuring improvements in healthcare delivery and a more person-centred healthcare system. We believe you cannot have effective, efficient, and safe health services without input from consumers.

In addition to providing support, education, and facilitation for health consumers, carers and community members, we offer a range of services for healthcare providers and the health system. Some of these attract a fee, which we encourage you to discuss with us.

With a deep understanding of the issues that impact diverse consumers, a wealth of collective knowledge, data and experience around working with the health system, and the ability to provide unique and nuanced insights, we offer immeasurable value to those wanting to deliver health services based on consumer needs.

We believe in the importance of authentic, productive partnerships in healthcare to create the WA health service we all aspire to.

Our full capability statement will be available soon.

When you work with HCC, you will have access to:

  • A partner who will work with you to shape and guide your project so that you get the right level of engagement to deliver on the promises made to all stakeholders
  • An equitable and collaborative approach that is sensitive to the needs of both consumers and health services staff
  • A team of qualified, multi-skilled experts with considerable lived experience, who are committed to championing the consumer voice
  • Experienced facilitators with diverse backgrounds, skilled at engaging with consumers with diverse backgrounds and requirements, in a meaningful way
  • An extensive network of connections and ongoing, trusted relationships with health consumers and communities
  • Support to connect and engage with informed and experienced consumer representatives

When should you contact us?

Before you scope your project: we can advise on timeframes and resources needed to meaningfully engage with consumers, carers and community members.

Once the scope is confirmed: we can advise you on ways you can reach and engage with your target groups.

During your engagement activities: we can help you to think through how best to get input from your target audience, be a sounding board for your plans, and be a place to debrief so you can embed the learning you’ve had from the work.

We offer targeted workshops and programs for health services staff to improve their understanding of consumer perspectives and effective consumer engagement, as well as workshops you can offer to your consumer representatives.

All of our training is available on a bespoke basis, and can be delivered in person or online.

We can also develop training and education packages to support your organisations’ specific needs.

For healthcare staff and organisations

Introduction to partnering and engaging with consumers: an introduction to some of the things to consider when thinking about working with consumers and carers in health.

Supporting Cultural Diversity in Healthcare: supporting health workers to provide culturally inclusive services that support patient-centered care.

Acknowledging Country workshop: learn to deliver a personalised Acknowledgment of Country with confidence and respect.

For consumer advisory groups

Introduction to consumer representation: support the development of a new consumer group, or upskill and support an existing consumer group.

Making the step from theory to practice in consumer engagement can be difficult. We’re committed to supporting people working in health and social care to involve consumers, carers, community members, clients and service users meaningfully in planning, developing, implementing and reviewing policies and services.

Our team is available to talk to you about your current projects or concerns and provide advice and suggestions about how to best engage with consumers.

Consulting and advisory services: providing advice and support on a range of issues related to consumer engagement, health policy, and health system reform.

Consumer partnership mentoring/coaching: helping you develop skills, awareness and strategies for engaging with health consumers.

Consumer engagement project planning: helping you effectively and meaningfully involve consumers in planning, developing, implementing and reviewing policies and services.

Consumer engagement: expert advice, support, recruitment, and facilitation to ensure the consumer voice is heard.

Facilitation: online, in-person or hybrid facilitations of consumer, carer and community engagement activities.

Supporting communications projects: ensuring information is accessible, easy to understand, and delivered to those who are harder to reach.

 

If you are looking for consumers and community members to join your committee or advisory group, or to provide other input on your project, we can help.

Whether you’re looking for guidance on how to get started with consumer recruitment, or you’d prefer someone to manage the recruitment process for you, we are available to help.

We encourage you to have a chat with us about how we can connect you with a diverse audience of engaged consumers and lived experience experts from different demographics and backgrounds.

Make sure you have a read of these key considerations for involving and partnering with consumers.

 

“Thank you so much for your help in arranging today’s regional focus on [this topic]. The participants were well informed, adequately prepared and provided invaluable insights throughout the course of the session… This first focus group has set a strong foundation (and very high bar!) for subsequent sessions in this project. This is testament to HCC’s strengths and your hard work in making this happen in such a short period of time.” – Client

 

“The HCC demonstrated exceptional skills to connect and develop meaningful relationships with multicultural communities in this project. The HCC ensured all community members were empowered and had a voice to improve the cancer care journey and successfully recruited culturally and linguistically diverse men and culturally and linguistically diverse people living in regional WA to participate in the project. Their leadership and contribution have informed the Department of Health on ways to improve the cancer journey for culturally and linguistically diverse consumers and carers.” – Health Networks (Cancer Network)

 

“I think this has been a very positive process. The opportunities we’ve had to put forward perspectives, it’s not just giving feedback. I feel we’ve had a role in shaping this, as well as feedback to some communications. I feel we’ve had our voices heard; the engagement has been really respectful…” – Consumer

 

“Very well facilitated to allow for people to ask and share and learn in comfort.” – Consumer

 

“Content excellent, break out groups very useful. Ability to participate via Zoom much appreciated!” – Consumer

The Voice to Parliament – a health consumer lens

Australians are being asked to go to the polls on October 14th and vote on whether the Constitution should be amended to recognise a First Nations Voice to Parliament.

Health Consumers’ Council hosted a lunchtime discussion on 6 October for people in representative roles as health consumers, carers, people with lived experience or community members to meet and learn about The Voice, and discuss the implications for healthcare and health outcomes.

In this presentation, we review some factual information about The Voice developed by Reconciliation WA and look at some of the expected health impacts for Aboriginal people of The Voice.

 

Digital Health

Digital health is a HUGE topic. This page brings together some of the key information you need to know about digital health in WA and some opportunities to be involved in shaping this.

Electronic Medical Record Program

In 2021, Health Consumers’ Council was commissioned by the WA Department of Health to work with consumers across WA to create a Consumer Charter for an Electronic Medical Record. Following this, there was a pause in work before funding was confirmed for WA Health to continue rolling out the Digital Medical Record, and put in a second business case for a full Electronic Medical Record.

In 2023, work on WA’s Electronic Medical Record ramped up. In collaboration with the Department of Health Electronic Medical Record program team, HCC established a systemwide consumer network and consumer group as the business case was being completed. This has now been lodged.

In 2024, we will convene three public webinars on the Electronic Medical Record; the details on these will be made available here.

If you’d like you’d like to receive updates about this work, including opportunities for input, you can register to join our Electronic Medical Record Consumer Network or email info@hconc.org.au

Project Updates

February 2024

Upcoming Webinars

Patient Reported Outcome Measures and the EMR | Fri 10th May 2024, (3:30 pm  – 5:00 pm AWST)
For more details and to register, click here

Data Security and Trust with an EMR | Wed 5th June 2024 (3.30 pm-5.00 pm AWST)
For more details and to register, click here

Webinar Replays

25/07/23: presentation and interview with the Electronic Medical Record team at WA Health.

Frequently Asked Questions

What is Digital Health?

Digital health can refer to:

  • health records being digital rather than paper-based
  • administrative interactions that occur online, such as booking, cancelling or re-scheduling appointments
  • health care delivered digitally rather than face to face (for example, via a video call)

This page brings together updates about the rapidly changing digital health projects and initiatives in WA.

What is the difference between My Health Record and an Electronic Medical Record?

While they might sound similar, your My Health Record is different to an Electronic Medical Record.

My Health Record was put in place Australia-wide in 2019, with a record created for every Australia unless they opted out. My Health Record encompasses all aspects of your health care, from the GP to hospital.

An Electronic Medical Record usually refers to your health information within the walls of a hospital, or group of hospitals. It contains information relevant to your hospital admission, but doesn’t necessarily encompass your whole health history.

Do I have a My Health Record?

A My Health Record was created for every Australian, unless you specifically opted-out of having one. If you don’t remember opting out, or you don’t know if you have a My Health Record, you probably do.

My Health Record holds all your key health information, such as immunisations, test results and imaging reports, medication information, and hospital summaries. It can be accessed by your healthcare providers at any time, including in an emergency.

You can find out more about My Health Record here.

If you don’t know if you have a My Health Record, or you’ve never looked at your My Health Record before, we recommend you take a look at what information is included. You can find out how to set up your My Health Record here.

Do we have an Electronic Medical Record in WA?

WA does not yet have an Electronic Medical Record. But we have begun the process of getting one. Some WA hospitals and health services have a forerunner to this, which is called a Digital Medical Record (see video below). The WA Government has funded the WA Department of Health to roll out a Digital Medical Record across the whole of WA.

The following video was produced in 2021 and explains the rollout plan for WA’s Electronic Medical Record.

 

Additional resources

 

 

[Last updated 01/24]

National Health Reform Agreement – how health is funded by the Federal and State governments

By Clare Mullen, Executive Director

The National Health Reform Agreement (NHRA) is an agreement between the Commonwealth government and the state government on a range of health issues.

The Federal Government has commissioned an independent review of this Agreement as it is the mid-way point of the Agreement’s term. The review team is due to report in August 2023.

I had the chance to speak with the Review team when they were in Perth this week.

Below are some of the points we plan to include in Health Consumers’ Council’s submission which we will submit by the end of June 2023. If you have further points you’d like to see included in that response, please email them to Jasmina Brankovich, HCC’s Systemic Advocacy and Policy Lead, jasmina.brankovich@hconc.org.au

  • A key focus of the Agreement relates to how hospitals are funded – this is called Activity Based Funding (ABF) and it means that hospitals are funded based on the volume of services they provide (rather than receiving a block of funding as was the case previously). From our discussions with people across health, it seems this has led to some activities which would benefit consumers being understood by hospitals as not to be included – i.e. activities which might lead to services being provided in primary care/community care settings rather than in a hospital setting
  • Funding based on fee for service inevitably leads to health services need to drive activity – when less activity in the hospital, and more in primary care would be best for the consumer
    • We note that NSW Health opted to initiate collaborative commissioning, using state funds to commission primary care services so as to reduce demand on hospital services – we’re not aware that this has been replicated in other states yet, including WA
  • The role of “system manager” as it’s currently recognised – i.e. only of public hospitals – limits the value of a system manager role.
    • Given that managing hospitals relies heavily on the provision and functioning of primary/community care services – often commissioned and/or funded by the Commonwealth, there may be an advantage in exploring the role of “system manager” being expanded to all publicly funded health services in the state – including those in primary care.
    • Consumer input into commissioning and funding decisions should be mandated for all publicly funded health services – both at a hospital and primary care level. This may require investment in building the capacity and structures to support informed consumer input to these decisions.
  • In response to the goals of the NHRA:
    • deliver safe, high-quality care in the right place at the right time
      • there is significant opportunity to improve funding flows across hospital/primary and community services – all too often consumer reps hear, that’s a function of “the other part of the system”.
    • prioritise prevention, and help people manage their health across their lifetime
      • there is little evidence that this goal is being achieved through any of the activities in the current agreement
    • drive best-practice and performance using data and research
      • this is difficult for consumers to comment on given the limited transparency of data about best practice and performance that is in the public domain
    • improve efficiency and ensure financial sustainability
      • the geographic and demographic characteristics of WA mean that “efficiency” and “financial sustainability” comparisons with other states is unlikely to be an effective way of measuring success for the WA community
      • We advocate for a recognition of the inherent “inefficiencies” in a health system that is delivering care across a vast geographic area, with very limited Federally-funded primary care provision in the regions – a national efficient price is unlikely to be sufficient to deliver safe high quality care in many parts of WA

With regards to the 6 reforms outlined in Schedule C of the NHRA:

  • empowering people through health literacy – person-centred health information and support will empower people to manage their own health well and engage effectively with health services
    • from our position in the system, there is very limited evidence of any activity happening in this area
    • we would like to see a stronger role for community-led initiatives – including bi-cultural workers – to shift the dial on health literacy
  • prevention and wellbeing – to reduce the burden of long-term chronic conditions and improve people’s quality of life
    • we note the publication of both state and national strategies relating to preventive health and obesity prevention, but see limited evidence of any investment in the implementation of these strategies at any level
    • we believe grassroots investment in building and maintain social capital is critical to this priority
  • paying for value and outcomes – enabling new and flexible ways for governments to pay for health services
    • we believe there’s an opportunity for more consumer involvement in discussions to determine the framework for paying for value and outcomes
  • joint planning and funding at a local level – improving the way health services are planned and delivered at the local level
    • in WA, we have limited evidence of this happening in practice. We acknowledge the benefit of having the three WA Primary Health Networks (PHNs) managed by the same organisation – the WA Primary Health Alliance.
    • We note the fact that in WA, the geographical areas covered by our PHNs don’t match the geographical areas covered by WA’s Health Service Providers and the challenge this creates for joint funding and planning
      • (In the metro area we have Perth North PHN and Perth South PHN, but South Metro, North Metro and East Metro Health Services)
  • enhanced health data – integrating data to support better health outcomes and save lives
    • we would advocate for more local involvement and upskilling of WA consumers to inform the collection, publication and use of health data for the WA community
  • nationally cohesive health technology assessment – improving health technology decisions will deliver safe, effective and affordable care
    • we are looking into this to inform our response.

We will also be considering our position on how Patient Reported Outcome Measures (PROMS) and Patient Reported Experience Measures (PREMS) could be used to inform how funding flows to different parts of the health system in future.

Overall, we will be calling for more local involvement and control of public funds that are allocated for the benefit of the WA community. For example, regional commissioning groups that agree funding priorities, planned outcomes, and performance measurement frameworks – to include multiple and diverse consumer and carer leaders working alongside local health system staff and policy makers who are well-placed to make decisions affecting the WA community.

Sustainable Health Review – focus on delivery

In November 2022, Health Consumers’ Council staff attended a WA Health Leadership breakfast with the Minister for Health and Mental Health, Amber-Jade Sanderson, for an update on the Sustainable Health Review (SHR).

After a slow start to implementation, and the disruptions caused by COVID, it was great to hear the Minister reiterate the Government’s commitment to the SHR and its implementation. The Minister was firm in her view that the SHR is about:

  • an equitable patient-centred system
  • a health system, not a hospital system
  • giving a voice to consumers.

She reminded attendees that the SHR outlined the need for courage, collaboration and systems-thinking.

We heard that while WA’s COVID response demonstrated the robustness of the WA health system, it also highlighted its fragility in some areas. The Minister was clear that as we now live with COVID, it’s not about snapping back to how things were before – but that it’s time to make sure that the health system’s actions match community needs.

She outlined that a key priority is addressing emergency access to care – which is a focus for a Ministerial Task Force that was established earlier this year.

Tim Marney, Chief Economist at Nous Consulting, and Chair of the Independent Oversight Committee (IOC) for the SHR then spoke about how the focus for the IOC is very much on delivery. There will be a new focus on implementation.

As part of that, it has been agreed to provide focused support to a smaller number of recommendations (there are 30 in total in the SHR) to enable implementation to be accelerated in these critical areas:

  • Recommendation 11: Improve timely access to outpatient services through:
    a) Moving routine, non-urgent and less complex specialist outpatient services out of hospital settings in partnership with primary care.
    b) Requiring all metropolitan Health Service Providers to progressively provide telehealth consultations for 65 per cent of outpatient services for country patients by July 2022.
  • Recommendation 13: Implement models of care in the community for groups of people with complex conditions who are frequent presenters to hospital.
  • Recommendation 17: Implement a new funding and commissioning model for the WA health system from July 2021 focused on quality and value for the patient and community, supporting new models of care and joint commissioning
  • Recommendation 22: Invest in a phased 10-year digitisation of theWA health system to empower citizens withgreater health information, to enable access
    to innovative, safe and efficient services; and
    to improve, promote and protect the health of Western Australians.
  • Recommendation 23: Build a systemwide culture of courage, innovation
    and accountability that builds on the existing
    pride, compassion and professionalism of staff to support collaboration for change
  • Recommendation 26: Build capability in workforce planning and formally partner with universities, vocational training institutes and professional colleges to shape the skills and curriculum to develop the health and social care workforce of the future

Tim was clear to point out that this did not signal that the other recommendations were less important and reiterated that work on these would continue.

He also highlighted that a number of the recommendations including Recommendation 3 with a focus on health equity and Recommendation 4 with a focus on citizen and community partnership – and for which Suzanna Robertson, HCC’s Executive Director is a co-lead – should be seen as underpinning all the other recommendations.

Health Consumers’ Council continue to advocate for targeted consumer and lived experience partnership and involvement in all the SHR work and look forward to learning more about how this will work for the six prioritised recommendations.

(By Clare Mullen, Deputy Director, Health Consumers’ Council)

A wild reflection from digital health summit

 

With the Wild Health Summit in Melbourne 18 October 2022, we are inspired by the idea that digital health could improve the patient experience even while the services themselves are quite fragmented. We need to continue to champion consumer voices in this space – too often they can be an after-thought.

We asked one of our consumer representatives, Robert McCormack, if he has any key questions or reflections to bear in mind for this upcoming Wild Health Summit event, having recently attended as a HCC consumer representative at the Digital Health Institute Summit (Perth 2022) held in August at the Perth Convention and Exhibition Centre.

Q: What were your highlights that might be of interest to health consumers?

A: I met a number of healthcare and IT professionals but did not see another health consumer.  However in conversations with these professionals, several times they relayed personal experiences as either patients or as carers.  Nonetheless, there is a case to have more consumers at the table.

Q: With no other consumers, do you have any comment on that – i.e. would it be of interest to consumers in future? Should we be advocating for more consumer places?

A: the need to engage widely with all stakeholders was emphasised by the keynote speaker, and I am of the view that the patient/carer/consumer needs to be seen as the principal stakeholder.

Q: any comment you might have on the value of you being there with a consumer lens?

(Mr McCormack was generous to provide us with a report on his experience at Digital Health Institute Summit (Perth 2022), which is summarised, below…)

Some Key Observations

The participation of over 200 delegates suggests there is substantial interest across the State in the potential benefits that could be delivered from the implementation of a solid digital health strategy.

The delegates comprised a good cross-section of health professionals including nurses, pharmacists, physiotherapists, and general practitioners through to senior executives from WA Health, and IT professionals with only a few health consumers.

The opening address by Simon Millman, the Parliamentary Secretary to the Minister for Health; Mental Health suggests the Western Australian Government has some commitment to digital health as also evident in its budget commitment to the first phase of developing a digital health record.

In conversation, most delegates acknowledged that while there has been some useful progress in rolling out aspects of digital health, considerable work needs to be done to achieve substantial potential benefits. One speaker described the current progress as additive rather than transformative.

Dr Helen Bevan, the keynote speaker, emphasised, with reference to her experience in the English National Health Service, the need to engage fully across the widest net possible of stakeholders to gain acceptance for proposed change, and this engagement needs to be done in the formative stages.

She particularly emphasised the need to identify and engage the key players, the “super-connectors”, in informal networks as well as dealing with the formal networks.

I note this approach contrasts with the experience of many health consumers in that they are too often ignored locally in the early developmental phases of most healthcare projects.

I am of the view that consumers as the clients of healthcare should be the primary stakeholders consulted in any proposed development of initiatives.

The fragmentation of responsibility for health across federal and state governments and the delivery of services across multiple providers presents particular challenges in assembling fragmented data.  While the My Health Record potentially brings data together from a number of providers, the record for each patient is mainly incomplete and may not have up-to-date information.

Hospitals use a myriad of systems that don’t automatically share data although some progress is being made as evident in a presentation by staff from Fiona Stanley Hospital.

The development of artificial intelligence tools is seeing the improved diagnosis and management of healthcare.

For example (of the above), as evident in the Health in a Virtual Environment (HIVE) project at Royal Perth Hospital and research undertaken by the CSIRO in diabetic foot ulcer diagnosis and management.

The need to think beyond the current paradigms in healthcare delivery was highlighted in a presentation on delivering chemotherapy in the home by Lorna Cook Company Director & Co-Founder, View Health Chemo@home.

In a similar vein, it should be noted that COVID has caused a rethink on service delivery models which has seen, for example, the development of telehealth options and electronic prescriptions.

Digital health innovation has the potential to improve the patient experience in booking appointments, such as the Health Engine system developed by Dr Marcus Tan.  In contrast, while the WA Health Department has invested in developing the Manage My Care app and is working on further enhancements to this app, this system is currently of limited use in that not all outpatient appointments are recorded on this system and patients have no opportunity to choose appointment times.

The trade stalls were mainly commercial IT companies who have had experience in developing and implementing systems across healthcare systems.  We can expect some of these companies will have opportunities to roll out digital systems across the WA health service providers.  It will be interesting to see the extent pre-existing systems will be adopted and the degree of customisation of these systems to meet our requirements versus bespoke development of new systems.

Concluding Remarks

While there have been several useful developments in the digital health space,

to realise the substantial benefits of a comprehensive integrated digital health strategy will require wider engagement of the broadest possible group of stakeholders at the earliest stages of the project with a particular focus on consumers/patients as the primary stakeholders together with the substantial investment of resources and talent over a prolonged period.

The Health Consumers Council can potentially play a key role in shaping the digital future of healthcare delivery by providing a broad range of consumer insights required for the critical success of the digital health strategy.

(This article/report is courtesy of Robert McCormack, HCC consumer representative.)

Consumer update on Sustainable Health Review workforce recommendations

Sustainable Health Review – update on health workforce issues

The Sustainable Health Review is a wide reaching and ambitious reform program. After an extensive consultation process the Review was published in 2019 and includes 30 recommendations, organised into eight enduring strategies.

Some of the work was paused as the health system responded to the COVID pandemic, but as we move towards living with COVID we’re starting to see action and progress on a number of the recommendations. You can see more about HCC’s involvement in this work at https://www.hconc.org.au/what-we-do/policy-development/sustainable-health-review-consumer-view/

Issues relating to the workforce and culture of the health system were included in the Review, and there are five recommendations that cover these issues.

Find out more about health workforce issues

Health Consumers’ Council hosted a consumer information session to share what we know about work that is happening as part of the Sustainable Health Review on workforce issues.

  • Click here to see the slides from that information session
  • Click here to view the Zoom recording of that information session

Consumers have their say

Health Consumers’ Council hosted two consumer consultations for the Department of Health on one of the recommendations on this topic on 26 July 2022.

Recommendation 26 – Build capability in workforce planning and formally partner with universities, vocational training institutes and professional colleges to shape the skills and curriculum to develop the health and social care workforce of the future.

You can view the post-its that were created as part of these online discussions

Session 1 – focus on regional perspectives

Click the links below to see the dot points for these topics

 

Session 2 – focus on metro perspectives

Click the links below to see the dot points for these topics

 

To be added to a mailing list to be kept informed about this work, contact Clare Mullen clare.mullen@hconc.org.au

(Last updated 29/07/22)